Comment by Colene Anderson on March 9, 2012 at 2:47pm

Im not in Florida, but I seen your post and thought I would reply. Im sorry you are having to go through this especially with a little one at such a young age. My daughter was diagnosed at 3 and is now 5 she has alopecia universalis. For us coping wise we just found out as much information we could about the disease and then we hooked up with a group call The childrens alopecia project(cap kids) they are amazing!!!! I dont think there was any one way was handled the situation we just always tried to show our daughter she was no different just didnt have hair made she she knew what it was. We made it easy for her. For us it was hard watching her go through this but we had to be the strong ones.

Comment by Amber on March 9, 2012 at 9:20pm

Sorry, I'm not in Florida either but that's one reason I love Alopecia World so much. It gives so many of us a place to turn for support and with our questions. I've had Alopecia since I was 3 and here I am now 23.....20 years I have dealt with this and I gotta tell you as much as you feel it will affect her life, you just have to live every day reminding her, and yourself, that it doesn't make her who she is. There is no reason for it to hold her back in anything. True, she will have her ups and downs as many of us have but that isn't any different anyone else. Even those without Alopecia go through similar things. Whatever happens will happen and the best thing you can do for your little girl is to raise her strong, comfort her when she's down and help pick her right up. Teach her to be the strong individual she is.

I understand that it must be very difficult seeing your daughter this way and wondering how her life is going to turn out. I myself have a little 2 year old and I would hate to see her go through something like this but I remind myself that I turned out just fine. I'm a college graduate as of this last December, I found a wonderful man who accepts and loves me as I am (hair or no hair, which currently is no hair)and an married to, and I have a beautiful, bright little girl......I'm not trying to gloat but to show you that having alopecia is NOT by any means going to keep your little girl from living a full life. The best thing you can do for her is teach her that.

As for support, Alopecia World is great and there are always things like pen-pals or the Alopecia conferences. I personally have never been to one but if it would help your or your daughter as she gets older it's there. I wish you luck on your journey with your daughter. Be strong :) there's always hope! She has a bright future ahead of her with or without alopecia.

Comment by Keri's Mommy on March 10, 2012 at 6:36pm

Thank you ladies for commenting. It is very hard seeing her go through this, but it's great to know that she isn't alone...we aren't alone. I will keep in mind all the things you guys shared with me and try to be strong for my little princess!

Comment by Masons Mom on May 28, 2012 at 11:43pm

Hi... I am a Pensacola mommy. My son is 5 and has alopecia. He was diagnosed at 18 mo, although I knew it at 12 mo. I, myself, have alopecia areata so I recognized the signs.
I understand the difficulties and stress you have and will have as she grows older. My son is only now starting to ask questions about why. It breaks my heart...
I would love to talk more if you are interested. I know my son would love to meet other kids with the same beautiful bald head.
Tracy

Comment