Hi Everyone,

I have been experiencing hairloss which they are calling Diffuse Alopecia Areata and it is severe. It began with severe itchyness which lead me to finding a spot on the back of my head sometime in March. Shortly after that my hair began to fall out all over my head. Actally I'm not sure if it fell out or broke off, I never really seemed to have "bald" spots. It did spread to my pubic area, my underarms, and my eyebrows became a little spotty. I evenually had to shave my head. After 3 weeks of decreasing doses of Steroids, then a month later 80 mg daily for a week it seems to begrowing back, but very very slowly. It is coming in very fine and colorless, so I bought some root touch up and dyed it.

I guess my question is for those who have or have had regrowth at some point. I have an awful feeling that it's not really going to come back totally. I don't want to do the steroid thing anymore because I gained 10 pounds that I cannot get rid of and broke out with terrible acne on the backof my head and neck that I aso can't get rid of.

I really can't find much information on regrowth via internet.
Thanks for reading my blog.
Lynn

Th

Views: 194

Comment by Carol Yuen on November 8, 2011 at 4:12pm
I was diagnosed with diffuse alopecia in 2009 too. I regrew 60% of my hair which is enough to go out with a wig. I am wig free for about 2 years. Minoxdil 5% did really help me with the regrowth. Although my head is still VERY VERY itchy and I get ALOT of dandruff. I wash my hair about every 5 days and I lose about 150 hair everytime I wash it, but I am not complaining. So you never know if your hair will grow back or not. Hopefully yours will grow back too.
Comment by Theresa on November 8, 2011 at 11:11pm

Carol...I am so happy for you. Any regrowth is positive. I had the inchy stuff too. My head was also inflammed from being sore. To treat that I used an aloe vera plant and rubbed it in my scalp twice a week. No more itching and scratching. Also, you can try oil...coconut oil, castor oil and others...but the aloe vera was soothing and it really helped.

Comment by Theresa on November 9, 2011 at 12:14am

Lynn, I am sorry...I wrote to Carol thinking it was her post...I needed to scroll up higher...Iam new to AW as of today. I just want to encourage you that there is hope. If you can stay positive, I know it's hard but find something positive about YOU and hold on to that. If you have not tried natural remedies I would suggest you look into it. It has worked wonders for me...I think. My hair began falling out in March 2011. I was completely bald by August 2011. Although I tried the doctor recommended medications for one month, I discontinued them when my hair fell out the more. My husband shaved me bald because the spots where more than I could handle. I began doing natural treatments...aloe vera, apple cider vinegar, oils. All of these things can be googled on the internet. A co worker even told me about boiled potatoes water as a hair rinse...I tried it. lol... Things will turn around for you. I believe that.

Comment by lynn on November 9, 2011 at 8:44am

Theresa, I guess we were experiencing the same ting at the same time. my blogcame of a little negative, but I really do have a good attitude about the alopecia. Maybe because I don't really accept that this is forever, at least I hope not. I have a few wigs (all different) that I wear, and I really hav fun with that, especially going into winter. All I really want at this point is enough hair to not have t wear a wig in the summer. I needed to take off 10lbs presteroids,now I'm up to 20lbs. I would look pretty good bald and would be a litte more confident if I were a little thinner, so that's what I will be concentrating on over the winter. I have not tried anything natural yet, so thanks for the tips, I will google them. You said they did wonders for you, is your hair growing back? I would like to keep in touch with your progress since we went through it at the same time.

Comment by Theresa on November 9, 2011 at 1:44pm

Lynn, I love your spirit. Yes, if you look at my pics you will see my progress. I regrow a lot of hair in only 11 weeks. When my hair first began to grow back it returned "white" go figured that! My hair was black. I guess I look older than I am. I do not wear a wig or hats any more, not even to work and I am a school teacher. I still have some bald spots but I have fuzz growing in them. I can not tell you that the natural remedies brought my hair back! I stop taking the doctor medication only after a month of trying it. It just returned...I have the faith to believe that it was going to return but if it did not return, I was prepared to live with a bald head for the rest of my life. I want to believe that the aloe vera plant had something to do with it because it is a natural healer. I just wanted to try everything natural that I could to encourage growth. Please keep in touch, I would like that.

Comment by lynn on November 9, 2011 at 3:15pm

my regrowth is also colorless and baby fine, so I bought some root touch up and dyed it...lol. The first time I decided to dye it I was looking in the mirror, noticed that I had more hair than you could see because theres no color to it, so I took out my mascara brush and used that first, cracking up laughing the entire time....by myself. Actually I still laugh now when I think about it. I think I will start with the aloe vera plant, just gotta get one first. Wish I knew about the potatoes earlier, I made tem for dinner lastnight....haha oh boy...too funny.

Comment by Theresa on November 9, 2011 at 4:06pm

Talking about cracking up...I make bald headed-no hair jokes and people just look at me...lolololol...I am laughting now just thinking about their expressions.(OMG did she just day that?) I am not shame of what has happened to me, not anymore anyway. Life is too short to be hung up on hair, although I want all the hair I can stand! lololol But I can not let it define me as a person. Sooooo, laughing at yourself, about yourself is always good! Nobody else bet not do it though! lololol...

Comment by lynn on November 9, 2011 at 4:20pm

I love it. I was telling everyone I was going as a conehead for Halloween, or a q-ball, peple don't know if they should laugh or not, or if i'm serious or not. I laugh at myself all the time. I think be in my forties and established helps though. My heart goes out to the young people going through this. But, if they could see how we are handling it, they will know that it's not the end of the world. Keep smiling.

Comment by Theresa on November 9, 2011 at 9:59pm

Too funny! And you are so right...it's not the end of the world! What a truism! By the way, my middle name is Lynn...I think your'e growing on me. lol...Take care

Comment by lynn on March 27, 2012 at 1:01pm

Hey Theresa, I was reading through our blogs today, I really haven't been on here lately. Anyway, I was wondering how your hair is today, did it continue to grow back. I have a full head of hair, maybe about 2 inches, one quarter-size bald spot and the bottom of my hairline in the back of my head is a little cock-eyed, but it 's coming in....woohoo. I have not been using any medicines for a few months, just nioxin shampoo. The only issue now is that it is growing sooooooooooooooo slow, it seems to be getting thicker, just not longer. It is much better than what I had in the fall, so I am pleased.

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