Alopecia World
Where acceptance is all there is!
RLT therapy or change in diet?
Hi! I was diagnosed with alopecia areata last september right before my son's (minor) surgery. The doctors said it was probably stress and that it would be "totally fine" after steroid injections... it wasn't fine. It spread to about the size of a ritz cracker, right on the crown of my head, then I got another one right next to it. They responded well to the treatments, but 2 more spots showed up, and again, I went to get steroid injections. They seem to work for me, which I honestly am thrilled about. I didn't realize how much I loved my hair until I started losing it.
The more I read on AA, the more I'm wondering if there's anything else I can do other than injections. Has anyone tried the RLT therapy? or a major change in diet? Everyone who DOESN'T have alopecia has an opinion on it, and it's really just making me feel worse!"eat healthier" "go paleo" "just shave your head ad buy a wig" "losing your hair isn't the worst thing that could happen-you COULD have cancer!!"
so.freaking.annoying.
Also- is there anyone else here that knows when a spot is going to show? I swear, I can almost feel them coming on!
-Gina
Comment
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Comment by MegMom on February 24, 2014 at 10:50am
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Hello Gabriella,
I emailed you yesterday a copy of the RLT dietary guideline...
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Comment by Gabriela on February 23, 2014 at 11:13pm
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Hello! Are you still up to sharing that RLT BOOKLET? gleveron@hotmail.com
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Comment by athenasdad on December 4, 2013 at 8:32am
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Yes everything Regina says in the above post is spot on. I'm the father of Athena the little girl she is referencing. We all are aware of the research being done at Columbia University on alopecia. The genitic similarities between celiac and type one diabetes and rheumatoid arthritis is pretty remarkable. All if those autoimmune conditions can be helped with a good diet. Especially celiac disease.
RLT is not exactly a scam but they are going about this entirely wrong. To charge people an incredible amount of money for a diet guide and some probiotics is just wrong. I feel like they are taking advantage of desperate people. The fact of the matter is changing how you eat is a tough thing to do. But I assure you if you do it will yield results.
1. Research what gluten is
2. Cut the gluten out if your diet
3. Limit dairy to zero or very very little
4. Get a probiotic regiment going, any health food store will have it.
5. Don't ever buy a magic pill. They don't work. This is a layered approach to curing yourself.
I garuntee this will yield results. My daughter has grown almost all of her hair back from being universalis. Of course the unpredictable nature of this disease means it might not last. However what the hell do you have to lose. No pun intended.
Email me if you have questions
Gregsantini@yahoo.com
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Hi Brittany. I have also come across RLT Therapy and was on initial communication with the Director of Operations Lana Becker. I inquired if it can be done on a toddler because my 19 month old daughter was diagnosed with AA at 14 mos. She didn't answer my question, rather she asked for the current diet and will be reviewed by their protocol director. I waited and waited and no response. Then I saw in their website a few days later that the therapy is ideal for 4 yrs old and up, so I got my answer. When I asked Lana about this, she never replied to me anymore.
Can you also share with me that booklet because I just want to see how different this diet is against other holistic diets, that they are charging for it. My email add is reginakabigting@yahoo.com
I am in touch with a another couple from New York whose toddler daughter also has AA. We are in agreement that root cause of AA is more likely in the human gut, there is an imbalance of good and bad bacteria which results to various auto immune disorders. The imbalance is precipitated by envrionmental factors, medications such as antibiotics, and food. Our food nowadays have become inferior --- chemical fillers, artificial hormones to prolong shelf life but us humans are paying dearly for it. This can probably explain why more and more people are suffering from auto immune disorders in the 21st century.
The finding of Columbia University in New York that says the gene of AA is related to Celiac has made me and husband conclude (even that NY couple) that the way to treat AA is also in the digestive system. Our children are now on gluten free, probiotic regimen even if they dont have Celiac disease. That couple's child got her hair back in 6 months and she is now 2 yrs old by doing the ff: gluten and dairy free, probiotics, liquid vit A, cod liver oil, multi vitamin supplement, castor oil application in the stomach. They initially jump started the treatment with oral prednisolone therapy, topical sterioid mixed with Rogaine to eradicate the internal infflammation once and for all. Lo and behold, their child is doing so well! I have the photos before and after.
Hence, we are replicating this type of treatment with our child now, guided by our own pediatric dermatologist and we are about to see a naturopath doctor as well to handle the holistic portion of the said treatment. The NY couple has been very gracious in sharing their experience. But they emphasized that it may or not work for our daughter. But so far we are seeing baby fuzzy hair in scalp. Her lashes and eye brows have fully grown back.
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Comment by Brittany Lee on November 26, 2013 at 2:52pm
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done!
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Hello, Brittany, I would love if you shared the booklet! Thank you so much! Toddlerclub@gmail.com
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Yup, I tried to have them connect me with someone who was doing the therapy, of course they didn't respond. It was a waste of money and time, hopefully people see that on here and avoid the RLT therapy.
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Oh yea, i try to read comments on fb but they must delete them or something. They are careful not to let people discuss things amongst each other it seems. You have some great points!
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Such a ripoff and then they promote that it's helping so many people and they are so glad that they can make such a different, it's all a huge marketing scheme. Also, you can't even write on the wall on their FB to discuss how much of a joke it is. They give people false hope, which is ridiculous. Don't get me wrong, changing diet is essential with anyone with an autoimmune disease. But they make it seem like it's a one fit all approach (not true) and they make it seem like their diet is so scientific to make the body regrow hair. They use all these fancy words that no one understands to make them sound like they know what they are talking about. I am all for growing my hair back and I am all for being healthy, changing diet, and taking a high quality vitamin but it should not cost $300+ for literally a mediocre diet. Is it better than the average american diet, yes it is. It's far from healthy in my mind and the diet is extremely expensive. What a joke and I'm glad someone else recognizes it as well. I wish so many people wouldn't fall trap to that. There's 4500 fans on Facebook, its just a huge marketing scheme as is everything else. We can heal our bodies holistically, I truly believe that. but don't make the same mistake that I did and spend money on a diet that makes promises. It's all about finding your underlying unique cause. Thank u Brittany for sharing your thoughts, wish there was more we could do about it
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Oh my goodness! Yep. I paid $325 on September 3rd, To date i have only gotten a 30 day supply of some vitamin/probiotic? i didn't even open it because i had to beg to get that bottle and i'm totally turned off by the whole thing. I started out with my 4 days with zero food, too! I made it 11 days and i had not rec'd my supplements i paid for. i was emailed a pdf folder with the 'directions'. I tracked them down on FB and email. As of 10-01 a guy told me i would get my other 30 days when they caught up with production. He said he was my mentor and to keep him posted. I've never heard from him and 'surprise!' my other 30 days of pills has never shown up. I am so disgusted.
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