Hi! I was diagnosed with alopecia areata last september right before my son's (minor) surgery. The doctors said it was probably stress and that it would be "totally fine" after steroid injections... it wasn't fine. It spread to about the size of a ritz cracker, right on the crown of my head, then I got another one right next to it. They responded well to the treatments, but 2 more spots showed up, and again, I went to get steroid injections. They seem to work for me, which I honestly am thrilled about. I didn't realize how much I loved my hair until I started losing it.

The more I read on AA, the more I'm wondering if there's anything else I can do other than injections. Has anyone tried the RLT therapy? or a major change in diet? Everyone who DOESN'T have alopecia has an opinion on it, and it's really just making me feel worse!"eat healthier" "go paleo" "just shave your head ad buy a wig" "losing your hair isn't the worst thing that could happen-you COULD have cancer!!"

so.freaking.annoying.

Also- is there anyone else here that knows when a spot is going to show? I swear, I can almost feel them coming on!

-Gina

Views: 3740

Comment by Jason on November 14, 2013 at 8:19pm

Yup,  I tried to have them connect me with someone who was doing the therapy, of course they didn't respond. It was a waste of money and time, hopefully people see that on here and avoid the RLT therapy. 

Comment by Sweetie on November 26, 2013 at 2:45pm
Hello, Brittany, I would love if you shared the booklet! Thank you so much! Toddlerclub@gmail.com
Comment by Brittany Lee on November 26, 2013 at 2:52pm

done!

Comment by MegMom on December 3, 2013 at 1:29pm

Hi Brittany.   I have also come across RLT Therapy and was on initial communication with the Director of Operations Lana Becker.  I inquired if it can be done on a toddler because my 19 month old  daughter was diagnosed with AA at 14 mos.  She didn't answer my question, rather she asked for the current diet and will be reviewed by their protocol director.  I waited and waited and no response.  Then I saw in their website a few days later that the therapy is ideal for 4 yrs old and up, so I got my answer.  When I asked Lana about this, she never replied to me anymore. 

 

Can you also share with me that booklet because I just want to see how different this diet is against other holistic diets, that they are charging for it.   My email add is reginakabigting@yahoo.com

 

I am in touch with a another couple from New York whose toddler daughter also has AA.  We are in agreement that root cause of AA is more likely in the human gut, there is an imbalance of good and bad bacteria which results to various auto immune disorders.  The imbalance is precipitated by envrionmental factors,  medications such as antibiotics, and food.  Our food nowadays have become inferior --- chemical fillers, artificial hormones to prolong shelf life but us humans are paying dearly for it.  This can probably explain why more and more people are suffering from auto immune disorders in the 21st century. 

 

The finding of  Columbia University in New York that says the gene of  AA is related to Celiac has made me and husband conclude (even that NY couple) that the way to treat AA is also in the digestive system.   Our children are now on gluten free, probiotic regimen even if they dont have Celiac disease.   That couple's child got her hair back in 6 months and she is now 2 yrs old by doing the ff:  gluten and dairy free,  probiotics,  liquid vit A, cod liver oil,  multi vitamin supplement, castor oil application in the stomach.   They initially jump started the treatment with oral prednisolone therapy,  topical sterioid mixed with Rogaine  to eradicate the internal infflammation once and for all.   Lo and behold,  their child is doing so well!   I have the photos before and after.

 

Hence, we are replicating this type of treatment with our child now,  guided by our own pediatric dermatologist and we are about to see a naturopath doctor as well to handle the holistic portion of the said treatment.  The NY couple has been very gracious in sharing their experience.  But they emphasized that it may or not work for our daughter.  But so far we are seeing baby fuzzy hair in scalp.  Her lashes and eye brows have fully grown back.

 

Comment by athenasdad on December 4, 2013 at 8:32am
Yes everything Regina says in the above post is spot on. I'm the father of Athena the little girl she is referencing. We all are aware of the research being done at Columbia University on alopecia. The genitic similarities between celiac and type one diabetes and rheumatoid arthritis is pretty remarkable. All if those autoimmune conditions can be helped with a good diet. Especially celiac disease.

RLT is not exactly a scam but they are going about this entirely wrong. To charge people an incredible amount of money for a diet guide and some probiotics is just wrong. I feel like they are taking advantage of desperate people. The fact of the matter is changing how you eat is a tough thing to do. But I assure you if you do it will yield results.

1. Research what gluten is
2. Cut the gluten out if your diet
3. Limit dairy to zero or very very little
4. Get a probiotic regiment going, any health food store will have it.
5. Don't ever buy a magic pill. They don't work. This is a layered approach to curing yourself.
I garuntee this will yield results. My daughter has grown almost all of her hair back from being universalis. Of course the unpredictable nature of this disease means it might not last. However what the hell do you have to lose. No pun intended.

Email me if you have questions
Gregsantini@yahoo.com
Comment by Gabriela on February 23, 2014 at 11:13pm
Hello! Are you still up to sharing that RLT BOOKLET? gleveron@hotmail.com
Comment by MegMom on February 24, 2014 at 10:50am

Hello Gabriella,

I emailed you yesterday a copy of the RLT dietary guideline...

Comment by Gabriela on February 26, 2014 at 11:10am

Hi MegMom! Thank you for your reply but I checked my email and don't seem to have it. Could you please resend? Thanks again!

Comment by Brittany Lee on February 26, 2014 at 11:22am
I can email it too
Comment by Stacey on February 27, 2014 at 1:35pm
I wud be gratefull if someone cud email me two I was considering ordering it but it is costly, my email adress is ramona911@live.com wud be much appreciated having alopicea is so hard to deal with. It Neva seems to get easier for me. Just feel depressed all the time

Comment

You need to be a member of Alopecia World to add comments!

Join Alopecia World

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service