www.alopeciaworld.com
Hi! I was diagnosed with alopecia areata last september right before my son's (minor) surgery. The doctors said it was probably stress and that it would be "totally fine" after steroid injections... it wasn't fine. It spread to about the size of a ritz cracker, right on the crown of my head, then I got another one right next to it. They responded well to the treatments, but 2 more spots showed up, and again, I went to get steroid injections. They seem to work for me, which I honestly am thrilled about. I didn't realize how much I loved my hair until I started losing it.
The more I read on AA, the more I'm wondering if there's anything else I can do other than injections. Has anyone tried the RLT therapy? or a major change in diet? Everyone who DOESN'T have alopecia has an opinion on it, and it's really just making me feel worse!"eat healthier" "go paleo" "just shave your head ad buy a wig" "losing your hair isn't the worst thing that could happen-you COULD have cancer!!"
so.freaking.annoying.
Also- is there anyone else here that knows when a spot is going to show? I swear, I can almost feel them coming on!
-Gina
Yup, I tried to have them connect me with someone who was doing the therapy, of course they didn't respond. It was a waste of money and time, hopefully people see that on here and avoid the RLT therapy.
done!
Hi Brittany. I have also come across RLT Therapy and was on initial communication with the Director of Operations Lana Becker. I inquired if it can be done on a toddler because my 19 month old daughter was diagnosed with AA at 14 mos. She didn't answer my question, rather she asked for the current diet and will be reviewed by their protocol director. I waited and waited and no response. Then I saw in their website a few days later that the therapy is ideal for 4 yrs old and up, so I got my answer. When I asked Lana about this, she never replied to me anymore.
Can you also share with me that booklet because I just want to see how different this diet is against other holistic diets, that they are charging for it. My email add is reginakabigting@yahoo.com
I am in touch with a another couple from New York whose toddler daughter also has AA. We are in agreement that root cause of AA is more likely in the human gut, there is an imbalance of good and bad bacteria which results to various auto immune disorders. The imbalance is precipitated by envrionmental factors, medications such as antibiotics, and food. Our food nowadays have become inferior --- chemical fillers, artificial hormones to prolong shelf life but us humans are paying dearly for it. This can probably explain why more and more people are suffering from auto immune disorders in the 21st century.
The finding of Columbia University in New York that says the gene of AA is related to Celiac has made me and husband conclude (even that NY couple) that the way to treat AA is also in the digestive system. Our children are now on gluten free, probiotic regimen even if they dont have Celiac disease. That couple's child got her hair back in 6 months and she is now 2 yrs old by doing the ff: gluten and dairy free, probiotics, liquid vit A, cod liver oil, multi vitamin supplement, castor oil application in the stomach. They initially jump started the treatment with oral prednisolone therapy, topical sterioid mixed with Rogaine to eradicate the internal infflammation once and for all. Lo and behold, their child is doing so well! I have the photos before and after.
Hence, we are replicating this type of treatment with our child now, guided by our own pediatric dermatologist and we are about to see a naturopath doctor as well to handle the holistic portion of the said treatment. The NY couple has been very gracious in sharing their experience. But they emphasized that it may or not work for our daughter. But so far we are seeing baby fuzzy hair in scalp. Her lashes and eye brows have fully grown back.
Hello Gabriella,
I emailed you yesterday a copy of the RLT dietary guideline...
Hi MegMom! Thank you for your reply but I checked my email and don't seem to have it. Could you please resend? Thanks again!
Comment
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.
© 2024 Created by Alopecia World. Powered by
You need to be a member of Alopecia World to add comments!
Join Alopecia World