I've had alopecia for 10 years now.  The past five have been alopecia universalis.  This school year, I changed school districts to be closer to home.  It turned out to be a much less stressful job and very fulfilling.  Two or three months ago, we started noticing "peach fuzz" on my face and part of my head.  When I had alopecia areta, it was common for fuzz to come and go, so I didn't think much of it.  But it hasn't gone anywhere this time, and it is getting longer.  My sidewalls are still bare.  Is this normal?  This is totally new for me.  And has anyone else noticed that the rules of the game keep changing?  I finally get comfortable and feel at peace with things, and then it all switches up.  I wish we could at least put in "alopecia orders".  I'd like areata alopecia, please.  I'll take an order of universalis, tall.  Umm... I'll take what he's having, but make mine a small.  I'd like to keep my eyebrows and eyelashes.  To be honest, it feels weird to have hair.  I can actually feel the wind tugging at it, and I don't really like the sensation.  I realize most people have "peach fuzz" on their face, but it looks strange of me, because I've lived without it for so long.  I keep rubbing my hand over my head, and I'm not the only one.  ARRRGGG!!!  I'm actually doing it right now. Time to bend and stretch...again.  So many lessons to learn.

Views: 110

Comment by Bridgid Weber on May 31, 2015 at 10:16pm

You are so right!  20 years into this adventure for me.  My latest twist is that my eyebrows now seem to be thinning.  I was talking with an AU lady about a new wig and she asked me if I still had eyebrows.  I hadn't admitted it out loud until that day, because truth be told, I used to have to get them waxed and tweezed, they were so thick.  Not anymore, just as all the hair on the top of my head has made a slow exodus over the past 20 years my eyebrows, and yes, come to think of it, even my eyelashes are still there but they're getting thinner.  Now the hair on my legs and under my arms-that all grows no problem-just to keep things interesting.  Trying to keep my sense of humor about all this.  Good to see that you are doing the same!

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