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Scarring alopecia
Hello everyone,
I am new here...in December of 2013 I found out that I have alopecia...and the worst one! Scarring Alopecia. I never had really thick hair but I had enough to cover my scalp. There were times when the hair would fall out more or less but it always grew back. The spring of 2012 was when I lost alot of hair, but the hair loss stopped and the hair grew back. A year later in the spring of 2013 it started falling out again and it never stopped. I spent many evening crying because ther hair just would stop to fall out. I was afraid to comb my hair!. The hair loss was mostly at the crown. The whole time I thought underactive thyroid was to blame but after many times of endocrinologist reconfirming that it is not the thyroid I decided to see a dermatologist and I am so glad I did. If only I did it earlier!. Dermatologist decided to do biopsy right away and two weeks later I found out that it is Scarring Alopecia. I am so depressed now!. I am only 36 and the thought of being without hair makes me so depressed!. In 2009 I had brain tumor, (thank God benign), later all the hormonal problems caused by it and now this!. My alopecia is caused by lichen planopilaris. The doctor put me on clobetasol, injections and Plaquenil. This week I will have my third series of injections, and I been on Plaquenil for two months. On some days I see more hair loss than on others but it is definately less then last year. Hopefully all these treatments will bring good results. The doctor also told me to use Men's Rogaine, however the side effect is that I noticed hair growth on my face. I am also noticing hair growth on my head, so I guess I will continue using it. I am using Men's formula in the evening (since it is greasy) and woman's formula in the morning after I was my hair. I don't have any itching of the scalp but on some day my scalp feels like it is on fire, eventhough I can't see any redness. Once a week I apply olive oil/castor oil mask to relieve the burning, plus I heard the castor oil helps to grow hair. Regards to all suffering from all alopecias and I am waiting for posts and stories suffering from my type of alopecia.
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Comment by Molly Vazquez on April 14, 2014 at 11:49am
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Hey Anna,
The feeling of freedom I found was when I let go of worrying. I had major anxiety and I really allowed Alopecia to keep me inside of my house, never leaving my comfort zone. I ended up getting really pale from never going outside and becoming my own prisoner. I look back now- and wish I never had waiting so long to walk outside and live as people only worried as much as I worried. I once heard a quote "Whether you think you can or you can't, You're right."
When I was 12 with Alopecia and my mom allowed me to become homeschooled I devoted my life and teenage years to figure this disease out so that when I got my hair back (and I did) than I could share it with everyone who feels exactly like I felt. I hope you find this helpful as my goal is to inspire :)
Molly,
Author of Alopecia & Wellness : How I got my hair back treatment free, & Optimist Health Enthusiast
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Comment by Ann on April 27, 2014 at 1:51am
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Hi love, I used to get shots but discontinued because I didn't like the side effects. I started getting these dents where the injections were, it was expensive, etc. I have your type of alopecia. I'm only 28 and it's been a slow process to rock the bald but I've been doing it for the past couple years. Have only started giving people the reason recently. I was diagnosed in 07 and I guess it took me until 2012 to reeeaallly start the journey of aggressive self love because the world wasn't gonna give it to me. It was gonna tell me to modify myself, to feel bad, that I was less feminine, etc. But that's because a lot of the world is just ignorant to the ways it perpetuates sexism and assuming that a bald woman is not beautiful because she is bald is actually, straight up illogical. These are the messages I had to start telling myself. I had people who were supportive and unsupportive. Some people thought I was weird ...but I totally am =) lol so I started taking more pictures because I used to avoid them. It was terrible, but now I'm starting an online self project that helps me practice being bald more in public aka the internet. I just have to carve out my own reality and that's been helpful. Before I knew it, people would say "if you had hair, I don't know if I'd like you as a person" lol, just crazy things ... it's kind of a signature. I also have anxiety and depression, but that's probably mostly from graduate school so I definitely am still working through some things. Maybe part of my journey could help u? I'm blogging at baldgyrlmemoirs.com <3
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