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Comment by Riley Knox on February 16, 2016 at 3:53pm

Absolutely stop! I've taken injections for months as well and only hated it more each time i went. What's worse about those is that they're more direct so you would expect them to work sooner or at least more efficiently, if it doesn't- don't do it anymore. Because injections aren't who you are. Your hair isn't who you are. Honestly yeah, sure alot of people might recognize someone by their hair from the back, but that doesn't say a thing about who they are as a person.If the injections don't help, I HIGHLY recommend stopping them. Now, I'm not going to tell you to go bald if your alopecia takes you that far because it's your hair- do as you wish with it but I'll tell you, I've been bald for near 2 weeks now and more people than ever have learned about alopecia than i thought. I infact assumed several people were going to give me a hard time about it- but those were the ones interested. Don't be ashamed by the way God made you. He made you who you are- so don't try to change that because it's perfect.

Comment by Debwp on February 14, 2016 at 3:00am

Until the medico's make a break-through with Alopecia, then we are all stumbling around in the dark and what works for some might not work for others.  Sufferers who have actually re-grown their hair are obviously on the right track, they have been there and found what works, so try following them.  We haven't been born with a gauge to track our stress levels, we can only recognise stress if we know ourselves well enough, even children can become stressed without realising it, and meditation can help them too in various trials conducted.  Therefore, I am not giving advice, just sharing what works for me, maybe it will work for you, it costs no more than your time.......well worth the investment and you just never know the outcome, until you try.  Never give up to this disease, because if you do it will defeat you, don't let it.  Swallow that grain of salt and just try meditation, it might just work for you as it did for me, find that tree in your mind as its waiting for you  ::))

Comment by Sharalexis on February 14, 2016 at 2:27am

I took these injections around my entire scalp and it took two years to get a full head of hair. I have black hair which grows slower. I did start straightening this hair right away which was alright. But I lost it again when I started coloring it and it has never grown back.

Comment by Zimrie on February 14, 2016 at 12:01am

I used to get the shots in my scalp until they stopped working.  I never got the side effects people are talking about in this thread.  The first time I ever got them, at least 80% of my hair was gone and I had complete regrowth within a month.   I've noticed also that more hair fell out after prolonged stress and sleep deprivation. 

Comment by Retro-55FS on February 12, 2016 at 11:45pm

I'm going to have to agree with Deb on this one.  While AA is certainly an autoimmune disorder, I believe that stress can exacerbate the condition.  I keep a journal of my AA and most times I find a new spot, it is during or after a very stressful time in my life.  This is easier said than done, but you have to maintain a positive attitude and try to release the stress.

When I do find a new spot, I immediately call my Dermatologist and receive Kenalog injections.  I have had one episode of atrophy and it was after I had went to a new Dermatologist.  This particular Doctor injected a large amount into one spot, which had never been done before.  This was a lesson learned and I now explain to the Doctor to please inject small quantities around the spot.  Certainly, this is more time the needles is going into your scalp, but I never get atrophy when this is done correctly.  

I strongly suggest keeping a journal or a log book of your condition.  Write down what is going on in your life when you get a new spot.  Moreover, keep a journal of your Doctor visits.  Lastly, and perhaps most importantly, tell the Doctor what YOU want. While they are the one with the Medical Degree, you are the patient, you are the one paying money, and it is your body.  

In closing, if you continue to keep receiving Kenalog injections is a decision you are going to have to make.  I would suggest conducting a risk analysis of your injections.  For example, is the risk of the side effects worth the benefit of growing hair back?  Perhaps a topical steroid may suit you better.  Unfortunately, everyone reacts different from Kenalog and there isn't much you can do about that.  At the end of the day, just remember, things could be worse, so try and release that stress.  Please take care of yourself and best of luck.

Comment by suburban mom on February 12, 2016 at 7:08pm

I couldn't take the headaches caused by the injections so i stopped them.  my hair was falling out anyway, but it was keeping my eyebrows.  i had them tattooed on.  that way, the pain was a one time deal and i feel better since i stopped the shots.  btw, the steroids did keep my asthma under control, but we have fixed that problem too.  i feel more like myself without the shots.  the headaches were debilitating and they lasted for days

Comment by Debwp on February 12, 2016 at 5:23pm

The reason I rarely comment on this site is because of IGNORANT COMMENTS from certain parties on here. I stated clearly that my comments are my truth, NOT EVERYONE is tuned into their own levels of stress or even be aware of their own emotions.

This is a copied quote from the National Alopecia Areata Foundation's website:

"Alopecia areata is a highly unpredictable and cyclical condition..... No matter how widespread the hair loss, most hair follicles remain alive and are ready to resume normal hair production whenever they receive the appropriate signal. In all cases, hair regrowth may occur even without treatment and even after many years."

This is supposed to be a supportive environment for fellow sufferers, not verbal slanging matches aimed at others.

Take care of yourself Cathy, take advice only from those who have AA in check, are positive in their outlook and are living proof that this condition can be overcome.

Comment by Daniyel on February 12, 2016 at 2:30pm

Im now 49. I lost my hair at 3, 5, and finally at 8. I have tried every know theoretical source of "cure". I have paid thousands of dollars. NOTHING HAS SHOWN ANY, NONE!!NOT ONE % OF GROWTH. Stop wastibg time, money, pain and suffering. I have chosen to pursue biochemistry. My work continues and im not prepared to share the results thus far. That said I will say this, our conditions genesis is primarily Mold!

Comment by chris for hair on February 12, 2016 at 12:49pm

Sent you a friend request. From your photos there may be a simple solution for now. If this is the current state of your hair, you don't need a wig. 

www.thehairreplacement.co

Comment by IAmReplaceable on February 12, 2016 at 12:46pm

I only went through one round of injections. An area in back of head. 2-3 days later  I had a really bad reaction: bad sleep and woke up to anxiety and the front of my head started shedding like male pattern baldness. Looking back I'm nearly confident the injection caused a stress response in me. Stopped immediately. Curiously the stupid derms keep recommending more.  I also stay away from the steroid cream as they seems to have made the area grow more.  

FYI the hair in the area grew back sparsely a few weeks after injection but fell out again. 

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