Alopecia World
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Some People
One day this last spring my daughter (she has alopecia) and her twin brother were in gymnastics and another mother (I think she is a doctor) was talking to her friend and what happened next floored me. In a normal voice (not in hushed tone that she was having the converstion in) ask her friend if my daughter (she pointed at her) was a boy. I never wanted to deck anybody so bad in my life. I was so blown away by the insenitivity that I could not speak.
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Comment by Kris Fenchel on August 19, 2009 at 7:24pm
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I can understand being shocked hearing that coming from another parent, but please tell me you said something to her.
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Comment by Ellie on August 20, 2009 at 4:30pm
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I was so taken back that I could not come up with a darn thing to say. That mother was not there. I am sure that other were wondering but not bold enough to ask. I really only talk to one other mother. We just end this session of gynmastics and we love the instructors and have signed up for the fall. Today we gave both the instructors an Alopecia Awareness bracelet.
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Comment by Brandy Snap on August 20, 2009 at 5:59pm
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People never cease to amaze me. Too bad it goes both ways. Just try to remember about karma, what goes around comes around. Like a boomerang, it'll come back and hit her in the head.
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Comment by Carol Yuen on August 21, 2009 at 12:48pm
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yeah...people are so insensitive at times...i was working yesterday...my patient is a doctor....he ask me where did u get your hair from..you look like a hippie........geezzzzzz..i was wearing my wig..i rather he ask me what happened..why are u wearing a wig...i know this dude for less than 10 hours...what makes him think he can ask a personal question like that........
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Comment by Essence on August 22, 2009 at 3:03am
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wow, that's terrible...
like, you expect these things from children (maybe) but for an adult to even say anything is just... beyond words... just thank god that your daughter didn't hear that, it may have gotten her upset =/
i once had a teacher of mine ask me "can i borrow your wig?" in a cafeteria filled with teens (at my high school)... i was so upset. thank god my best friend was by my side because i just wanted to CRY!! that was when i wasn't as open about it as i am now.
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Thank you all for your postings. Luckly I have not run into this mom/doctor again.
WE usually have positive experiences. My daughter is very outgoing and I hope that never changes. I hope she will be able to stand up for herself when people are mean. I will do my best to model that to her. I feel a little guilty because I feel that I am not giving her twin brother enough of my time. How do you balance two kids, one that needs more focus than the other?
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We are off to the beach. I will be back online on Wednesday. Hopefully I willhave pictures of my twins from the beach that I can post.
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Well I have another story! I took my daughter to the mall to get some clothes for school. everything was going well until we were having lunch. Haley and I were at a table eating our lunch when 2 teen girls walked by and one made a comment about my daughter that I could not hear and the other turned around and did the aww poor baby thing. I wanted to go after them and tell them that they were being rude but I could not leave my daughter and stuff to chase after these two. It steemed me. However on a more positive note I did sell a couple of my bracelets to ladies at the mall. I have gotten such a great response to my bracelets.
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I must say I had a very different experience today. The room mom coordinator came into my classroom to talk. I thought that she was there to talk to the lead teacher but she focused on me and told me that all the room moms wanted to have a bakesale to raise money to help us get a wig for Haley. They want to do it during the holiday programs that span 3 nights. I was totally shock in a good way. The director said that it would be OK as well. What a nice end to the day and week.
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I just found out that another friend of a friend wants to set put asale of my products in her store for Haley as well. That coupled with a friend at work that is having the kids that she teaches do a project for thier Bar mitzvah. We are getting the word out and money in to get Haley a really nice costom made wig.
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