Cam e across this interesting article: http://globalalopeciamission.org/something-strange-in-alopecia-world/

I'd like you guys to read and share your thoughts..
Is the "alopecic community" becoming far too inward looking and ultimately resigned to its fate?
Is there a sort of "cottage industry" catering to us that secretly doesnt want us to do anything about it?

I mean, why the hell is there so little research going on and why is it that the millions with alopecia still do not stand up for their cause?

Views: 488

Comment

You need to be a member of Alopecia World to add comments!

Join Alopecia World

Comment by R0BB on November 1, 2011 at 9:57am
Hiya Sanyal -

You wrote "I'd like you guys to read and share your thoughts.. "

Run a search here on AW in the Blogs and Discussions regarding this Global Mission thing.
You'll find alot of opinion ...including mine.

Pyramid schemes seem more credible.

-Peace

Comment by LilyBell*Murphy'sLawLuvsMe on October 30, 2011 at 9:57am
I agree that it needs to be fixed - totally - I was just saying I don't think relying on government funds is going to be enough.
Comment by Nachiketa Sanyal on October 30, 2011 at 12:17am
I can't imagine how difficult life must be for school kids suffering from alopecia.. call it a disease or condition it is surely an anomality and people who want it fixed (I;m sure that's an overwhelming majority of people with alopecia) should have the means and way to do it.
Surely if Governments around the world can spend trillions of dollars on wars/nuclear weapons, etc, they can allocate a few million dollars for alopecia research. I don' t think any excuse is good enough.
Comment by LilyBell*Murphy'sLawLuvsMe on October 29, 2011 at 5:46pm
Well acne is cosmetic and insurance pays (usually) for drugs to clear it up. I saw a story recently on TV about 3 young people with just terrible acne issues and it devestated their self esteem. Then there are people with just awful teeth - and yet if you do not have a special dental plan you can forget coverage to fix them. I guess teeth are deemed cosmetic. I guess my point is I still have no idea why insurance covers some things but not others when all are medical in nature. They will pay to treat the depression associated with hair loss but not for wigs. I am not sure that standing up would make more dollars be allocated to funding research for a cure - I still think most of those dollars will go to cure life threatening diseases and I personally think they should. I think the best bet for a cure will be from funding private research and from corporate greed in coming up with a drug that will treat the symptom. Drug companies have no incentive to cure hair loss - they need repeat clients in MHO.
Comment by Lindsay on October 29, 2011 at 4:33pm
Great article. I agree with many points he makes. And there is no research because it is not a sickness. There is no health risks. Same reason insurance won't cover wigs for people with alopecia. It's cosmetic. To someone who does not have this condition, they do not understand the emotional devastation and life altering effects it has on people. Would standing up really make "them" pay to research something they don't believe is important?

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2025   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service