We hope our story raises awareness about the devastating psychological and physical effects of alopecia, brings some comfort to others dealing with mental health issues and is a reminder to never question, assume, judge or comment on someone’s appearance.

“Sorry, I didn’t recognise you mate” – the unintentional and heartbreaking words that Leon has heard daily for quite some time now. Also a strong motivator that it was time to go public with this.

So, what did happen to Leon? Well, incase you were wondering in 2011 Leon lost a very small patch of hair on the back of his head. He quickly learnt he had alopecia, an incurable autoimmune disease affecting the growth production of the hair follicles. In the beginning it was nothing a good hairdresser couldn’t hide. But, little did we know this would be the start of an emotionally crippling experience for the two of us. To place it all into perspective, the process of coping with alopecia has been equated with the grieving process following bereavement. Full on right? I’m sure you would agree this sounds like a lot to deal with for an otherwise thriving 22 year old boy. Whilst on the outer it appeared to have only affected his physical features, alopecia was taking its toll mentally. This horrible condition is linked to several other health issues including post traumatic stress disorder and in Leon’s case, an incomprehensible and ongoing feeling of loss.

In 2014 the ordeal for the boy who won the “Best Hair” award in high school was about to get worse. A few more patches, big ones. Leon continued to suppress his emotions and hide his condition from everyone. I wasn’t even allowed to have a sneaky look and assess the damage! Hats, beanies and hoodies became his new best friends, nobody knew a thing. Anxiety picked up and although things were still bearable it was time to better understand treatment options. Cortisone injections worked like a charm to begin with and helped restore some confidence and happiness in Leon’s life. The anxiety remained. Looking back we now realised he should have received help at the onset. Thankfully he was virtually patch free for our wedding but soon after the treatment stopped working. After half a dozen topical creams, hundreds of dollars spent at dermatologists and painful injections it all got a bit too much, so we gave up and let nature take its course.

By mid 2016, 90% of Leon’s hair had fallen out and his new friends anxiety and depression had moved in (lucky we have a four bedroom house). Leon felt robbed and any hope that his identity would ever be restored was almost gone for good. His daily grind included shaving his head, drawing on his eyebrows and mustering up the courage just to leave the house. Despite serious anxiety and his deepest insecurities Leon never let me head out to social situations alone. Hand in hand we went and somehow he found the courage to make the effort to be social. Such bravery and strength that I will forever admire. A true husband and mate. Personally it’s not something I could commit to without my eyebrows… could you? I wish words were enough to reinstate how he felt about himself because it goes without saying – Leon is truly an amazing husband and father, an asset in my life with admirable strength and selflessness.

Recently our 6 year journey hit rock bottom. 2017 arrived and has proved to be equally the best and worst year we’ve ever had together. The birth of our beautiful daughter Aalia, but the loss of Leon’s identity entirely. I never thought I’d find myself to be so incredibly happy and so incredibly sad at the same time. Alopecia affected Leon physically, but emotionally I too carried the weight of his sadness. I was cooked, but imagine how he felt? Something I reminded myself of daily. When looking at old photos or walking past a hair salon began igniting emotions not even the best waterproof mascara could save, I knew it was time to get some help. Some days tears just wouldn’t stop and I realised I too was on the brink of a meltdown. Finally, after too long Leon is dealing with the grief that’s come from losing not only his hair but his identity, self esteem, confidence and frankly – his sanity. Once he is ok, I’ll be ok too.

Although Leon’s alopecia has had significant psychological consequences including extreme anxiety and depression he is determined to restore balance in his life. His condition has caused intense emotional suffering, immensely affecting his mental health which is now being rebuilt. With the help of a psychologist and one hell of a supportive wife (thrown in for good measure) I’m confident he will get there.

Jokes aside, it’s possible each of you reading this have had a familiar feeling of anxiety and/or depression. If not you, then a loved one. You are not alone. I hope you have the courage just like Leon to get the help you need to restore peace in your life. Your mental health is more important than you think (pun intended) so take the time to understand and embrace your emotions sooner rather than later.

Thanks for reading and your ongoing support (even if you have put your foot in it).

More available on INSTAGRAM Follow our journey @jess_tsigros