Hi! I am about to turn 35 years old and after doing some math, realized I have been dealing with AA for 15 years now. It started my freshman year of college - one morning I woke up and most of both my eyebrows had fallen out. I actually didn't really worry too much about it. As time went on, though, the hair on the right side of my head started to recede all along the hairline, along with the right eyebrow. The left side of my head was perfect! This went on for years. I visited doctors and dermatologists. I did everything from steroid injections to oral steroids to dritho cream to Rogaine. Sometimes things would work, but only for a short period. I was married in a small town so I wasn't put into situations very often where I was self-conscious about my hair.
A few years ago, my husband left me for another woman. I recently moved to the Chicagoland area and started a great new job and have a great boyfriend. I still battle the anxiety and depression the divorce caused, but all in all, things have been going great the past year or so. Except for the AA. Since spring, it has become the most aggressive it has ever been. It has moved to the left side as well, including the left eyebrow and even eyelashes now (first time ever). I do not think there is any of my original hairline left....kind of like a lake drying up. My anxiety and depression got worse and kept me from seeking help immediately. With the help of my psychiatrist and a new anxiety medicine, I was finally able to find a new dermatologist (that I am seeing today)and joined a new Alopecia support group. That support group is great and I look forward to our second meeting! They told me about this website, which is also awesome, as well as some places with really good, caring people to help with wigs and hairpieces. I actually have an appointment set already at one of those places! It seems that at the rate my hair is falling out, I will need something by Christmas. I was letting my fear of not knowing where to start cripple me. Now that I have some help and direction, I am feeling incredibly empowered!
I keep thinking my main issue is my physical appearance not being "normal". And while that is a normal reaction, I also do not place my value in how I look on the outside. I discovered the core issue is my lack of control. There is nothing that I can do to prevent losing all my hair. I can try all those things that worked short term in the past, but sometimes the side effects were awful (steroids = serious weight gain). I think what I need to focus on is the control I do still have - how I react to this. Courage and confidence are learned, and I am being schooled:-) So each milestone I reach that scared the crap outta me before will be even sweeter now. Right now it is little things - like putting what is left of my hair up in a pony tail when I went for my walk/jog last night. I realized I have been hiding something for 15 years, whether or not I needed to. And that it exhausting. I see a lot of people on here who finally took that step to shave the rest of their hair and maybe even go bald out in public....and they wish they hadn't waited so long. It's liberating for them. I can totally understand that, and am pretty sure I will get to that point. But everyone goes at their own pace and tries to do the best they can with the hand they are dealt.
Anyway, this was just a rant that doesn't require any responses. It's just nice being able to open up about things in a safe environment. The more I see on here, the less "odd" I feel. The more I see on here, the more brave I know I can become. The more I see on here, the more I realize that beauty (even outward beauty) lies in everyone, no matter what "imperfections" we have.
Thanks for everyone who posts on here.....

Views: 130

Comment by Mary Anne on October 2, 2013 at 3:47pm

Thanks, Rosy :-) My new derm seems super great - very kind and compassionate. She even referred me to a specialist who can discuss new treatments to see if I am interested. Depending on the side effects, we will see if they are for me. After my appt, I confided in my two bosses what was going on, and they were amazingly supportive and awesome about the whole thing. I think I am going to sleep well tonight :-)

Comment by Kteacher on October 4, 2013 at 11:04pm
Nice to meet you Mary Ann. :). We are around the same age, and I have a lot of your same feelings. Not sure why, but I always like to identify with people on here who are the same.
Comment by Mary Anne on October 7, 2013 at 1:23pm

Hi! I totally agree. I just recently joined a support group and this site, and the help they have provided has been amazing! The more I read and the more people I see dealing with the same issues makes me feel less alone. I haven't felt this good in years :-)
Where are you located? I am in the Chicagoland area. Moved up here last year from a small town in Indiana. Was a very good decision :-)
Hope you are having a great Monday.....even though it IS a Monday....!

Comment by Kteacher on October 7, 2013 at 1:48pm

I live in IL too, Champaign. I'd love to join a group, but I don't think there are any around me.

Comment by amym on October 7, 2013 at 3:33pm

Although not in Champaign and not terribly close, Kteacher, there is a group in Peoria (I know it is about 1 1/2 hours from you. go to www.naaf.org and click on support and there will be a list of the groups to find that contact information.

Keep checking on NAAF for other groups that open up in your area, or, better yet, open one up yourself through NAAF. The NAAF will give you support for your group. I've found the hardest part of organizing a support group was just finding a place to meet. In a college town you should be able to find a meeting spot! I know it is a scary prospect, but well worth it.

Comment by amym on October 7, 2013 at 3:33pm

Mary Anne- you rock!

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