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Venting
Hi everyone, if feels so weird typing right now but, I just wanted to vent about my condition. I have alopecia universalis and I HATE having this condition. I know that may be typical of everyone else that has this condition but, again, I'm venting. I've had alopecia since I was about 21/22. It has been a devastating journey. I've told myself a thousand times It doesn't matter if you have hair or not you are still beautiful and then other times I walk past myself in the mirror and I can't get over the feeling of disgust. I feel like alopecia is a demon that I am fighting. It makes me sad, mad, angry, depressed, anxious, nauseous.....I have a great support system around me as far as my family and my boyfriend but I just get so scared of the what ifs...what if I ever want to have kids and my babies are cursed with this. what if I wake up one day beside my boyfriend and I don't have my eyebrows painted on and he's disgusted by how I look. I think in all honesty I'm afraid of being judged. I'm afraid of rejection. I'm afraid that everyone that I know and love will somehow just up and stop loving me. I'm afraid of the unknown..I want to be happy but I feel like this disease has just taken over my life.
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Comment by JeffreySF on January 25, 2016 at 9:26pm
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Vent away! You're in the right spot for that.
It's okay to have all the feelings you're going through! It's normal!
If you haven't done so, consider going to a NAAF Conference and or local support group.
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Comment by Cue Ball of Steel on February 1, 2016 at 6:29pm
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I 100% feel your struggle.
Some days I get really angry about it as well, especially when hanging around people while they get the hair done and look all nice with their cooperative follicles.
Over the years I've kind of learned to just roll with it. If people have an issue with your lack of hair, bye felicia.
Of course I get that this is easier said than done. It's always a topic that kind of nags at your mind. But it really is possible to kind of decrease the level at which it bothers you.
Best of luck :)
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Comment by Sharalexis on February 14, 2016 at 2:18am
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unless u are a high end fashion model or an NBA player most everyone hates having alopecia, I started in 1985.
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you are beautiful just the way you are
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