We need a young female friend with alopecia for our daughter Allison,6

Hi all, We are looking for a friend with alopecia for our daughter who is six years old and going into first grade. We live in Plantation, FL and have only met a few people with alopecia. I want my daughter to have a friend she can share her strength and weaknesses with, a child that will understand and hopefully be friends with for life. We all know how difficult it is to have alopecia and in our daughters case, Universalis. I try to be everything for her but I know she needs someone her age that she can relate to. I realize this is a far stretch but anyone in our area with a young child please message me so we can plan a playdate or something. Thank you for the time you took to read this, hope to hear from someone soon. Thanks again, Allies mom xo

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Comment by tracieB on July 13, 2015 at 10:57pm

My daughter is 6 also,  maybe they can be Skype friends?  My daughter also knows no one her age.  We are in Chicago.

Comment by Melissa Brunner on July 14, 2015 at 9:36am

Hi Tracie, Thanks so much for the reply. Skype friends sounds awesome :) I am so excited! I am going to tell Allie, my daughter about you guys tonight. My email is miamimel78@yahoo.com

Thanks again, looking forward to meeting you both online. I've never skyped before so bare with us. I am going to look into how to get connected. What is your email?

Best.

Melissa

Comment by Lori-akaMimi on July 14, 2015 at 11:45am

My granddaughter will be 7 at the end of next month. She has been AU for almost a year. Skype friends would be great! TracieB & Melissa: send me a message to get my email address, if you'd like!

Comment by tracieB on July 14, 2015 at 5:11pm

mine is traciebirken@aol.com

Comment by Jennifer on July 17, 2015 at 7:55am
My daughter will be 7 in August and we live in Boca. She has AA - with spots now. It was bad for about two years then fine and now we have spots again
Let me know if you are interested
However it would be great to have a friend as we don't know what our Alopecia future holds.
Comment by wclawvs on July 17, 2015 at 12:42pm

Hi Melissa,

Let me know if you want to Facetime (or Skype, though we have never done this). We are in PA and are Facebook friends. Madison would love to "meet" Allie. Madison lost all her hair too and is starting kindergarten in the fall. It is so difficult to be their everything, but I'm trying too. Did you see the video Kiah and Kaylee did for the NAAF conference. It is amazing look up Alopecia Girls 2015 on YouTube, we watch it over and over. We couldn't attend the conference, but I'm hoping we can next year when it is on the east coast.

Comment by Melissa Brunner on July 17, 2015 at 12:56pm

Thank you so very much Lori-akaMimi, tracieB, Jennifer, and vclawvs! This is awesome and we want to chat with all of you guys. I wonder if there is a conference type Skype that we can all do together...

vclawvs, I am going to watch that utube with Allie tonight! Thank you all so very much for your kind words and support! When shall we set up our first call?? Allies mom, Mel B.

Comment by wclawvs on July 17, 2015 at 1:35pm

We can set it up as soon as you would like to.This is the link to the video. We play it over and over.

https://youtu.be/3uEPXvtc4Fs

Comment by Fuzzless on July 23, 2015 at 3:07pm

Hi,

Wondering if you are aware of the Children's Alopecia Project: http://childrensalopeciaproject.org/

They have events for children in all different parts of the country.  Check out the calendar.
Hope there is something in your area...

Comment by Lo on July 31, 2015 at 2:32pm

Melissa - I just wanted to tell you how amazing I think you (and your daughter) are.  I am a mother of an 8 year old, and cannot imagine the journey you are going through (as well as Allison).  I have scarring (permanent) alopecia, and always feel blessed in one way - that I have it, and my child doesn't.  But I have to share this... a woman in my small group at church has a niece who got diagnosed with alopecia when she was 8.  She is now 19, and in college.  She told me the other night that her niece is by far the most confident, strong, brilliant young woman she knows.  This "fight" has turned her into something her mom and family are over the moon proud of.  Allison will be the same... I will pray for her, and for you.  Sometimes the difficulties we are presented with only land us in a much better place months/years later.  All the best to you, and Allison.

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