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Comment by Cindie on May 13, 2013 at 10:10am

I am not sure, Dena, that I agree that people ask questions "because they are concerned"....I lean toward what Michelle says about "curious inappropriate comments".....at least that has been my experience.  Truthfully, most people don't want to be "educated".....they want to believe what they want to believe, and in the back of their minds, they are saying, "thank God it isn't me..."

Comment by Cindie on May 13, 2013 at 10:08am

This is horrible....for a young child to go through......if she explains to them what Alopecia is, she should make sure to tell them that YOU CANNOT CATCH IT FROM ME, BECAUSE IT IS NOT CONTAGIOUS.  A lot of people mistakenly believe that, which only adds to the hurt and isolation a young child can feel. 

Comment by Dena on May 13, 2013 at 2:16am

I agree have her tell them she has Alopecia. Most people automatically assume cancer because they have never heard of Alopecia. Very few people know what Alopecia is. Remind you granddaughter that people are going to ask questions, because they are concerned for her. It use to really bother my daughter, but once I said this to her it helped. She really didn't like people thinking she was sick, but when she thought of it from the perspective that people care she felt better. Of course we still have days when we would just like to blend in and not share medical histories with complete strangers.

Comment by michelle on May 12, 2013 at 9:16pm

Curious inappropriate comments seems to come along with this disease.  As a grown adult with AU for only a short time. I struggle with the stares and comments.  I can only imagine what its like for a young person.  There are several groups for young people on this site.  You may want to check this out.

For me I am fine with educating my friends and family about au.....I don't feel obligated what so ever to a stranger  (with good intentions or not) who has no business in my business.

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