Alopecia World
www.alopeciaworld.com
Why?
Note: This is a theoretic piece of writing. Meaning the feelings were once mine....But seems they are now someone elses.
//////////////////////////////////////////////////////////////////////////
Why?
Why is hair such a big part of society?
Isn't it just fur?
It feels silky, it feels nice to touch it right?
What about when someone loses their hair....
Is it funny to hurt them?
Is it right to ridicule them?
Or make assumptions?
That teenage girl you see looking whimsically at the books with a smile on her face. She has no hair and eyebrows.
You see her hug her mother who has hair. What is your first assumption?
Do you walk up and ask them if they have cancer?
Do you wait until the girl is alone before confronting her?
Do you mistake it for cancer?
Is it even any of your business?
Who are you to intrude on someone's life?
Why do you ask her?
That woman you see with a scarf around her head holding her daughter's hand as they cross the street...Do you ask her if she has luekemia?
That girl in the mall laughing with her family, you walked up to the mother and asked if her daughter had leukemia...You stopped them in the middle of the Mall...
What made it your business? Is it because of your religion? Or your curiosity?
It's none of your business.
It's not your right...
No matter the reason.
It's not.
Why?
Why do you ridicule us?
Why is it so important to blend in?
That person who used your precious base and didn't add hair and just changed the clothing to it. You ridiculed her and bullied her.
Only to be told it was a portrait a friend had done so to speak of her real face. You were looking at a condition...And yet you treated her like she was garbage.
It took her friends to get you to leave her alone.
She sits and cries as her supposed 'Best Friend Forever' berates her, tells her she's gay, that she's stupid, that she's ugly because of her condition.
A condition born of her blood....It's not cancer.
It's not cancer.
It's not melanoma.
It's not Leukemia.
It's not terminal.
It's an immune disorder.
It's not an STD.
It's not caused by Drugs.
It's not caused by anything we know of.
It's called Alopecia Areata.
It's called Alopecia Universallis.
Totalis.
It's caused by our immune systems...
It's not a disease.
It's not making us sick.
We're not sick.
We're not your pawns.
You who took the wig of her classmate and laughed and teased her about it in the lunchroom. You go and apologize to her.
You who took the student's hat and played a cruel game with her mocking her as she tries to hide her patches and refusing to apologize. Your absolutely pathetic.
You who wrote Alopecia as the butt of a joke on VEEP I hope you enjoyed it for a few minutes before the reality set in....
You who makes fun of it on a comic. You are pathetic.
You all are.
You who stood by your friend's side don't be shocked when she hugs you tight.
You who raised him to be a strong young man be proud that you held his hands and guided him to his strength.
You who met that girl online and didn't know what she looked like until a photo popped up on her DeviantART...You are great for not being effected or asking questions that would only cause pain.
The friends who roleplay with and talk to the girl with no hair she loves you guys for letting her feel like she can be herself.
To the people who hide behind wigs I don't understand why it seems like hair has to be acceptable.
It doesn't have to be.
Why?
//////////
Leave your answers to these questions if you can think some up...My name is Storm...
And I have Alopecia Areata.
And I face the dreaded cancer question a lot...And I have to wonder why does everyone assume it?
Why do they feel it's their right to ask? To intrude on your life?
Do they think they're so intelligent?
Because they aren't....
This is going to be posted on my DeviantART account too....
Wish me luck guys...I have a feeling some people on there who hate me are gonna love to use this against me...
-
Comment by LilyBell*Murphy'sLawLuvsMe on June 9, 2012 at 9:19pm
-
This is very well written and a very honest piece.
-
Comment by Storm_Uchiha on June 9, 2012 at 9:22pm
-
Thank you Lilybell...I showed it to my folks...My mom started crying.
-
Comment by Justin Dawson on June 9, 2012 at 10:29pm
-
"It's none of your business."
"It's not your right..."
That's completely true! I can't even count how many times I've been asked if I have cancer. :/ Or they ask if I'm taking Kemo.
-
-
It's just crazy I mean god..What gives them the right...Right?
-
Comment by You can do it : ) on June 9, 2012 at 11:56pm
-
wow, this is amazingly expressed. Some people in the world are born obnoxious and bullys or sometimes are just insecure and there is not way to stop their comments, looks or actions.
-
Comment by RonaldStone on June 10, 2012 at 3:10am
-
"Life of man upon earth is a warfare"JOB literally, mentally, physically and metaphorically
-
Comment by lynne on June 10, 2012 at 5:37pm
-
It angers me that anyone feels they have the right to ask anyone why they have no hair. i could never ever ask anyway why the have a wig on, or why they are wearing a head scarf. Pisses me right off it does! I am in the process of going through alopecia for the 2nd time in 3yrs and after getting my full head of hair back for about 8months its coming out again. I got a new wig but wore it once as i feel i am hiding behind it and it is making not wnat to talk about it with anyone or letting anyone know. I want to be who i am and that means with or without hair, it will take me a long time to do this but i am trying my best for now n taking it day by day. It is no one's bloody business and i hate that people think im so brave and strong when i actually have no choice but to try deal with this. People judge others too quickly these days and it doesnt help that there isnt enough information for people who just dont understand. I still have friends who i havent sn for a while asking if they have ever found out why my hair fell out and cant inderstand why it would just fall out. OMG if it baffles them then it certainly annoys me as i dont even know or understand. sorry for the rant there. :)
-
Comment by sharon on June 11, 2012 at 8:15am
-
yes the same here,sorry its AA im told,have a nice day and il see you in a year. because they have no anwsers to give. and so true storm. im trying to manage after 5mths,its hard but i just keep hoping,and i keep going,and i try and think positive.x
-
Comment by alamogirl/ aka Judy on June 11, 2012 at 7:55pm
-
Well done, Storm. Every one of us has asked one or many of these questions. The wig thing affects us all differently, though I do understand your feelings. I wear mine to show my friends that I can really rock these looks....I have 4 wigs and all are different. My bald head just gets so cold. Your piece is poetry. I would love to see it published. You are a wordsmith and I am sure a true beauty! Hugs.
-
-
Thank you everyone...I do hope to get it published one day this is the thing I wrote that I will continue to be proud of...
© 2024 Created by Alopecia World.
Powered by
You need to be a member of Alopecia World to add comments!
Join Alopecia World