I know im not the one that has the alopecia, as its my little girl, but through out the whole process here in new zealand it seems like not one doctor can give you any real answer to what is causing it, its all just really guessing .of course there's all the steroid creams and things from overseas but its seems from what you read its a below 10% success rate.early on i made a connection between my daughter's asthma problems an medications she was on and alopecia ,but was shot down very heavily by the doctors .even looked at diets but where do you start, the one thing i am thankful for is the support from family and friends as well as this site, just seeing pictures of people with alopecia smiling an happy living their lives, birthday partys traveling getting married , makes me remember that even though its hard to get answers why , and when my lil girl asks me why her hair is gone i dont have the answers , i know that she will get through this step and live a fulling life.
Peace love and happiness to everyone xoxxo. Haley ( father of vera)

Views: 107

Comment by Magdalene on July 10, 2014 at 3:02am

Just be there for her, do the stuff that she likes to do with you. If she wants to wear wigs, help her get them, if she doesn´t encourage her with that decision too.  Get her the most beautiful, soft scarves that she can use if and when she doesn´t wear a wig. Encourage her to do sports and be social, and when she´s sad, tell her how Beautiful she is and DON`T say "even without hair". Ánd never, never compare with how she looked Before Alopecia. Your daughter will always have alopecia; for some, the hair grows back without any relapses, or just minor ones, others lose their hair for an undefined future.  

I got my first bald spots at age 13, and relapsed a couple of years later and lost all of my hair at age 17, which, in  a way was a relief. My parents didn´t support me, my siblings could not understand it and since I live in small Place, there wasn´t anyone who could have helped me. For the World around me; doctors, teachers, family, Alopecia was a Medical and cosmetic condition that should be treated with cortisone and wigs. The first five or so years with alopecia were the worst of my Life. I felt ugly, with or without covering my head, and when I was sad, people had solutions, not Comfort, for me the only solution was hiding and isolation. I moved away, got to know people who didn´t compare me to my past self and started to accept me the way I am. 

I´m 34 now, I´ve been bald more than half of my Life. I cover my head with scarves when I work at the hospital and outside to avoid sunburn, on other times I go bald. Seven years ago I met a person, who never says "despite your baldness", he just Thinks I´m beatiful as I am. We´ve been married for five years now. He doesn´t search for cures, he doesn´t try to understand, he just Comforts me when I´m sad, wwhatever the reason.. Alopecia makes me look different, has of course  changed my Life, but it doesn´t make me different from other people, it´s just a part of my physical appearance, just like my blue Eyes and crooked teeth,and big, but Beautiful feet.

So take care of your daughter. Respect her decisions, no matter how old she is, don´t over analyze her (one can be sad of other reasons too than alopecia).

Lots of love from the other side of the World.

Comment by father of a girl with alopecia on July 24, 2014 at 10:39pm

hey thank you guys,everyday i am finding it easier to get used to the fact she has it,

she is still the same kid she always was,but i guess its the fact that shes sick quite often with asthma and other things that the whole lot is just a horrible mix.

it is getting easier day by day

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