Comment

Comment by Tatiana on October 19, 2021 at 9:42pm

I had alopecia totalis for the past 8 years. Yesterday I filled out some form on-line to participate in trials and today I received a massage that they were interested to accept me.

OMG. I am so confused also. Not sure what to do. It's on Sunday 1,5 hours away from my home.

Comment by TurboK on February 28, 2021 at 4:23am

I would do it in a heartbeat. I am sick of having to wear ball caps or wigs all the time.
I am working from home full-time now, so I have minimal contact with anyone other than my animals. It was temporary, but I live in WI where the governor wants us all on house arrest for the foreseeable future. Besides, the company sold the building just after the initial lockdowns.
I am currently on LDN and am following a Paleo Diet. I have had some growth, but nothing to write home about.

Comment by Melissa 74 on February 27, 2021 at 10:31pm

I'd do it.  I was diagnosed with alopecia areata when I was 12. That's 6th grade.  I was very patchy the next few years. Went to go to a wig when I was 16.  When I was pregnant with my daughter at 29 I lost all my hair. It literally started at my eye browns and worked its way down my body.  Now at 45 I have one small strip of hair on my left leg and and that's it.  I've been living with it for 33 years. I don't even care anymore. Honestly the thought of having hair to shave and maintain sounds dreadful.  The last treatment I had was in the early 90's where I was getting 132 cortisone injections in my head once a month for 4 months.   The next treatment they wanted to try was some cream that would burn my scalp. I was like um done. Tapping out, don't care no thanks.   I've never really researched it um my adult life but I would probably do something it helped find a cure or successful treatment for someone else.   

Comment by Smug on February 16, 2021 at 2:08pm

Yes I would. Unfortunately I am in a country with no such studies carried out.

Comment by Sarah Reade, MD on February 14, 2021 at 1:29pm

I would love to take part in a clinical trial. As a physician I participated as a clinical investigator. I would need the pharmacologic details first.

Comment by sian on February 14, 2021 at 8:19am

Yes I would try anything to get my hair back

Comment by CMC315 on February 14, 2021 at 1:27am

I absolutely would. In a heartbeat. This has been absolutely devastating to me and if I had the chance to maybe have my beautiful hair back again, I’d jump at the chance!

Comment by SabineTawni on February 8, 2021 at 2:16pm

Due to my age (72), I don't even bother to look into participation in any of these studies.  No one wants you at this age.  They use the excuse that they are worried about the unknown effects of these drugs on older people.  I say, at age 72, I am d*mn well old enough to know what risks I wish to take and not wish to take with my health! 

Comment by Alopecia and the Cure on February 1, 2021 at 4:44pm

 We also created a cookbook entitled " The Healing Couple, recipes for Wellness" Janis and Jonathan Card. These meals are specifically designed to eliminate inflammation that causes a positive autoimmune response. Please Let us know if we can help Alopeciaandthecure@gmaIL.com. Janis and Jonathan.

Comment by Alopecia and the Cure on February 1, 2021 at 4:38pm

H has such a good point. We tried every option as well, finally we began to try alternative options.

 I was absolutely in the same position with my daughter at the age of 12. She progressed to Alopecia Totalis and I was at a loss. After many years of research, I began a natural path with her recovery and she has regained all her hair.  She has been Alopecia Free for 10 years. My information will help you. 

My Book is on Amazon.com   Alopecia and the Cure Janis and Jonathan Card. I hope this helps! 

• ‹ Previous
• 1
• 2
• 3
• …
• 5
• Next ›
• Page