Would you do an Alopecia medication study?

I signed up to participate in an alopecia study I thought why not what could it hurt ? I’ve already lost all my hair so there’s nothing to worry about there . But then I think what if my hair grows back? Then I think if it doesn’t help me maybe it will help someone else someone young.Alopecia is devastating for me as an adult I can’t imagine having it as a child or a teenager.But now I’m kind of having second thoughts. I’m kind of worried about the medication I’d be putting into my body .They say there are no bad side affects but who really knows. Would you do it if you had the chance? 

Views: 2024

Comment by tim s. on January 27, 2021 at 9:51pm

I would be interested. 

Comment by Chi_Loss on January 27, 2021 at 9:54pm

i did one and had 95% regrowth. I think its worth it...

Comment by H on January 27, 2021 at 9:57pm

I've been in the Pfizer drug study for two and a half years. I enrolled when it was phase 2B and now I'm in phase 3. The drug is expected to come to market in the next couple of years, it doesn't have a name yet.

When I started the study I was totalis "severe", I had some hair maybe 10% of my head and it came and went. I have had full regrowth, and no side effects. Feel free to ask me anything!

Comment by Badass_bald on January 27, 2021 at 9:57pm

I would 

Comment by Shannon Hyden on January 27, 2021 at 10:00pm

I’ve been 100% hairless for over 20 years so why not. I’ve never even thought about looking into trials or would even know where to start. 

Comment by tim s. on January 27, 2021 at 10:02pm

How do you sign up ?

Comment by Chi_Loss on January 27, 2021 at 10:07pm

Go to https://www.clinicaltrials.gov

Search for a trial for alopecia near you...i was 'totalis' as well and have suffered for around 20 years.

Comment by H on January 27, 2021 at 10:13pm

You can also find trials here

https://www.naaf.org/research/clinical-trials

Comment by Spuddy on January 27, 2021 at 10:15pm

Hello, I would be interested 

Comment by H on January 27, 2021 at 10:22pm

One thing to consider is that the drugs are immunosuppressant which could be a concern for anyone who is exposed to covid regularly. You are also not allowed to be pregnant while taking this drug. All that said I would do it again. Basically zero side effects for me, I had some mild GI upset while starting the drug but it was very mild and hasn't occurred since. Beyond that I was told there is a slightly increased risk of blood cancers from taking this drug.

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