Would you do an Alopecia medication study?

I signed up to participate in an alopecia study I thought why not what could it hurt ? I’ve already lost all my hair so there’s nothing to worry about there . But then I think what if my hair grows back? Then I think if it doesn’t help me maybe it will help someone else someone young.Alopecia is devastating for me as an adult I can’t imagine having it as a child or a teenager.But now I’m kind of having second thoughts. I’m kind of worried about the medication I’d be putting into my body .They say there are no bad side affects but who really knows. Would you do it if you had the chance? 

Views: 2051

Comment by jennie hunt on January 28, 2021 at 4:04pm

Of course I would.

Comment by Spuddy on January 28, 2021 at 4:51pm

Yew haw Image.jpeg sweet ..sweetie 

Comment by Christine on January 29, 2021 at 1:32am

Jade, I agree with you. My Alopecia is extensive, no hair on head, unless you count the depigmented hairs I’m having to buzz off, no eye brows, and lashes that come and go. I have a couple of hairs on my legs...that being said I’d love to have real regrowth but not at the expense of my health. Unless this is a different type of drug, that is not just aimed at suppressing the immune system, I would pass. My hope is one day they will develop something that targets the root cause. I just couldn’t justify putting something in my body that could potentially cause harm. Not to mention to keep the regrowth you would have to stay on it. No thanks.

Comment by Veronica (Renata) on January 30, 2021 at 10:54am

so why is no-one telling us about the study, everyone has responded to agree to be in this study.

Where are the guidelines?

Comment by Jim In Cali on January 30, 2021 at 11:42am

I would do it in a heart beat. I believe its in phase 2 or 3, so its already deemed safe enough for further investigation. I used Gengraf for awhile, did not work. Definitely had to eat before taking or i would feel nauseous

Comment by Alopecia and the Cure on February 1, 2021 at 4:38pm

H has such a good point. We tried every option as well, finally we began to try alternative options.

 I was absolutely in the same position with my daughter at the age of 12. She progressed to Alopecia Totalis and I was at a loss. After many years of research, I began a natural path with her recovery and she has regained all her hair.  She has been Alopecia Free for 10 years. My information will help you. 

My Book is on Amazon.com   Alopecia and the Cure Janis and Jonathan Card. I hope this helps! 

Comment by Alopecia and the Cure on February 1, 2021 at 4:44pm

 We also created a cookbook entitled " The Healing Couple, recipes for Wellness" Janis and Jonathan Card. These meals are specifically designed to eliminate inflammation that causes a positive autoimmune response. Please Let us know if we can help Alopeciaandthecure@gmaIL.com. Janis and Jonathan.

Comment by SabineTawni on February 8, 2021 at 2:16pm

Due to my age (72), I don't even bother to look into participation in any of these studies.  No one wants you at this age.  They use the excuse that they are worried about the unknown effects of these drugs on older people.  I say, at age 72, I am d*mn well old enough to know what risks I wish to take and not wish to take with my health! 

Comment by CMC315 on February 14, 2021 at 1:27am

I absolutely would. In a heartbeat. This has been absolutely devastating to me and if I had the chance to maybe have my beautiful hair back again, I’d jump at the chance!

Comment by sian on February 14, 2021 at 8:19am

Yes I would try anything to get my hair back

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