Xeljanz XR

Today is my first day to try Xeljanz XR. I will try and blog about my experiences to hopefully help others. About me, I'm mid 30's married with a young child. Lost my hair all over (Universalis) twice in my lifetime, this being the second. The first was when I was 11 years old. Miraculously it all grew back after 3 years of no hair except my arms and most of my legs which I did not complain about one bit. I was pretty much alopecia free for over 20 years and NEVER thought it would happen again. Well, it did about a year and a half ago and it hit me like a mack truck. I put on so much weight from depression and not knowing how to work out without hair. But I'm back, I decided I wasn't going to let it rule my life and I'm taking it back. I've been working out and losing the weight I had so quickly put on. I have researched Xeljanz and finally got a hold of some today. I am worried about the side effects and worried that it may not work but I am going to see it through for at least 6 months and/or until my supply comes to an end. I will not give up on having my hair back. I love my hair and miss it so much. I must say I enjoyed my hair throughly while I did have it as I truly appreciated having it. So, I just took my first dose. So far, so good...wish me luck:)

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Comment by loriann on February 15, 2017 at 6:34pm
So happy to hear that ...really wish I could get my hands on this medication so happy your pain is better and your hair is coming back pls keep us posted
Comment by TexasGirl on February 14, 2017 at 8:00pm

Ok, so I finished my first month of the Xeljanz and I must say I love this medication!! My pain in my neck and shoulder and hands are GONE! I never knew how much pain I was in until it was gone! I am also seeing lots of little white hairs all over my scalp. I can not stop rubbing my head b/c it feels so cool. So, I think these little white hairs are growing...just VERY slowly. I feel like I'm staring in the mirror for so long and trying to catch the light to see them. So, I finsihed my Xeljanz on Saturday and today is Tuesday and I have not received my new pills. I am getting nervous about it but I am trying to be patient. I should get it on Friday so it'll only be a few days without it. I have not had the pain return so I am hoping all is good. I will keep you posted.

Comment by Pamela Rosse on January 30, 2017 at 6:56pm
Thank you. Please keep us informed. Yournin my prayers & Im keeping my fingers & toes crossed as well your blood work comes out great.
Comment by TexasGirl on January 29, 2017 at 7:42am

I wish you success as well. I just woke up this morning thinking about how much better I feel. Almost no pain! It's been 2 weeks and no side effects. I am getting my blood work done on Monday to make sure no issues there and hoping it is the case b/c I really like this medication. However, I have NO hair regrowth yet. But I hear its a little too early to tell. I'll keep everyone posted as I go along and please do the same:)

Comment by Pamela Rosse on January 28, 2017 at 5:36pm
TexasGirl, thank you for sharing. I have AU, 7years now. I was diagnosed it'd RA last spring. My Rheumatologist is repeating the blood work & if numbers are the same, he's starting me on medication. I'm going to ask him about the Xeljanz. It seems to as the old icky saying goes, kills two birds with one stone. The pain this winter with the cold & rain has been awful, I totally understand the Tylenol. Thank you, thank you, thank you again for posting this. I wish you well & success.
Comment by loriann on January 24, 2017 at 6:04pm
Wish I could get the meds
Comment by TexasGirl on January 24, 2017 at 5:07pm

Oh thank you for that!! I am at a week and a half and nothing. I was just thinking that maybe I should try some of the anthralin/dritho-cream to stir up some hair follicles:) I will say the pain I was having due to RA has amazingly subsided. Not completely but it's so much better I am not constantly riding around in my car with the seat heater on nor popping tylenol like I was to just get by.

Comment by RileyR on January 24, 2017 at 2:47pm

Keep the faith, It took about 60 days before I had any hairs sprout with Xeljanz.  

Comment by loriann on January 21, 2017 at 2:34pm
Yes pls do
Comment by TexasGirl on January 21, 2017 at 1:32pm

It's now been exactly one week and no side effects...well maybe a slight headache. No other issues. My arthritic pain in my hand neck and shoulders is so much better. Not gone but I've not taking anything this week to reduce the pain....just a little heat. I got this medicine because of my RA and hoping that it helps turn the alopecia autoimmune response off. I have not seen any growth at all but it's only one week. I'm trying to be patient and not get my hopes up too much but really crossing my fingers. I'll keep you posted.

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