Comment by TexasGirl on February 14, 2017 at 8:00pm

Ok, so I finished my first month of the Xeljanz and I must say I love this medication!! My pain in my neck and shoulder and hands are GONE! I never knew how much pain I was in until it was gone! I am also seeing lots of little white hairs all over my scalp. I can not stop rubbing my head b/c it feels so cool. So, I think these little white hairs are growing...just VERY slowly. I feel like I'm staring in the mirror for so long and trying to catch the light to see them. So, I finsihed my Xeljanz on Saturday and today is Tuesday and I have not received my new pills. I am getting nervous about it but I am trying to be patient. I should get it on Friday so it'll only be a few days without it. I have not had the pain return so I am hoping all is good. I will keep you posted.

Comment by loriann on February 15, 2017 at 6:34pm

So happy to hear that ...really wish I could get my hands on this medication so happy your pain is better and your hair is coming back pls keep us posted

Comment by TexasGirl on February 16, 2017 at 7:48am

I'll be seeing the doctor tomorrow and hopefully getting my pills. I hope it hasn't been too long without it. I will keep you updated. I still have the little tiny blonde hairs but they aren't everywhere and some are slightly longer in some areas over others. I may just be reading too much into it but this is the most hopeful I have been since this all started.

Comment by TexasGirl on February 27, 2017 at 7:02pm

Just a quick update. I see lots of little white hairs and some have turned dark (maybe a quarter of an inch and fine). They are not everywhere (maybe 50 percent of scalp) , mainly on top of my head. It feels fuzzy but not like I was hoping. It's now been about a month and a half on the medication. No side effects (maybe a headache here and there), blood work good. I have fuzz all over my face but no substantial hair like I had before (ie I used to wax my upper lip and chin and there is no need for that yet.) No eyebrow, eye lashes, hair under my arms, on my arms, or legs which I was kind of hoping to have by now. I wonder if other people have experienced the head hair without the rest of the body hair. I know it's only been a month and a half but I'm getting impatient. I do hold hope because most people don't see anything for the first 3 months and I was seeing little hairs at the 2.5 week mark. Oh and my pain is still gone...almost forgot all about it:) I'll keep you posted.

Comment by loriann on February 27, 2017 at 9:06pm

Keep the faith you will see more hair .... still looking to get meds hoping for a trail study only way I can get meds ... if anyone knows of any study's pls let me know

Thank you

Comment by TexasGirl on April 4, 2017 at 12:19am

So I am 2.5 months into the Xeljanz XR and I am seeing lots of hairs all over my scalp. Some are longer and darker and some look they are the peach fuzz just starting. There are still smooth spots on my scalp so as much as I would love to say my whole head is growing, it's not. I would say maybe a little over 50%. My eyebrows and eye lashes are not showing any signs yet. I have super long hairs on my face which I had never had before even before Alopecia. I have a bunch of pimples on my scalp which is super strange b/c I've never had that as an issue. A side effect I have noticed is an occasional headache here and there. I take the meds at night so I can fall asleep and not worry about a headache. I can not stop touching my head and wishing and hoping that it will grow back but this is super slow going. My RA pain is slightly back, not like before but just here and there so my doctor recommended adding the methotrexate. Not sure what to do as one of the side effects is hair loss but I might try it. Anyone use both? My doctor thinks it might enhance the effects.

Comment by TexasGirl on April 23, 2017 at 8:44pm

Ok I've been on xeljanz 11mg for 3 months now and two weeks ago started methotrexate 2 pills versus the 6 weekly. I have 2 inch dark hairs covering about half of my head. The problem is that I don't feel like it's lasting hair. It's sparse and very fine and I don't feel like it's really growing. My head still looks very bald with some little black hairs. I'm getting a little deflated on this drug but going to stick it out as long as possible. Btw no side effects except slight headaches at night and a little light headedness but nothing that's bothersome. All my blood work is coming back normal. Does anyone know how long it takes? When should I just give up? Should I add anything like rogaine? Not sure what to do this was my last hope. Thanks!

Comment by TexasGirl on April 23, 2017 at 8:45pm

Oh and no RA pain and feeling great about my RA.

Comment by loriann on April 23, 2017 at 10:29pm

Don't give up yet give it at least a year everyone is different ...are you getting any hair on your legs ..eyebrows..underarms?

Comment by TexasGirl on April 24, 2017 at 10:04am

Only hair on my face and long ones that I never had before but at least they're blonde. Nothing on arms, legs, eye brows or lashes. I do have some hair coming in down there but sparse (kind of like my head). I have just a few extra hairs under my arms (like 3 extra). Still not needing to shave or wax. I will do some blading for my face to get rid of the long excessive hairs on my face at my next facial visit. That's it. Trying my hardest not to get discouraged:)

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