Good luck with it all..I am always here if you need anything..Have you joined CAP yet?

Hi Saida,
Yes, Samantha is still using the squaric acid. She has been using it for 2 yrs now and has regrown her all, but in two spots so far. The doctor is not giving us a time line to stop and her eyebrows are growing now too. Samantha started this treatment just as her 6th birthday was approaching. Today is her b-day it all brings back tears to my eyes. It is definitely worth looking into if you have it in the back of your mind. Tell me what your thinking? Cindy

I wish you luck on your daughter's treatment. We tried Dr. Gonen's treatment but it did not help and now we are trying a different route. I am glad to hear your daughter is responding to his treatment!

Hi Saida...thank you for the friend request. If you have any questions on my daughter's treatment, please ask away! My daughter is doing the same treatment as Cindy's daughter and so far she is tolerating it well. We just started the treatment this month and our doctor is very knowledgeable on this treatment, as he teaches other doctors how to do this.

hello saida

did you decide to have second part of Hair Up? I started the treatment today . I hope it will work for all of us

I hope you find some answers for your daughter soon. She is beautiful no matter what. I am glad you signed up for CAP...Cindy

Hi Saida, did you find another derm yet?

Hi Saida, how is DR Gonens treatment going?Is there any progress?

Hi Saida, you never can bug me..I think you are smart to take your daughter to another doctor. I took Samantha to 3 until we found a doctor that would be more aggressive to try something. I am sorry the doctor made you feel sad, but don't let him get to you. As far as the black spots you are referring to, Samantha did not have that. It could be hair growing in that has turned color or broken hair. I am really not sure. Keep an eye it. When hair grows it is white fuzz that turns color. Sam's hair did not grow in by her color. Did you ever contact Childrens Alopecia Project? It sounds like you can use some local support if they have another families in your area in their data base. I am also going to be helping Betsy with a giving CAP kids pen pals. If you would like to have a pen pal for your daughter get in touch with Betsy. We will be working on it this week, but she can have one at anytime. Her email is betsywoytovich@yahoo.com.
I want you to also know that you are not the first person to get sucked into buying something on the internet. I have done it along with many others. We will do anything for our kids. Keep trying because you never know. Have a good Sunday!

Hi Saida, Happy New Year! Thanks for dropping by..Sam is doing very well and is improving everyday. Your daughter is beautiful and you need to stay positive. How is the treatment working? You may want to look into the squaric acid. Sam was 6 when she started it and it is working for us. Keep in touch! Cindy

I know exactly what you are going through b/c I was there 3 yrs ago. I hope things look up soon for you all..The best thing you can do is crack that smile no matter how hard it is some days. I recall crying everytime I washed and combed Sam's hair and there would be times I did not want to touch her head in hopes that the hair would not fall out. Just stay positive and reinforce confidence to your daughter. If you are strong for her, she will be strong and allude self confidence amongst her peers. Have you looked into the treatment that Samantha is doing? This Alopecia is just so tricky and it's fate for treatment is still unknown. It would be nice to have answer sometime...Have a great Holiday!! Cindy

How is the treatment going?

I know how you feel I was totally devistated when my daughter Haley lost her hair in huge patches and now she has only a little fuzz. I am a year away from those feelings now we are educating and raising awareness.I wish you and your beautiful daughter well.

Good luck!! Do mind me asking what it cost? What kind of additional consult do you get>

Hi Saida, thanks for the email update. All I can say is that if this works it won't happen over night. It took Samantha about 5 months before we saw the start of regrowth with her treatment. If you really believe that this is going to work you need to give it 12-16 weeks. How does it work? Keep me posted!!! Cindy

Hi Saida, Your daughter is really cute. How is your daughter doing? We found Sierra's spots in August when I took her in for a hair cut. Fortunately, we knew right away what it was. We have many autoimmune diseases in our family so we knew right away what was going on. So far, she has done well with the cortizone type creams. Are you doing the same or are you trying shots? Someone suggested that we try Nioxin shampoo and conditioner. I don't think it has helped with the alopecia but Sierra had dandruff so bad before. I highly recommend it for the dandruff. I found some larger bottles on Amazon that I thought were more reasonably priced per oz. Its spendy but for a little girl but it goes a long way. Sierra is doing better now. When school first started we had some issues. Her long hair got cut shorter which helped cover up the spots better. She just at an age where the kids in school can be a little difficult. But so far she has faired well. We just try to find other things that keep her mind off of it and on to something else. She's enjoying music a lot. She plays the piano, violin and clarinet. I think that keeping her busy helps her and me ;)

Take care...
Stacie

Saida, once you get started with the treatment I would love to hear about all the things you are doing and how it is going. Please keep in touch and I wish you luck with it!
Cindy

Hello and welcome, Saida!
I understand how hard it is for you. Most parents have a really tough time when their kids get alopecia. Let me know if I can help.
LeslieAnn

Good luck with the treatment. What is his Dr. Gomen's treatment plan? I had contacted him, but b/c what we are doing is working he said not to change anything. Samantha is doing the squaric acid treatments. Cindy