Hey, I am not sure if we have talked before, but I am from Manitoba and would love to help your daughter with anything any time.. I feel very comfortable with my alopecia and really want to help others feel the same. :) tell her to keep her chin up and she is beautiful

Hi! I'm Charity. I'm also from Winnipeg, and would LOVE to see a support group happen. Even if it's not a support group, I would like soooo much to meet people that can relate to me. I'd love to meet your daughter if you'd be okay with that. I'm 18 years old, and I got diagnosed with alopecia when I was 15 and a half. I now have full blown alopecia universalis. I know young girls can sometimes look up to "teenage girls" and maybe just seeing someone else who's struggled with it would be good for her? Sort of like a mentor maybe. Also I have a 9 year old sister so I'm good with kids her age. Message me back!

Oh, my last bit of advice...advice that would have helped me tremedously...never let your daughter see you upset about her AA. Although, you can feel helpless as a parent...please never let her see it or hear you speak about it to others in a negative way. Sometimes words and actions stick with kids in ways parents never expect.

...in one of your posts you said that your daughter doesn't want to wear her wig. I can also emphasize with this...they are hot and sweaty! :) A medical hairpiece isn't like an IPOD, so when kids beg for this and don't wear it...dont' sweat it. They're just sorting things out on their own. Good for you for supporting her either way. You're really giving her many advantages in coping with AA.

...My parents certainly didn't make it easy on me. They are very much into how things look and it was apparent to me, even as a child that this upset them very much. Sometimes even more than it upset me. It was very difficult to know that the people you are closest to were even repulsed by your lack of hair and the effects were long lasting. I didn't date until after university until my aa went into remission. I'm now completely bald and am not ashamed to hide from my parents. Being an adult, I think too bad for them if they don't want to look at me without hair...

Hi Tracy,
I read through your posts and I'm sorry to hear about your daughter's struggle with AA. I was 12 when diagnosed and went through the same thing as a teenager. It's not easy to deal with alone - and that's what you feel like as a child with AA. I hope you were able to find others who have come out of hiding. I wish I knew of others my age when dealing with AA as a teen. Hopefully, because your daughter is 8 her classmates, friends and others can help normalize her experience for her so she can learn to build her confidence. I think you're doing all of the right things as a mom trying to support her.

Hi Tracy,

Just logged on for the first time in, my goodness, months...and months...and noticed the message you left on my wall. Good to meet you! I live on Vancouver Island with my hubby and wee ones. Your daughter is just a bit older than my oldest.

Please tell her that she's beautiful, btw. I enjoyed looking at your family photos. You have a gorgeous clan there, Tracy!

Janna

Hi Tracy, how are you and your daughter doing. I read your blog and you seemed a bit down and wanted to pop by and say hi. Unfortunately, there is more unknown then known when it comes to treating Alopecia. We need to stay strong for our children so they can grow up with confidence and feel comfortable in their skin. I hope you can find a support group in Canada that will give you the support you and your daughter need right now. If you daughter would like a pen pal going through this as well let me know. Sam is 7.5 and she loves to write and have pen pals...((HUGS)) Cindy

If the street is grandmont I live just off that street,,,can't wait to get together..I am on mat leave so anytime is a good time, my husband is excited too.

Yea sounds good I live in St Norbert, witch is south just pass the perimeter.

I would love too but I have to go out to St Leon to visit my in laws but we are going to the teddy bear picnic on sunday, were planning to go in the late morning .. We could meet there if you wanted too..

Yep count me in,,I have a printer that works, My e mail address is gecko2222@hotmail.com. My phone # is 237-8676.

Well you are right to say that it is so hard to find people in winnipeg to make this BBQ happen,,,there has to be children here, but I don't know!!I'll keep trying but we can still plan somthing if you would like??? We can still have a BBQ and CAKE!! LOL

I wonder if they didn't get it or it got pass on to the wrong person??? I just e-mailed the health news guy brian and he phoned me a few days later.But as long as it gets out there. I would love to get together. I am trying to plan a AA BBQ for kids and us as parents to meet and talk. Hopefully in july..we will see. Who can say no to cake?????

I am feeling the same way, there is no support group on winnipeg manitoba. My son( who is two) and I just did a TV interveiw with big breakfast that aired today. I want to get awareness here and I want to get some kind of a kids with AA camp or something for them. I think it is so important.Hopefully with this interveiw I can get some help getting it starting here..I'll keep you updated....Take care you guys.. Christine & Kyler

Hey! I just saw you wrote on Dale's (my boyfriends) page about a support group here. I live more near Brandon but would love to be involved with one for our areas.
How is your daughter doing? i hope well. i lost my hair as a teenager and maybe able to relate a bit if you ever need something! let me know what I can do for a support group/network :)

We're out by Headingly, about 15 minutes from the perimeter. You are welcome to come for lunch or coffee anytime. I'll email you my number.

Hi there. So here is a story for you. My husband is a high school teacher in Wpg. He has been super supportive of me since my AA hit. Here's the thing, he's been teaching a girl with Alopecia totalis everyday this semester and during extra help sessions and he had no idea that she had a wig on...I mean none. This girl lost all her hair in grade 8 and is thriving at both school and life. So I thought I would pass it on. Your daughter is not alone inthe Peg...Hang in there.

Tracy, if you are thinking of getting Brittany an wig check into the hair club for men. I think they are in Canada as well. Sam wears a wig from them. They have a kids club which gives kids age 6-17 3 free hair replacements a year and 8 services. Sam loves the wig and it is easy to care for and you can swim in it. i brought pics of her with me befor the hair loss and they did a great job matching a hair color. Now, that her hair is growing we even tweaked the color a bit for her next one..Good luck..