Hi hun I forgot to mention when and if you get the product CHI remember to wet. The ends with water first and you only need dine size rub in your hands then run the ends takes about1/2 hour to dry but its soo worth it and it has an amazing smell!! God Bless xo
It's funny people have often told me they prefer to see me with my blad head than with a wig and when I look at your two pictures I get it. Don't get me wrong, you look beautiful with hair but you're truly glowing without! jen
Hi Amy. No complaints today. I just got a wig in the mail the other day. It's actually cute. It's a fringy bi-level bob wig. I might run over it with my car tomorrow but I'm digging it today. lol. I have such a love hate about it. You look gorgeous bald !
Hi Amy! Yes I had ulcerative colitis for 4 horrible years during 1984 - 1988 until I had surgery to remove my colon. What a gorgeous face you have! Are you still suffering with it? Feel free to email me directly at: thevictorbook@sbcglobal.net. I'm also an author and have a blog if you want to see: www.psalm451.net
LET ME KNOW HOW THE FREEDOM WIG GOES MAYBE I WILL INVEST MYSELF. I GET REALLY DOWN SOMETIMES TOO SO HANG IN THERE. I DO MY BEST TO BE POSITIVE BUT I MISS EYEBROWS AND LASHES SOOOOOOOO MUCH AND MY HAIR. IT WOULD BE ONE THING IF I KNEW FOR SURE THAT IT WILL GROW BACK BUT THE UNKNOWN AND THE TIME THAT LAPSES BY MAKES ME SO UNEASY. I TRY TO DO POSITIVE AFFIRMATIONS EVERY DAY AND LOVE AND APPRECIATE MY BODY, BUT SOMETIMES IT CAN BE HARD AS YOU KNOW. HAVE A GOOD WEEKEND AND I WILL TTYL.
Hey Happy Thanksgiving! Freedom Wigs are super expensive right? I hope you are right and my hair grows back I keep intending for that and say affirmations everyday to affirm this but when I look in the mirror there is still nothing..=/ I don't know it is very frustrating at times, I am grateful to not be as sick as before but this part is at times more upsetting than the rest.
I had no alternative I was sooooo sick and was in the hospital for almost 2 months. Being transported from CT to Boston by ambulance was so surreal. I feel sooooo much better now, just getting use to having a "bag" and trying to decide on the next steps. If I am allowed the reversal there is more surgeries. I have 1 more no matter waht for a fistula (which even though my pathology on my colon came back as UC normally only Crohns people get those) guess that is why they are being so cautious about the J-Pouch. I am trying to get stronger each day and exercise, go to PT and eat healthy. I am not teaching right now I am out on medical leave. I did order that herbal hair treatment from India and I am praying it grows my hair back I hear it is hard for AU but possible but it also takes a long time. I will let you know if I get any results. I don't have to take any UC meds right now which is wonderful so I guess that is another plus too.=)
They are still not sure if it is Crohns or UC I had emergency surgery on Sept 12, 2011 I had been in the hospital almost 2 months and was VERY sick.They had to remove my colon and right not I have an ostomy bag and I need to decide if I want a reversal into a J-pouch and they have to determine if I can even have one. It has been a LONG road, I was told I had UC in 2007 never had any issues before that. We had moved to CT from the Boston area and 6 months later I was sick. They thought last year I might have MS or Lupus too but really it was the med Remicade, it actually gave me brain lesions. Did Humira give you lupus? I believe my hair will come back once these horrible meds are out of my system, I have to believe that or I get really down =( You are right hair loss is worse in a lot of ways. Especially eyebrows and eyelashes. Glad I met you on here you sound like a great person and our experiences sound very similar, talk to you later have a great Sunday.
Hi Amy, wondered if you had any suggestions on wigs, brows or lashes I have AU as of Feb-May 2011 along with other health "stuff" tried a few things but nothing has really made me feel like "normal". Just turned 40 and not use to this bald stuff at all, still praying it will all come back as they feel cancer-like medications may have attributed to the AU.
Hello there Amy! I think you have such a lovely smile :-) Yes, I'm in Aurora, was born here, lived here most of my life. It is awesome to me that there is someone else to connect with in Colorado! So far, I've been dealing with many doctors trying to figure out what's going on with my scalp, they think it is Chronic Telogen effluvium. This has been going on for a year adding so much stress and worthlessness to my life, I'm sure you've experienced some of the same feelings. Man I'd give anything to help us all resolve our hair issues! Hope you're well! -Sarah
I don't think so. My stylist told me if you wear them loosely they do not look real. I have headaches anyway, just now it seems to make it worse. Oh well, have you tried one of those grippers or the newer vac. wigs?
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.
Amy's Comments
Comment Wall (47 comments)
You need to be a member of Alopecia World to add comments!
Join Alopecia World
It's funny people have often told me they prefer to see me with my blad head than with a wig and when I look at your two pictures I get it. Don't get me wrong, you look beautiful with hair but you're truly glowing without! jen
Hi Amy. No complaints today. I just got a wig in the mail the other day. It's actually cute. It's a fringy bi-level bob wig. I might run over it with my car tomorrow but I'm digging it today. lol. I have such a love hate about it. You look gorgeous bald !
Hi! Thanks for the kind words and the add! You look fab either way, hair or not :)
hey Amy. im really overwhelmed by this site. its amazing.
Hi Amy! Yes I had ulcerative colitis for 4 horrible years during 1984 - 1988 until I had surgery to remove my colon. What a gorgeous face you have! Are you still suffering with it? Feel free to email me directly at: thevictorbook@sbcglobal.net. I'm also an author and have a blog if you want to see: www.psalm451.net
So did you get the freedom wig yet? I am thinking about it, wondered what you thought.
LET ME KNOW HOW THE FREEDOM WIG GOES MAYBE I WILL INVEST MYSELF. I GET REALLY DOWN SOMETIMES TOO SO HANG IN THERE. I DO MY BEST TO BE POSITIVE BUT I MISS EYEBROWS AND LASHES SOOOOOOOO MUCH AND MY HAIR. IT WOULD BE ONE THING IF I KNEW FOR SURE THAT IT WILL GROW BACK BUT THE UNKNOWN AND THE TIME THAT LAPSES BY MAKES ME SO UNEASY. I TRY TO DO POSITIVE AFFIRMATIONS EVERY DAY AND LOVE AND APPRECIATE MY BODY, BUT SOMETIMES IT CAN BE HARD AS YOU KNOW. HAVE A GOOD WEEKEND AND I WILL TTYL.
Hey Happy Thanksgiving! Freedom Wigs are super expensive right? I hope you are right and my hair grows back I keep intending for that and say affirmations everyday to affirm this but when I look in the mirror there is still nothing..=/ I don't know it is very frustrating at times, I am grateful to not be as sick as before but this part is at times more upsetting than the rest.
I had no alternative I was sooooo sick and was in the hospital for almost 2 months. Being transported from CT to Boston by ambulance was so surreal. I feel sooooo much better now, just getting use to having a "bag" and trying to decide on the next steps. If I am allowed the reversal there is more surgeries. I have 1 more no matter waht for a fistula (which even though my pathology on my colon came back as UC normally only Crohns people get those) guess that is why they are being so cautious about the J-Pouch. I am trying to get stronger each day and exercise, go to PT and eat healthy. I am not teaching right now I am out on medical leave. I did order that herbal hair treatment from India and I am praying it grows my hair back I hear it is hard for AU but possible but it also takes a long time. I will let you know if I get any results. I don't have to take any UC meds right now which is wonderful so I guess that is another plus too.=)
They are still not sure if it is Crohns or UC I had emergency surgery on Sept 12, 2011 I had been in the hospital almost 2 months and was VERY sick.They had to remove my colon and right not I have an ostomy bag and I need to decide if I want a reversal into a J-pouch and they have to determine if I can even have one. It has been a LONG road, I was told I had UC in 2007 never had any issues before that. We had moved to CT from the Boston area and 6 months later I was sick. They thought last year I might have MS or Lupus too but really it was the med Remicade, it actually gave me brain lesions. Did Humira give you lupus? I believe my hair will come back once these horrible meds are out of my system, I have to believe that or I get really down =( You are right hair loss is worse in a lot of ways. Especially eyebrows and eyelashes. Glad I met you on here you sound like a great person and our experiences sound very similar, talk to you later have a great Sunday.
Hi Amy, wondered if you had any suggestions on wigs, brows or lashes I have AU as of Feb-May 2011 along with other health "stuff" tried a few things but nothing has really made me feel like "normal". Just turned 40 and not use to this bald stuff at all, still praying it will all come back as they feel cancer-like medications may have attributed to the AU.
Hello there Amy! I think you have such a lovely smile :-) Yes, I'm in Aurora, was born here, lived here most of my life. It is awesome to me that there is someone else to connect with in Colorado! So far, I've been dealing with many doctors trying to figure out what's going on with my scalp, they think it is Chronic Telogen effluvium. This has been going on for a year adding so much stress and worthlessness to my life, I'm sure you've experienced some of the same feelings. Man I'd give anything to help us all resolve our hair issues! Hope you're well! -Sarah
haha :) where do you live ? australia?
I don't think so. My stylist told me if you wear them loosely they do not look real. I have headaches anyway, just now it seems to make it worse. Oh well, have you tried one of those grippers or the newer vac. wigs?
no not at all ... i'v been bald now for about 18months and its not fun going into hight school
Thanks Amy, but I don't feel pretty....I have a couple wigs but they give me headaches like crazy.
no problems and thankyou , i'v had alopecia areata since i was two, its come and gone since. :) what about you ?
Welcome to
Alopecia World
Sign Up
or Sign In
Disclaimer
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.