I wish you 2 were able to go to the conference. I am excited about it - but a bit nervous too. We decided to go a couple months ago. We really didn't give Brandon a choice, we just said we are going. I have told him if he doesnt like it we will never go again. I talked to the NAAF and they said there are usually @ 20 in his age group (14-17). I just am really hoping some boys will be there too. He will be pretty upset if he walks into a room full of girls. :)
Brandon has white hairs on his head and he shaves them off every 1 -2 weeks, His eyebrows are white too. He barely has any hair on his body, But he doesn't think he has totalis.
Hi Connie - Wondering how Chris is doing? I told Brandon that I had been online and met someone who had a 15 year old with alopecia. He didn't seem as happy about it as I did. I think meeting others would help him but he looks at me like I'm crazy. Hope to hear from you soon.
Brandon is hanging in there. Basically in December all his scalp hair came out - to the point we had to shave it the rest of the way off. That was awlful. There was many tears from him as well as me and my husband - he would come to me asking why - I had no answers and felt completely helpless as a parent. Your children come to you for help and I think he wanted me to fix this and I couldn't. :( He is doing better now then at first - but doesn't like to talk about it.
I hope you get the colitis sorted out. I have a friend with Chrones disease.
I think their is a naaf support group in Santa Ana. Maybe you could start a new one thru NAAF.
I guess you just have to give your son some time.
Have you heard about the NAAF Conferences? Alot of people go and dont want to really participate in anything at first... But then once they get there it's a life changing experience. Check out www.naaf.org
I know what you mean. But here we are.
I hope your son is just going through a phase right now and will get back on track with his grades.
Has he got to meet anyone with alopecia yet? I know meeting others like myself made a huge diffrence.
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Connie - Chris' Mom's Comments
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Brandon has white hairs on his head and he shaves them off every 1 -2 weeks, His eyebrows are white too. He barely has any hair on his body, But he doesn't think he has totalis.
I think their is a naaf support group in Santa Ana. Maybe you could start a new one thru NAAF.
Good luck with everything.
Jeffrey
I guess you just have to give your son some time.
Have you heard about the NAAF Conferences? Alot of people go and dont want to really participate in anything at first... But then once they get there it's a life changing experience. Check out www.naaf.org
Jeff
I know what you mean. But here we are.
I hope your son is just going through a phase right now and will get back on track with his grades.
Has he got to meet anyone with alopecia yet? I know meeting others like myself made a huge diffrence.
Jeffrey
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Jeffrey
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.