Hi Robyn - thanks for the friend request! I wish I could have been at NAAF in Indy this year, but I'm DEFINITELY going to attend next year in LA. I hope to meet you and lots of my AW friends there. All the best,
Mary
Robyn, In answer to your question about where I order my wigs.... The auburn one in my photo is Revlon's Scorpio. It's an inexpensive synthetic that I have worn since I started wearing wigs back in October 09 (actually I have 3 of the same style to switch out). You can buy this wig pretty much on any of the web sites. I got mine from wowwigs.com, but have recently found a couple new sites where the prices are MUCH better: namebrandwigs.com & wigsalon.com. I am wearing my new one today (no pics yet) and I got it from namebrandwigs. It's a Noriko "Reese." My daughter saw it for the first time today (she is my harshest critic) and liked it, but she prefers me in slightly longer hair. I need a change of pace now and then!
Thanks for the encouraging words... I dont think we met in Indy, but I met so many people who knows, we might have run into eachother. I realized the night before I flew out to the conf. that I didnt have a stitch of red clothing except for a rain jacket, so I wasnt wearing my area colors as I should have been. Are you planning on going to the conf. in LA next year? You gotta check out the hotel it looks awsome with this great big outdoor pool ....."Cannonball"! Enjoy the rest of your weekend, hope to talk soon.
Hi Robyn, thanks for the friend request and nice to meet you. Did we meet at the NAAF conf? Anyway, I look forward to getting to know you. Take care and have a great weekend.
This is the place to put up a bald pic. It's safe here! My summer has been great. I think my advice to leading a group would be just to be a good listener and to not try to do too much. Just be present for those that want to speak and be there for them. Take Care, Matt
Hi Robyn,
Did we meet at the Conf? I'm drawing a blank.
I've been dealing with alopecia for 3 years now and decided to see what was growing. Thats where the 10 spots come in. I'm not doing any steroid injections. I'm just letting nature take it's course through all of this.
Hope you can make it to NAAF LA next year.
Hi Robyn,
How are you? Was this your first Conf? I can't remember....
All is good here with Leo and I. We got some great shots at the Conf! What fun eh?
So yep, I decided after the conf to not shave my head an see what was "Growing On" I had been shaving on a daily basis but I didnt actually think it was going to be this much. I still have 10 white patches which are also shorter and less diffuse than the rest. But hey it's workin' for now.....
Kim,
This is all very good news. How did you find me on here? Did Dr. S. give you my name? He was actually the person who seriously suggested that I start a group. Right now, I'm looking at the EG Library or The Acupuncture Office in Latham. Will hopefully get an answer soon and we can tentatively schedule a meeting by the end of Sept.
Where does your daughter go to school? I have a daughter who will be 15 in Nov. She is going into 10th gr. at Colonie Central HS.
Do you know more local members on AW? Pls introduce me. ttys.
Hi Robyn, I finally found where to see the rest of your message....Yes, I am in Troy, and know several others that are interested in a support group! This is fantastic! Please feel free to email me at: kodonnell4@nycap.rr.com
Hi Robyn,
So nice to see you on AW. It's a great place to meet friends and talk about anything and everything. So, I guess your kids are still not coming around huh? Well, hopefully someday they will realize that you are still the same cool mom without hair. Miss you!!! Maybe we can plan a get-together some time. It would be cool if Joyce and I could meet up with you somewhere. Big hugs to you my friend.
Love and Hugs,
Dotty
Oh, I'm so glad my book has been helpful to you!
Thanks so much for letting me know.
I'm in Portland, OR. The weather has been really nice, not too hot.
Hugs to you and your family!
Hi Robyn! I live in Troy, and my daughter,Isabelle (15) has AA...all her life. I was thinking about trying to get together a support group of somekind in the Capital District....would you be interested???
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Mary
Thanks for the encouraging words... I dont think we met in Indy, but I met so many people who knows, we might have run into eachother. I realized the night before I flew out to the conf. that I didnt have a stitch of red clothing except for a rain jacket, so I wasnt wearing my area colors as I should have been. Are you planning on going to the conf. in LA next year? You gotta check out the hotel it looks awsome with this great big outdoor pool ....."Cannonball"! Enjoy the rest of your weekend, hope to talk soon.
Yes, it's coming back to me now.
So you are starting a support group eh? Thats great!
Jeffrey
This is the place to put up a bald pic. It's safe here! My summer has been great. I think my advice to leading a group would be just to be a good listener and to not try to do too much. Just be present for those that want to speak and be there for them. Take Care, Matt
Did we meet at the Conf? I'm drawing a blank.
I've been dealing with alopecia for 3 years now and decided to see what was growing. Thats where the 10 spots come in. I'm not doing any steroid injections. I'm just letting nature take it's course through all of this.
Hope you can make it to NAAF LA next year.
Jeffrey
How are you? Was this your first Conf? I can't remember....
All is good here with Leo and I. We got some great shots at the Conf! What fun eh?
So yep, I decided after the conf to not shave my head an see what was "Growing On" I had been shaving on a daily basis but I didnt actually think it was going to be this much. I still have 10 white patches which are also shorter and less diffuse than the rest. But hey it's workin' for now.....
Jeffrey
This is all very good news. How did you find me on here? Did Dr. S. give you my name? He was actually the person who seriously suggested that I start a group. Right now, I'm looking at the EG Library or The Acupuncture Office in Latham. Will hopefully get an answer soon and we can tentatively schedule a meeting by the end of Sept.
Where does your daughter go to school? I have a daughter who will be 15 in Nov. She is going into 10th gr. at Colonie Central HS.
Do you know more local members on AW? Pls introduce me. ttys.
Have a great day!!
So nice to see you on AW. It's a great place to meet friends and talk about anything and everything. So, I guess your kids are still not coming around huh? Well, hopefully someday they will realize that you are still the same cool mom without hair. Miss you!!! Maybe we can plan a get-together some time. It would be cool if Joyce and I could meet up with you somewhere. Big hugs to you my friend.
Love and Hugs,
Dotty
Thanks so much for letting me know.
I'm in Portland, OR. The weather has been really nice, not too hot.
Hugs to you and your family!
How are you today? Wow, the conference must have been great -- I guess I'll have to go next year.
LeslieAnn
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.