Natalie's Comments

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At 8:11pm on August 1, 2010, Jennifer Krahn said…
Hey Natalie,
I am LOVING my freedom piece. I feel and look like me again. I have worn it swimming in the lake, poolside, camping and even for some training runs. It is so comfortable and I am suprised that I don't feel hot in it at all. Hope you are doing well. We're enjoying the lake right now and the wonderful weather. Have a good one. Great pics by the way...I'm going to have to add new pics of me in my new hairpiece.
Jenn
At 9:44am on August 1, 2010, Scaredandhopeful said…
checking in and saying hi xx
At 6:17pm on July 23, 2010, Kimberly said…
I am torn between a freedom and the Joseph Paris lace wig. I still have some of my own hair, with hopes that this prednisone will make it stop falling out and grown in for good. VERY HIGH HOPES. Has the freedom wig changed your life? I feel in a big slump, I only wear hats and bandanas now, but I need to get back on track with some kind of hair soon, before I get too depressed. My goal is to NOT worry about it. I want to just go, and not have to constantly look in the mirror. I guess I need to decide whether I am going to have my own hair or not. I just am not sure what this medicine is going to do yet. I am on a 7 week tapered dose. If I see little to no results at the end of the 7 weeks, I will not take these meds again. What do you think?
At 10:17pm on July 21, 2010, Kimberly said…
Do you still like to freedom wig? Are they too hot? I am so confused what to do, the vacuum or lace? Got any advice?
At 8:45pm on July 17, 2010, Lisa M said…
Hi Natalie,
Thanks for your reply.
It is so nice to not feel alone with all of this.
I'm pretty good, just recently bought 7 more wigs the other day...I'm calling it my new shoe addiction!
Hey, your hair looks amazing, where did you get it from? (that felt really bizarre asking that) lol.
xxx Lis
At 4:21pm on July 15, 2010, Connie - Chris' Mom said…
Thanks for the comment. I try to be supportive, my son just thinks I'm too concerned. He seems to go about his life pretending nothing's wrong. He doesn't talk about it and won't say whether or not he's said anything to his friends. It's been a year now so I'm sure it's come up at some point, but to him he wants it to be a non-issue. In the beginning, when the doctors thought this was just temporary due to severe anemia from another health issue, the doctor's didn't even suggest any treatment. Once they realized that it was AA, they suggested various courses of treatment. Chris turned them all down. He said he would like to have hair but not if the treatment would hurt or be inconvenient! I just hope he's really as strong as he appears and not just good at hiding how he feels - high school is hard enough without extra challenges!
At 11:02pm on July 9, 2010, Scaredandhopeful said…
hiya pretty lady
Two weeks into wig wearning and no diasters to report. Aside from the fact that in poorly lit room the wig suddenly develops a glorious red tinge which is rather amausing. Flaming cheeks I think not, more like flaming head.
Anyway I finally worked up the courage and told my boy who is still overseas that I am losing my hair. I did it with rocks in the pit of my stomach and the response was "are you healthy? I dont really care about the hair I just want to know that youre healthy" which was so nice. The worry worms however are still making their homes in my head.
How are things on your end of the world?
Happy?
At 6:08am on June 27, 2010, Scaredandhopeful said…
Oh my god Natalie I found a wig!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
It's synthetic but it looks like my hair used to look and matches my haircut. I wore it out of the shop a trial by fire thing and nothing. No one pointed or looked closely. Or shouted " She is wearning a wig" Tomorrow I will wear it to university. Still losing hairs but oh my god, the relief that comes from having a solution.
I will send you a picture if you would like
At 6:43am on June 26, 2010, Scaredandhopeful said…
Hello my friend
Having a disaster two days, ironically my horoscope said that I might be and well just goes to show does it not one should not be so flippant.
I am experiencing pain on my scalp and a tingling which precedes the hair loss and this is what I find the most disabling. Because it really heightens the anxiety. I don't know what to do and my self esteem is taking a battering
Every day I tell myself I look ugly. Now where is the fairness in that?
I look very hard to find the strength and before these two days I thought I was making progress. When apparently not.
I wish someone could wave a magic wand and I will be at the mecca they refer to as Acceptance. But no, everyday I walk with only fear in my heart.
How are you doing? Tell me something good that's happening in your life
ps wig shop number three tomorrow
At 5:47am on June 2, 2010, Scaredandhopeful said…
I don't know how to do this :(
At 9:02am on May 30, 2010, Laura said…
Hi Natalie! Just wanted to say thank you for referring me to Kathleen's. She is such an amazing lady!! She wanted me to tell you Hi and thanks! Thanks again! Hope your doing well!
At 3:15am on May 28, 2010, Scaredandhopeful said…
Oh Natalie, something tells me you might like this story. Had a minor disaster with toppik and my minoxidil induced facial hair this morning. Almost walked out the door with a 5 oçlock shadow. That topiik stuff is ionically charged so had to wash all makeup (read war paint) off and start afresh. ahahaha
At 7:28am on May 26, 2010, Scaredandhopeful said…
Thank you for replying so promptly. Looking at my first wig tomorrow, more to get over my own apprehensions and fear. Nothing like confronting the fear eh? Always thought wigs would signal defeat, now understanding they could help me prosper.
How was your day?
At 5:04am on May 24, 2010, Scaredandhopeful said…
Hiya thank you so much for adding me. If you bear with me while I harangue you a little :) Curious whether you can lead an active lifestyle and run and play sport with a wig? I'm hoping to speak to a freedom wig representative soon, I figure if the hair is going anyway why not regain some control and shave it off? But you know, I am terrified at the prospect and what reactions I'll get. It is the fear of the unknown that has me hesitating. I wish I could be braver. Or find some magic ball that will tell me it will all be alright. But gah the answer staring me in the face says I'll have to make those good things happen by being active and not passive. This is my first tentative step I suppose :)
At 9:55am on May 8, 2010, Laura said…
Thanks so much for all the information, I really do appreciate it. I understand about the price means higher quality, I bought a humanin hair wig and it costed $700 but it was way to heavy on my head and I hate to spend more and not be happy again. Are the full lace wigs easy to apply yourself? What does 100% remy hair mean? Haha I am so uneducated at all of this!
At 9:31am on May 8, 2010, Laura said…
I am not completely bald I pretty much have all regrowth just a few patches still growing in. I saw some full lace wigs online, but not sure if they are good quality for $299 especially comparing it to the 1600 one you have. Is eurpoean hair what I should look for? There is so many different types that is what my problem is, since I am not very familiar with full lace wigs. Have you ever been to the Chicago wig store in milwaukee? Or heard of them? Sorry for all the questions.
At 8:51am on May 8, 2010, Laura said…
Hi Natalie! Thanks so much for the information, I will have to check her out. How much was your full lace wig about?
At 12:27am on May 3, 2010, Krissie said…
My first rotation as a traveling nurse will be there. My family is worried for me to go. I tend to look a lot younger than i am so my fam thinks bad things in the big city will happen. but my brother and sis-n-law are coming with so it should be fun. wanted to ask you where you get your wigs. They look great. do you know somewhere in D.C. that provides quality wigs. I'm interested in the lace front...the more realistic the better. Another question. were you seeing your boyfriend while the loss started or after. you two look like such a great couple. Hope to hear from you soon. You will have to tell me what the city is like. can't wait to experience it!!!
At 11:50pm on May 2, 2010, Mayte said…
It does sound as if it's worth every penny.... I can't wait to get in touch with them.
At 11:35pm on May 2, 2010, Mayte said…
Thank you so much Natalie. I looked it up and emailed the person who is in my area (somewhat...). I am very concerned about the cost though... is that something you mind sharing? Besides the cost of the actual wig, there'll be some traveling cost (I live in Florida & the nearest location is in New Hampshire).
Thanks again Natalie!

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