Natalie,
Hi there, just wanted to check in with you and see how you are doing. How are you adjusting to your Freedom Wig? I didn't know that you did the oral steroids too. How long did you do those for? After you got off of them, what happened? I guess I could assume that no treatments worked for you? I hope that you are doing well. Hope to hear from you soon! Melissa:)

hi there!
its nice to meet you :)
how are you doing?
your grandpa is from germany? thats cool.
i live in the north of germany.
but i lived in wisconsin for some time. i really love the us. maybe i can move there again some day :)
i hope we can talk sometime

Hi Natalie.
Thank you for your offer, my wife will be sure to ask you any thing she needs!
Have a great day!

no problem ..
and thank you ! :D

my name is Essence btw :)
how are you doing today?

Thank you sooo much! I am so glad there is a support site like this! I will keep you posted ! Keep me updated on how things are going for you! Again, thank you soo much!!! I really appreciate it!

Hey Natalie

I love your hair! I went through a similar process as you. My hair has been growing back in with monthly shots but I have this funny looking mullet thing going on since each patch is growing in on its own time and some are still waiting lol

Because of this I began to wear a wig and I have to say it is amazing. it makes me feel like I did when my hair was a its fullest. Your wig looks incredible though. I was considering a lace front wig but I didn't understand how it makes it look so natural. I pull out the hair that I have in front to blend with the wig but how does yours not have that akward hair line?

I felt very connected to your story as my boyfriend is my rock too. I don't think I would have made it through this past year without his amazing support. We are both very fortunate.

Jocelyn

Well Hello! I was diagnosed in Aug/Sep. Found a bald spot on the top of my head one day, then had my husband look throughout my head and found a quarter sized one on the back of my head behind my left ear. Hair has been steadily falling out but not in patches. I can tell my hair is really brittle now. Just started tingling all over again here recently. Maybe that is sign more is to fall out? My derm. told me it was ok to color my hair again. I have some highlights in from awhile back that look really bad. So, I figure I will try to get back to my natural color and if it falls out in the mean time, than it just does. How long did it take yours to get to where you shaved it? I looked up Freedom Wigs and could not find pricing anywhere. About how much are they? And I am guessing I will have to travel to see a rep, no chance there is one here in Kansas. Love to talk to you some more! You and your hair are both beautiful! Thanks for being so positive!

Hey Natalie! Thanks for the add - you have a great attitude and gosh, I wish you were here in Cali! Anyway, keep doing what you're doing girl!!!!

Hi Natalie
No unfortunately Jon doesn't participate in this site. I wish he would but he says he doesn't want to. I think it would definitely help him if he could talk to other Alopecia sufferers.
Jon is very much in denial about his emotional state and his alopecia. I'm thinking that he may have to go on medication to help him claw his way out of the situation he is placing himself in.
So you found that the medication helped? DId you have any counselling or such?

Working for that organization would be wonderful! I guarantee those childred value you as much as you value them! That would be rewarding for the both of you!

I'm interested in Clinical Psychology, but I really have no idea what I am going to do with it..I have so many career ideas in mind. Counseling interests me, but so does being an interventionist or working in a hospital.

You are such a positive, uplifting person and it's wonderful! You are absolutely right, though, many "curses" are actually blessings. I hope that I can find the confidence and strength that you have.

Are you planning on taking your career anywhere that you would be able to help people?

That's so crazy that all of this could have started from a pool accident! Do you ever have anger or think about the "what if's" with that accident? Did you get a diagnoses when it was easy to hide or was it that you just started noticing you were losing your hair?

Thanks Natalie for your caring and support.
Jon has isolated himself a bit this year. I shouldn't have let it happen but i did.Didn't realise it at the time. We are trying hard to get him back into doing something. He won't go back to his usual sports but looks like we might succeed in getting him into a youth group. He has organised to go to one with a friend on Friday night so here's hoping that he actually goes through with it!
It appears that he is suffering from depression too and we are trying to get him help. He doesnt see that he has a problem though.
I know that over time he will come to terms with having Alopecia. The only thing that worries me is that by that time he may have missed out on opportunities as he is very bright and has a very good mind - a thinker. Though he is thinking negatively at the moment usually he is very inquisitive.
Anyway, thanks again for your support. Keep up with the positive attitude.
God Bless
Susan

Thank you Natalie
You are beautiful and have a wonderful attitude. Good on you.
How did you cope at school?

Hi Natalie, Thanks for responding. I'm trying to build a little support network for myself here! Yes, that is my lab Carmela. She's a sweetie! Good for you on taking that step to have your head shaved. I still haven't crossed that line of bravery yet and continue to wear a hair piece that I combine with what little hair I seem to have less. :( It still looks ok, but I know I'm going to have to take a furhter step soon. Please, keep me posted on your progress. Best of luck with your new "hair" ! :)

Thank you so much for your help! I am not at all at the point to where I need to shave my head, but I want to be prepared when/if I would get there. I pray every day that I don't. How long did it take for you to lose your hair after you were diagnosed?

Wow!!!! That looks great on you. I couldn't tell that's why i asked you if you had any pictures. I am so glad your happy with it. I do like that it's comfortable i do forget to. I just wish i took more time choosing color and texture. My hair is nowhere near what I was used to with my natural hair. I also wish i had taked more time deciding on what cut i wanted. Overall I do like it. Did you get your hair cut by you or out here?

did you get your vac wig yet?? do you have pictures