We had a small victory. The doctor said that her inflamation has gone down and that her hair has stop shedding he believes and now we just got to wait for it to grow back. i have been using the deity of america and so that has been thickining her hair up. I have not smiled this much in months... Just had to get that off my chest.
I think it's a great that your spreading the word about Alopecia because knowledge is power. I know that the last couples of months have taken a toll but be encouraged their is sunshine after the rain. GOD didn't bring you this far to leave you. I know from experience that it's hard when your baby is hurting and you wish you could make it go away. I know kids can be cruel but keep your head up. GOD created us all different and we are all wonderful masterpiece. Outer beauty fades with time and inter beauty last forever. Jazz your are a beautiful girl and your hair doesn't define who you are. I know kids can be mean but you don't have a problem. They have the problem. Jazz hold your head up and keep smiling because you are and always will be Beautiful!Be encourage and GOD BLESS!!! Delete Comment
thanks for the comment! A chat with the girls is a wonderful idea!Peyhton would love to have someone to talk to, I believe she feels very alone in this! She is home every other weekend (including this one) & that would be the best time for us. Let us know what would work best for you so we can set one up!
btw: u have great taste - you have the same sofa as I do!
I hope you went to www.childrensalopeciaproject.org and registered. You and your daughter are beautiful. Keep positive and remember that self-esteem is the key to doing well, no matter what age you are. Please take care and speak with you later.
I have heard of minoxodil it is basically Rogaine. I went and got some information for you and put it below for you to read about monoxodil. Alopin never heard of it. You dont necessarily need a children's dermatologist just someone who is not experimenting with her. Read below for the information and you should be seeing the dr at least every month to month and a half.
Minoxidil was the first drug approved by the FDA for the treatment of androgenetic alopecia (hair loss). Before that, minoxidil had been used as vasodilator drug prescribed as oral tablet to treat high blood pressure, with side effects that included hair growth and reversal of male baldness. In the 1980s, UpJohn Corporation came out with a topical solution of 2% minoxidil, called Rogaine, for the specific treatment of androgenetic alopecia. Since the 1990s, numerous generic forms of minoxidil have become available to treat hair loss while the oral form is still used to treat high blood pressure.
The popularity hair loss treatment is due to the general preference in the overall population for the cosmetic appearance of a full head of hair. Minoxidil is used to stimulate hair growth in areas of the scalp that have stopped growing hair. As of early 2001, the exact mechanism of action of minoxidil is not known.
I was looking at her pics and she has the nape of the neck and all the edges for the most part which is good.. Those are some of the harder areas to get to grow. I think she just needs a dr to take his time and work with you. Did you get the medicine you were telling me about?
That it will be hard and that your true friends will love you no matter what. People that tease and make fun of other people are really mad because they have something wrong and they don't want anyone to notice so they tease you. Just know that in the end you will be a much better person then they are.
Girl yes my stomach was toe up but when I thought about who left them it was like oh well. I'm calling today as they were closed on Sunday & yesterday. Gma Sarah says the only thing people will turn in is a body and they may not turn that in! I will tell Roy to make her some and send them home. He does them for the cancer babies at the hospital where he is now.
Hey there my beautiful babies! I was in Miami for the funeral (glad that's over) and we got back only to realize T-T walked off and left a bag of new shoes ($67.00!) in the Liberty Mart! At any rate I am so happy to hear about the Bean's new talent. Her daddy was good like that until he got hit with a ball and never went back. I really felt he would have gone to the pro's. Well keep me posted and give the Bean my love. Don't forget...I'll do whatever it takes to make her comfortable (you know I got a ton of wigs :)! )
Thanks for the information. I am going to look into it. Hey I might need it too. I am always sluggish and it is because I have anemia and asthma. Thanks for giving me the information. Jazz added me to her page. I wish it was a way for them to talk. Just know that even if the medicine works it may be a slow process. I pray for all of the kids who are going through this. Maybe when we go to Disney World we can meet up. I know that we are going to go to the conference next year.
Yes, the players name is Charlie Villanueva and he also has Alopecia as well. He was really nice. The meet n greet was only a couple of minutes though, but it was really a confidence booster to her and she was so excited. My local chapter sent the information to me through NAAF. Maybe if you call someone at NAAF they can help you
I brought the shampoo from the merry clinic. I did not think about the capsules. I also brought the Deity of America grease and shampoo and conditioner. So do you plan on buying the stuff from merry clinic?
i did some research on elidel and it is used to supprese the immune system. So that is why they are giving it to her. if you supprese the immune system then you allow it to stop attacking itself is the hope. The protopic has been working so hopefully the elidel continues the job that the protopic and cordran have been doing to make it grow but it is a slow process, but I noticed the foliciles have opened back up and that is a good sign
He told me to use Elidel along with the Cordran. she was on prioptic but it irritated her scalp and she scratched a lot. he said the elidel has the same medicine as prioptic. That is weird they say 4 months. She goes every 4 to 6 weeks. Well most of the time they use some steroid cream that is used for psorsis and eczema too. My mom is a pharmacist so I have her check the ingredients. The specialist in the Dc area seem to do better. I think the hospitals have more funding for research.
I hope the biotin does work for you. I pray for all of us to be strong we need it.
Stay strong and believe that she will be much stronger in the long run for this... Have you thought about a vacuum wig since she wears the hoodie all day
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Tray (Jazz's Mom)'s Comments
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Hey girl...are you geting my emails and the photos and deadline regarding the book? Let me know.
Tell Jazz that I said hello!
Love the photos. I pray that she is starting to look past the hair and seeing just how beautiful she is...
We had a small victory. The doctor said that her inflamation has gone down and that her hair has stop shedding he believes and now we just got to wait for it to grow back. i have been using the deity of america and so that has been thickining her hair up. I have not smiled this much in months... Just had to get that off my chest.
The little one is great! She is staying strong. Tell Jazz I said HI.
TTYL
Hope all is well with you and Jazz.
Cateria said…
I think it's a great that your spreading the word about Alopecia because knowledge is power. I know that the last couples of months have taken a toll but be encouraged their is sunshine after the rain. GOD didn't bring you this far to leave you. I know from experience that it's hard when your baby is hurting and you wish you could make it go away. I know kids can be cruel but keep your head up. GOD created us all different and we are all wonderful masterpiece. Outer beauty fades with time and inter beauty last forever. Jazz your are a beautiful girl and your hair doesn't define who you are. I know kids can be mean but you don't have a problem. They have the problem. Jazz hold your head up and keep smiling because you are and always will be Beautiful!Be encourage and GOD BLESS!!! Delete Comment
All kids with alopecia, stand proud and know that you are no different than any other kid!
Jeff
btw: u have great taste - you have the same sofa as I do!
Jeff Woytovich
Minoxidil was the first drug approved by the FDA for the treatment of androgenetic alopecia (hair loss). Before that, minoxidil had been used as vasodilator drug prescribed as oral tablet to treat high blood pressure, with side effects that included hair growth and reversal of male baldness. In the 1980s, UpJohn Corporation came out with a topical solution of 2% minoxidil, called Rogaine, for the specific treatment of androgenetic alopecia. Since the 1990s, numerous generic forms of minoxidil have become available to treat hair loss while the oral form is still used to treat high blood pressure.
The popularity hair loss treatment is due to the general preference in the overall population for the cosmetic appearance of a full head of hair. Minoxidil is used to stimulate hair growth in areas of the scalp that have stopped growing hair. As of early 2001, the exact mechanism of action of minoxidil is not known.
I was looking at her pics and she has the nape of the neck and all the edges for the most part which is good.. Those are some of the harder areas to get to grow. I think she just needs a dr to take his time and work with you. Did you get the medicine you were telling me about?
That it will be hard and that your true friends will love you no matter what. People that tease and make fun of other people are really mad because they have something wrong and they don't want anyone to notice so they tease you. Just know that in the end you will be a much better person then they are.
Thanks for the information. I am going to look into it. Hey I might need it too. I am always sluggish and it is because I have anemia and asthma. Thanks for giving me the information. Jazz added me to her page. I wish it was a way for them to talk. Just know that even if the medicine works it may be a slow process. I pray for all of the kids who are going through this. Maybe when we go to Disney World we can meet up. I know that we are going to go to the conference next year.
yes,
I brought the shampoo from the merry clinic. I did not think about the capsules. I also brought the Deity of America grease and shampoo and conditioner. So do you plan on buying the stuff from merry clinic?
i did some research on elidel and it is used to supprese the immune system. So that is why they are giving it to her. if you supprese the immune system then you allow it to stop attacking itself is the hope. The protopic has been working so hopefully the elidel continues the job that the protopic and cordran have been doing to make it grow but it is a slow process, but I noticed the foliciles have opened back up and that is a good sign
He told me to use Elidel along with the Cordran. she was on prioptic but it irritated her scalp and she scratched a lot. he said the elidel has the same medicine as prioptic. That is weird they say 4 months. She goes every 4 to 6 weeks. Well most of the time they use some steroid cream that is used for psorsis and eczema too. My mom is a pharmacist so I have her check the ingredients. The specialist in the Dc area seem to do better. I think the hospitals have more funding for research.
I hope the biotin does work for you. I pray for all of us to be strong we need it.
Stay strong and believe that she will be much stronger in the long run for this... Have you thought about a vacuum wig since she wears the hoodie all day
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.