Hi Donna,
Thanks for your reply, I found you on this website.
Yes, the headband wig is absoluetly fantastic. I would recommend getting a tight one so it doesn't move but this depends on you head shape ect...
It looked great, whilst I ran, did weights and worked out onthe step machine.
Cheers
Lisa
Hi Donna,
Thanks for your reply.
I found you right here on Alopecia World.
The headband wig worked really well at the gym, I ran on the treadmill and also went for a run outside, I also did my weights and it worked a treat! My partner came with me and he also commented on how well it stood up to the exercise. I could even put the wig up into a high ponytail, which I must say felt absolutely amazing (especially when you have no hair)
Please feel free to contact me anytime,
Regards,
Lisa
p.s. I just bought another headband wig (yes, I'm addicted to wigs!) :-)
Hi Donna, I would love to attend but I am not quite sure where that park is and have no car.. I am not native to mass, I am here for college.. but thanks for the invite!
At 1:27pm on September 10, 2009, Donna DeHoog said…
Hi Donna....do you have alot of pain with your hypothyroidism? I do! I have been to my acupuncturist twice now....it really seems to help. I also noticed I didnt have as much hair come out in the shower today. He definitely keeps saying that he can help me. We'll see.
At 8:10pm on September 9, 2009, Donna DeHoog said…
Hello Donna!
Very nice to meet you! Yes I am still working as a RN....I work in the cardiovascular intensive care unit and currently looking for a different position. Kinda burned out of the ICU scene. I wish I could tell you about vacuum wigs but I do not know yet. I still have hair but it is quickly reaching the point where I am going to need to make a decision...UGH! I have hypothyroidism and despite my levels being "normal"..my symptoms worsen almost every day. :( I am going to an acupuncturist...he seems to think he can help me....guess we will see. There are lots of folks on here that know all about them. I do hear that they can be very hot though. Are you looking into getting one?
At 10:46pm on September 8, 2009, Donna DeHoog said…
Hi Donna....How are you? Saw your name in the group of Rn's with alopecia. I have been a RN for 6 years now....
How are things going with you?
Did I tell you about the Boston Get-Together? It's actually in Medford. Not sure if thats close to you or not.
I have it posted on the Events page. Have a look.
Hi Donna, thanks for the nice words on my blog about Samantha. She will be getting her 1st haircut in 2 years just before school starts. She is very excited. She has about 95% of her hair back now...Do you know about the New Englang Alopecians United, Inc group here in Ma. They will be planning events and I am sure we will see you then..Cindy
Donna,
I just was diagnosed with scarring alopecia and am beside myself. I am so upset every day... I need to get it together though because I need to still work, we just bought a house here in West Hartford and I have a mortgage now. My boyfriend has been wonderful but I am just so unbelieveably sad every day. I need to talk to someone. It burns and itches every day and the ibubropen i'm using isn't helping. I'm on clobetsol too and had injections from a Dr at NYU. I feel so helpless. If you didn't think it was weird I'd love to talk to you over the phone. I just am so sad and just need to talk to someone else that has gone through this. If you're ok with talking please let me know. My personal email is clbates01@hotmail.com. Thanks.
Hi Donna, thanks so much for your comment. Please also read my blog post about growing up with Alopecia because I think it too will be something you can relate to and I think (and hope) it will encourage you about how hard this journey has been for me but that there is positive outcomes too. I see you mention being sad and angry and that's ok - it's good that you are allowing yourself to feel it. I accept that this is my situation as it is, but I want my own hair back and when the cure if there, I'll be first in line. :)
Hi Donna, I am Cindy and I am in Mass too..My 7 year old daughter has Alopeica and is having regrowth now with treatments. How are you doing? I have helped organize some get togethers in Boston in the last year. We would love to have you join us the next time we plan a lunch in Boston. ..Cindy
Hello and welcome, Donna!
I know how hard alopecia can be; I have had it for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" If you're interested, you can find out more on my page -- and let me know if there's anything else I can do!
LeslieAnn
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Thanks for your reply, I found you on this website.
Yes, the headband wig is absoluetly fantastic. I would recommend getting a tight one so it doesn't move but this depends on you head shape ect...
It looked great, whilst I ran, did weights and worked out onthe step machine.
Cheers
Lisa
Thanks for your reply.
I found you right here on Alopecia World.
The headband wig worked really well at the gym, I ran on the treadmill and also went for a run outside, I also did my weights and it worked a treat! My partner came with me and he also commented on how well it stood up to the exercise. I could even put the wig up into a high ponytail, which I must say felt absolutely amazing (especially when you have no hair)
Please feel free to contact me anytime,
Regards,
Lisa
p.s. I just bought another headband wig (yes, I'm addicted to wigs!) :-)
Very nice to meet you! Yes I am still working as a RN....I work in the cardiovascular intensive care unit and currently looking for a different position. Kinda burned out of the ICU scene. I wish I could tell you about vacuum wigs but I do not know yet. I still have hair but it is quickly reaching the point where I am going to need to make a decision...UGH! I have hypothyroidism and despite my levels being "normal"..my symptoms worsen almost every day. :( I am going to an acupuncturist...he seems to think he can help me....guess we will see. There are lots of folks on here that know all about them. I do hear that they can be very hot though. Are you looking into getting one?
How are things going with you?
Did I tell you about the Boston Get-Together? It's actually in Medford. Not sure if thats close to you or not.
I have it posted on the Events page. Have a look.
Jeffrey
Jeffrey
I just was diagnosed with scarring alopecia and am beside myself. I am so upset every day... I need to get it together though because I need to still work, we just bought a house here in West Hartford and I have a mortgage now. My boyfriend has been wonderful but I am just so unbelieveably sad every day. I need to talk to someone. It burns and itches every day and the ibubropen i'm using isn't helping. I'm on clobetsol too and had injections from a Dr at NYU. I feel so helpless. If you didn't think it was weird I'd love to talk to you over the phone. I just am so sad and just need to talk to someone else that has gone through this. If you're ok with talking please let me know. My personal email is clbates01@hotmail.com. Thanks.
I know how hard alopecia can be; I have had it for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" If you're interested, you can find out more on my page -- and let me know if there's anything else I can do!
LeslieAnn
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.