Maria, Mia's Mom's Comments

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At 8:29pm on October 1, 2009, Cindy said…
Hi Maria, How is school going for Mia?
At 1:43am on August 20, 2009, Tracy and Amanda said…
Hi Maria,
How are you and Mia?
Tracy
At 4:25pm on August 10, 2009, Laura Hudson said…
You tell Mia that I miss her too! It's been so strange seeing ordinary kids when I'm out now - ;-). I'm all alone in being bald again! LOL! Love you guys!
At 6:09pm on August 9, 2009, Georgia Van C said…
Such a pleasure to meet you guys!
Give Mia a big hug from me!
At 5:48am on June 15, 2009, MiNAH said…
my sons in new york on business and he's been telling me to shave off my spars fluffy regrowth for years.
I recently received a freedom wig..suction wig..vacume wig.
My daughter is growing her sons hair in order to donate it for some child with Alopecia.
They can swim in it too.
Although I have gone without hair due to allergies to synthetic wigs..besides, they are way too big for my head.After all, they are really made for people with hair.
Suction wigs are the closest thing to having your own hair...so I'm happy.
I don't shave every day..yet do so when I wish to simply play fancy dress for myself...cause deep down..we still want to see how we look with hair.
At 9:31pm on May 19, 2009, Megan said…
hi Maria,
are you guys going to the alopeciapolooza in philadelphia in aug? we're going and Paige is so excited. let me know if you guys are going. say hi to Mia.
At 7:53pm on February 20, 2009, Cindy said…
Hey Maria, How was your trip to Florida? We got back Wed and then Thurs was Sam's birthday and party. Needless to say I am wiped out for the week. I am trying to plan a trip to Ny in April to see my friends. I will keep you posted if I do. would love to meet up if we can.Let's chat online soon..Cindy
At 12:33pm on February 13, 2009, Justine said…
Hi Maria, of course we remember you! We will definitely be attending the Alopeciapalooza this August. I've already booked our room and I'm really looking forward to it. Will you be attending?
I love the pictures of Mia, there are so adorable. She makes a fantastic Snow White!
Have a wonderful Valentine's Day and I hope to see you in August!
At 5:16pm on February 12, 2009, Kimberly said…
Hi Maria! Nice to meet you. My daughter, Kendall, is also 4 (will be 5 next month). Kendall's alopecia happened very rapidly..we've been dealing w/ this since 10/08. It took a couple of months to overcome the shock before I realized I needed to seek a support group. Have met lots of nice people on AA. How's Mia handling what's happening? I'm surprised how well Kendall has adjusted to being bald, including losing her eyebrows/eyelashes/nose hairs (her hair was past the middle of her back). We have hope that it will all return, but preparing for if it doesn't.
Mia is such a cutie..
At 12:20pm on January 9, 2009, Cindy said…
How is everything going Maria? Did you have your apt yet?
At 7:12pm on December 28, 2008, Megan said…
hi Maria,
how was your Christmas? ours was great. i'm happy to relax a little now. ok, so here's my latest thing. i started the kids on a gluten free diet. it's pretty hard but they seem to be adapting ok. i've read so much about it and bought some books today to better understand how to live without all those foods. i've seen some stories on line of people linking celiac disease with hairloss. who knows? how is mia doing? email me the pictures soon if you can. talk to you soon.
At 9:17pm on December 12, 2008, Cindy said…
Maria, I see you are online..meet me in aim?
At 1:41pm on December 11, 2008, Cindy said…
Maria, I posted some regrowth pics..How are you?
At 8:35am on November 27, 2008, Cindy said…
Thanks Maria..You have a wonderful Thanksgiving too!!
At 7:10pm on October 27, 2008, Cindy said…
How Maria, How are things going with Mia. Are you still doing the Anthrillian?

Cindy
At 8:28pm on October 15, 2008, rj, Co-founder said…
Awesome photos! I certainly wish your family continued joy and success. :-)
At 10:50am on October 15, 2008, Megan said…
hi Maria,
how is Mia doing? Paige is completely bald at this point. her eyebrows had fallen out too. now strange things are happening. her eyebrows are growing back but they are brown. in the past she was extremely blonde with really light eyebrows. then last night while she was sleeping, i was staring at her head with a flash light. weird, i know, but it's the best way to see if there is any growth. her entire head is covered in a layer of fuzz. this is the way it happened last time when it completely grew back. i have no idea if this is growing back for sure, but i have such a feeling of hope right now.
how are things at school for mia? Paige has her school picture friday so that's on my mind. hope all is well.
At 9:54am on October 15, 2008, Cindy said…
Maria, Samantha is not minding the cod liver oil at all..All the reading I have done said it is good for hair and nails as well as lot of other things and it serves as an anti-inflammatory to fight the white blood cells. If you decide to try it get the Carlson's lemon flavor. Sam takes it in a medicine cup. I ordered the lozenges in 5000 mg too..
At 7:19am on October 2, 2008, Cindy said…
HI Maria, you have on tough kid. Have you sat done and talked to her about this treatment being the best thing to try to make her hair grow. We have told Samantha that when her head gets red and itchy her body is telling the bad guys to go away so her hair can grow. Sam is pretty good about treatments, but telling her that seemed to make her happy and distracts her from the irritation. During the hours you put the med on maybe you can do a special activity with Mia to distract her. For Sam when we put the stuff on we usually bake or read a book. It keeps her from touching her head to the let treatment dry. Make the hour a special time with Mia. I wish I had some magical powers. Have you thought about getting her a my-twin doll that has Mia's hair loss. If she likes dolls it may help...Sam has a doll from them, but she is not big into dolls. Have a good day.

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