maria, i am still not well..long story and now I have some involved family issues in Fl and may go back once I am better..cindy

i can barely keep my eyes open..My husband thinks I am nuts because he can't see what I see on Samantha's head. That is some very small, like 1cm porcupine hair stubble. It is in more then one place.Could this be the start or am I just seeing things AGAIN???

Cindy,
feel better next week sounds fine.
maria

Maria, it took about a week...I am going back to bed..Let's chat next week..

Cindy

Hi Maria, I have been in bed since Sun and i am still not feeling better. I have not been online much. Glad you got the stuff in the mail..When do you find out if they will make an exception? talk to you soon..cindy

Maria, I enjoyed our chat last night. Hope to see you there again soon. Christine

Maria, did you hear anything?

log into aim if you want to chat

maria want to chat a few?

Samantha is feeling fine..She took a nice bath this afternoon since she painted herself silly...But, Sat I had a soak her head in the tub she was so uncomfortable. This happened one time before, but I know she touched because her hand had the rash...I will just put the cream on and see how it goes...Children with hair loss was quick to respond to me when I first applied online. I got the wig in a few days..I have been waiting for a replacement which has been annoying. I am going to take what I can get for free and see what works best for her. I am very excited about hair club for men. I plan to call tomorrow to see if we can get a Sat apt. Once we have the consult we will see if we want to proceed..Chat with you Wed , 9ish?

Maria, I got more information on Hair club for Men. They give kids age 6-17 yrs free hair pieces and they are taped with a heavy tape. About once a wig the tape needs to be changed and you get a new wig every 4 months. I am going to set up the consult apt. My concern initially was it being glued on so we could not do treatment, but that is not the case..I am also working with children with hair loss..They never sent me a new wig in the right size and color..I talked to them today and working on that too..We should have some good options come Aug for the new school year.

Right now, I am bit stressed. Samantha had a strong reaction to this past application and I don't know why. She must of touched and I don't know how she did. She has not worn her wig since Sat pm. She had a really bad rash and it spread to the side of her face. It looked better at bedtime and she woke up with blotchness..On Fri I am going to put it on the back of her head and see what happens. If she gets red spots on the face I will need to call the doctor next Mon..I am going to Fl for a week next Tues...Maybe we can catch up later this week..Maybe Wed night? Let me know..
Cindy

Maria, how are you? Happy Alopecia Day!!!!!! Let's pick a night to chat..

Cindy

Maria

Thank you for the words of encouragement that means alot, I hate that Mia has been through this as well but i am glad i am not the only one and it is nice to talk to someone who actually understands how i feel. I dont even think my husband understand how it feels to have her say such things...Lately she is stared to shy away from things she usually loves to do, I am trying to keep her into everything but she is starting to have a hard time and i dont know what to do....Any advise please let me know...Thank you Maria

Maria, if I know you will pop on I will come...Sometimes I pop in and the room is empty...So, I will look for you at 9ish...I am glad you felt better last week..Cindy

Hey Maria, I will try to pop on later tonight around 9 when Sam is in bed...Or pick a night anytime after 8:30.I have to say that I am a bit down about things...Cindy

Maria, How are things going? Maybe we can meet in the chat room one night this week..I also forgot to tell you that another mom told me about an organization that gives hat to kids who have lost their hair. Samantha not only received hats, but a build-a-bear..Here is the linkhttp://www.heavenlyhats.com..

take care,Cindy

Hi Maria, your children are beautiful. My daughter is also 4 and diagnosed with AA.. thought we could keep in touch and help eachother out through the ups and downs. Cheers. - Lori

Maria, are you feeling better about things now? Email anytime you want to chat...Tomorrow will be a better day!!! Cindy

Maria, at the top of the page where it gives options (ex: my page, forums, etc) there is a link that says chat...once there, is says type in name and you hit enter and get into the room. Cindy