Shannon's Comments

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At 8:27pm on June 6, 2008, Salmezan said…
Well good on ya for having your eyebrows and lashes! You're really lucky to have them back. I have to draw my eyebrows everyday and check on them now and then to see if it fades. A bit tedious if u ask me but what to do :)

I get my scarves here in Brunei, we have loads! Plus they are really cheap here. I used to buy them at Tie Rack (whenever I go overseas) I'm not sure if you have it in the states though. I used to buy mine at London, Kuala Lumpur and Montreal, Canada.
At 5:57pm on June 6, 2008, François said…
Wow !
What a beautiful woman you are & you look so healthy.

François
At 4:18pm on June 6, 2008, Zoey said…
You are soo beautiful!!!!
I love your pictures!!!

Zoey~
At 3:35am on June 6, 2008, Kate said…
Wow Shannon, you look amazing! I am just starting to get used to being bald or with wig, as back in January I had a full head of my own hair...and by March I had AU! Ooops!
You are so pretty though and you have such lovely children - gorgeous family! Hope to be like you someday but the wig wearing and bladness does take a wee bit of gettign used to! I'm enjoying it though! I have spend many summer in Utah - downhill moutain biking with my Dad! Love it! xxx
At 2:38am on June 6, 2008, Salmezan said…
Hi Shannon, you are gorgeous yourself. I think you look better bald then with a wig on. Don't you just hate it when people think the reason you don't have hair on your head is cos you are undergoing chemo? Do you have AA or AU?

By the way, your children are beautiful!~
At 5:13am on June 1, 2008, gerald said…
You are gorgeous!
I love your look in a feminine headscarf, or your bald look, with earrings!
My wife is also bald and beautiful with alopecia universalis. I like her in her headscarves and her bald look.
To me, women are often more beautiful bald than with hair. You can really see an attractive lady's feminine features when she is bald.
At 12:50am on May 29, 2008, Jenn said…
Lots of places. I have been to Robert's for quite a few and, I agree, the owner is an angel! I just read your blog (I feel kind of like a vouyer), how wonderful. I downloaded the song, about not being defined by my hair. What an inspiration! I will get some pics of me in my various head dresses and of my family.
At 12:30am on May 29, 2008, Jenn said…
All mine are synthetic. They hold up great and are way easy to take care of.
At 12:12am on May 29, 2008, Jenn said…
Yea! It is a great site, I am happy to be a part of awareness and association. Your pics are great! I am happy to see that you found some wigs that you like. What kind is the short bob? Way cute!! I loved the pic with your dad and that you have necklaces that match your scarves.
At 1:26pm on May 14, 2008, jennifer said…
Wow! you have been through alot! i understand why now you are not interested in seeking any kind of treatment. You seem like you are a very strong person. your story inspires me and gives me strength!

i hope to keep in touch with you and maybe one day we could meet? where do you live again?
At 12:45am on May 13, 2008, jennifer said…
my computer is getting ready to run out. i will write you tomorrow. but i have the same wig as you! :) the short one in your first pick, but mine has bangs. the katie holms look. ;)
At 12:18am on May 13, 2008, jennifer said…
yes, i think we want to get prego soon. our son is 21 months and he keeps us very busy. but i think he needs a sibling. i think just one more. i am not sure i could handle anymore! ;) so have did you do any treatments ever? or just let nature take over? by the way, i love the last pic you have. who is that in the pic with you? so moving that photo is!
At 11:03pm on May 12, 2008, jennifer said…
so how old are your children? the reason i am asking is because i lost all my hair after i had our first child. i think i started losing it around 4 or 5 months after he was born. i believe my pregnancy triggered my alopecia since i never had alopecia before in my life. i think hormones played a role in m y case. anyway, i think it's wild that your hair came back with each pregnancy. and then it got patchy and then came back again. did you ever do any treatments when it got patchy? you asked how i was accepting it, i have accepted it now. but i fear i may regrow it if i get pregnant and then lose it again and experience the depression all over again. have you known anyone who had regrowth during pregnancy and then it stayed?
At 11:12pm on May 9, 2008, jennifer said…
hey shannon,
i love all of your pics! question: when you were pregnant, did your hair grow back? also, i have au too and i am thinking of getting eyebrows tatooed and eyeliner. did you get that done and are you happy you did?
At 7:14am on May 9, 2008, Susan said…
$125 is not bad, it should last awhile being that short, dont you think? Anyway, if you like it and its comfy, its worth every penny. :)
At 8:53pm on May 8, 2008, Susan said…
Thanks for the info! Your right, braids and a bandana would be good.
Everyone might wonder why I have a bandana on, but who cares. I had skin cancer on my scalp and had to have surgery back in 2003 so I really shouldnt be in the sun without a hat or something anyway.

How much did you pay for the cute short wig that is in your pictures if you dont mind me asking?
At 5:36pm on May 8, 2008, Susan said…
Thanks for writing me back!! I think I will go to a wig shop and just look at the short wigs. I tried on long ones before and I dont know, they just didnt appear real. Almost seemed like too much hair, ya know? I need a new style anyway. Do you find that it stays on pretty easy? Is there anything you cant do while wearing it? I like to work out, so I wonder if that would work? Anyway, if you go to the lake or beach or near water, what kind of headcovering do you wear because I dont want people to see my hiar wet as it is very thin, but I dont want to miss out either. I didnt get in the ocean last year ans I miss playing with my boys.
At 1:02pm on May 8, 2008, Susan said…
Shannon-
Your wig looks adorable!!! I swear I would never know it wasnt real. So, tell me, is it human hair or synthetic? AND, where did you get it?
Im going to the beach this summer and to the mountains and Im trying to explore my options if my hair gets any worse. I am TRULY thinking of trying a shorter cut and it I cant mask the hairloss, then Im going to get a short wig, kinda like yours, but with shorter bangs.
At 8:38am on April 29, 2008, Katherine Green said…
Hey,hey Shannon,

I love your new wig, enjoy it,ok

Cheers & hugs


Katherine.x
At 9:01pm on April 28, 2008, Diane said…
Hi Shannon,
Yes, my girls are from China. I wish I could adopt again but so many things have changed in China.... and Haiti also I think (well, at least here, in Canada).... I can not believe it... here I am, speaking about adoption again!!! :)) I've registered on this social network to discuss alopecia...I'm incorrigible!

Tell me, are you going to Louiseville? I'll go for the 1st time and I'm very excited about it!
Diane

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