hi again christine, i forgot to ask you, do you have the link for Sami Ashkenazi / children with alopecia? Is this in facebook? thanks!

Hi Christine & Kyler -- thank you for getting back to me. I will pass on the message to our Toronto support group leader. Many thanks & again, all the best to you & Kyler with the new treatment. Too cute how Kyler loves the smell of the shampoo! -- Jennifer & Joaquin

Best of luck to you, Christine & Kyler! We'll pray for you! By the way, if it's on the label, will you kindly give me the ingredients of the cream? Our support group leader here in Toronto is very interested & would like to do further research on it. Many thanks!

Hallo Christine, I am very interested with the Dr Shmuel Gonen treatment, but I can not find anything on his webside what this treatment is about, please can you explain my more, so if I like it I can get in contact with Dr Shmuel Gonen. Did you or you know someone who try ThymuSkin, I hear from a mother of a girl with AA that her dauthers hair grow back since she use Thymuskin ??!! Please let me know, thanks Sabine. And good luck for your cutie!!!

no thats not the street name.. i dunno why I cant remember that! Grr!!! Anyways we are off to the carnival now but will call you today sometime!

yeah i know where it is, my mom lives there on um... gawd I cannot even remember the street name. Starts with a G. Near the McDonalds and gas station, safeway area...

I will start sending ot ur email! And i will give you a call this weekend sometime, will let you know about the teddy bears picnic.

Hrmm Sundya seems like we have something planned ubt I have NO IDEA what it is??? i will let you know, I didnt know that was this weekend!!!1

Anyways, how about I email or call you sometime soon and we can get together to make some flyers etc??? Where abouts do you live?

Awesome! hey we are going to the carnival at McPhillips and Jarvis on Saturdya, do you want to meet us there? It could be fun! I also have a 2 year old!

I have left my support group information with Evelyn from Evelyns Wigs and she sent it out to all dermatologists offices and have had NO replies for it ! Dr Silver (Britts derm) said that there are kids with it here win Winnipeg but because of the priovacy act he cannot give out their info, I gave my permission written and told him he can give it to them, and heard nothing. Susan Rykis, had Alopecia when she was 12, said she would do a write up in that wpg parent paper and i saw nothing (then again I cant find Mays paper) and have had no replies. I have an email for the group alopeciaisbeauty@live.ca and have no one write anything. So frustrating!!!

I think I am going to make up flyers and stick them around town, in Derm offices etc. Wanna help? my printer doesnt work so if you want to help we can work together? im home all day every day!

Thx for your comments :) Kyler is adorable! And props to you as his mother trying to get awareness for children with Alopecia, if I lived closer, I would certainly off my help! I hope him playing out in the sun doesn't get worse, it really is an annoyance, and with Kyler being so young, there's no way he is going to want to stayed cooped up in the house. Keep in touch!

What? I just emailed them a few months ago asking them to do a segment and let me know and they never said a word. Weird! I missed the show though! Too bad :( We should meet and let our kids meet, even though they are different ages with AA still.. ya know?

THat's awesome. I'll be sure to be watching!

Hey Christine,
Thanks for the posts. The tv interview is awesome!!! Let me know how it goes. Sorry for not calling we are in the midst of various mother's day stuff so I'll call you this week and hopefully will be able to get together. Hope things are getting better for you and Kyler.

That's odd. You would think that people would be less observant in a boy..thinking you shaved his head for summer..
I am not going to worry about people looking at her. She has to wear a hat but if she takes it off inside I wont' freak on her. I plan on telling them what's wrong it they ask. If not..the TS on them.
I have always been OFFENSIVE rather than DEFENSIVE...hee hee hee
Kidding...just be as protective as possible without being rude. I gather we'll be exhausted by the time we get home but hey...what's the big deal?
Ok..we have to run to dinner
Chat later!!

BTE....I am on Facebook...Schaffrath

Hi Christine
I too am a Winnipeger. I have alopecia not my kids but I totally understand your emotions. My diagnosis was this past February. I would be happy to get together with you guys if you would like.