Thank you so much for being there for me as I am for you Julie..I have read some of your postings and understand that it has been a long journey..I am too going through alot right now and trying to stay positive in hopes that some of this will resolve..The most important thing is to stay strong and focused for me to finish school, but it is hard...xoxo
Hi Julie, You know what, I feel the same way.By the way were on the same age and I'm also a Filipina. I don't know if its a good thing, because of course I don't want anyone to undergo the same suffering and hardship that I have encounter. But you don't have to worry, always remember you are not alone... we are here for you!.And I'm still looking for someone in our country who has the same condition as I am.But sad to say I haven't found anyone yet.Good thing we have this site, where we can ask for some advice and for us not to feel that we are not alone.By the way I just turned 26 this month and I was diagnosed with alopecia areata when I was 10 yrs. old. So it was really painful on my behalf because I just keep it to myself. But I'm still proud of my self because I overcome all of it. Even if it affect my self confidence and self-esteem I can say proudly to anyone that I have achieve something unlike others who don't have AU but didn't achieve anything. And by the way I undergo I think anything that you can think off about medication and years had pass I have some improvements, my hair starts to grow again. And it was the happiest time of my life . But I didn't know that it will happen again. Because after 7 years I think, it starts all over again.From Alopecia Areata now I have Alopecia Universalis. I was really mad and sad. I said oh N0!!! NOT AGAIN PLEAAASSEE! I really pity myself, I cry most of the time because it was more complicated now rather than back then. It is more painful physically, mentally and socially but I just stay strong. And that is my only advice that I can give you. TO BE STRONG!!! I know we can do it... if they can I'm sure we can do it also. Even though I still have doubts with myself, I still continue to live my life for my family. Because I still want to achieve more. Hope to hear from you soon! Godbless :)
Just checkin in to see how you are doing .. also I don't know if it is too much of a shlep but there will be an Alopecia support meeting this Monday night at 7:30. I am posting the info in the Alopecian in NYC group if you can make it. It's the second monday of every month.
Speak to you soon
At 1:51am on September 11, 2010, kaitlin lavin said…
Oh wow, yes River Edge is extremely close! Aww, thanks for that.. Soo sweet! I'm glad my pictures are inspirational.. Definitely worth it (:
You should go to Jean Phillipe for a photo shoot in NEW YORK. He will make you see your beauty. Check him out on facebook. He will tell you to shave it off, cause you are adorable.
Hey! I am doing fine and you? I have been traveling around a bit this summer and seeing family and friends so that puts me in a good mood! How is everything going with the aa? is the prescription working?
Hi Julie, I took prednisone and my beard grew back. Doctor told me not to smoke when taking the steriod and I just could not quit at the time. Well, you seem to be doing all the right things and I really wish you success. Just a matter of patience.
Galvin
Thank you! If only I weren't too lazy to do it more often haha. Some plus sides to Alopecia = not having to wait for your hair to dry after a shower + easily getting to curl/straighten the back of your hair yourself! (Always gotta look on the bright side, right?)
Hey ... The first time you have to style it yourself is always the hardest but you will get the hang of it. Do you have a head that stays put to style on? That makes a big difference. I have learned a few tricks of the trade which I could show you one day if you wanted to have a hair party lol
I bought my rollers from Ricky's NYC. They just have good deals but you may have a beauty supply shop closer to home that is good. I swear you will think you have gone to beauty school once you set yourself up.
Julie, go to the web site for the National Alopecia Areata Foundation (www.naaf.org) and there you can look up support groups by city!
Let me know how you do.
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Stopped in to say hello!
Jeffrey
Hope it was a wonderful day! :)
Heather
Just checkin in to see how you are doing .. also I don't know if it is too much of a shlep but there will be an Alopecia support meeting this Monday night at 7:30. I am posting the info in the Alopecian in NYC group if you can make it. It's the second monday of every month.
Speak to you soon
Galvin
I bought my rollers from Ricky's NYC. They just have good deals but you may have a beauty supply shop closer to home that is good. I swear you will think you have gone to beauty school once you set yourself up.
Let me know how you do.
How are you today? Please let me know if I can help.
LeslieAnn
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.