Hi Kimberly,
Sorry for the delay in replying to your questions, I haven't had much time to get on here over the last week.
Sorry that your having to deal with Alopecia too. It can be scary and frustrating but it will get easier with time. Its great that we can come on here and share our experiences with others that know how we feel.
My Vacuum wigs are a custom fitted prosthesis made by Freedom Wigs here in New Zealand, They are made up of a soft, permeable silicone cap tinted to match your skin colour and fitted to your mould. This exact fit creates the suction effect that will stay put even very strong wind. The hair is unprocessed and high quality. You can swim, shower, ski (water or snow)and exercise without the worry of it falling off. If looked after they last very well, the one I wear most of the time is now over 4 years old and it has had one repair done back in late 2006. You do have to be totally bald for this type of wig otherwise the suction effect will not work properly. The cost of these wigs will depend on where you live (the exchange rates are always changing), it would be best to ask the company or one of their representitives.
If there is anything else I can help with feel free to ask.
Take care
Cheryl
I have had AU since I was five. AU is loss of hair all over the body. I have never shaved my legs ever my whole life. I do have light underarm and pubic hair after I became a woman. AT (totalis) = is all the hair is gone from your head. I did grow back my hair for 9 months long enough for prom and they are in picture thing her. I have always worn a wig. I love ponytails and which I could wear one. I like the way they bounce and look. Never had one though as long as I can remember. I don't know what I would do now if I did grow hair except for that 9 months I had it I loved people brushing my hair that was the most wonderful feeling in the world. You are very beautiful your insides stay the same you will always be that way. I can say if you get to where you have to buy wigs the www.tlcdirect.org it is affiliated with American Cancer Society and they have a good selection of wigs in every size. I have a Petite head and it looks like you would have as well. Also if you every had to get a wig. Don't go too cheep. $125.00 and up is good. Sometimes less if on sell. But the cheap ones you have to be careful about. I go through about 4-6 wigs a year of synthetic manmade fibers. I am spoiled because the come styled and I just brush before I go to bed and wake up in the morning and put on. There is a place that sells wigs that you put you hair though them when you are thinning www.beautytrends.com. Also if you lose facial hair I just got tatooes eyeliner and eyebrows and I love it. It is worth the extra pain. I don't have to get up and draw my eyebrows and worry about them wiping of halfway or whatever (because you know no one will tell you hardly). The more natural you and feel in a hair piece the less poeople notice. Some people compliment me on my beautiful hair.
Well I better go for now.
Talk soon, Paula
kimberley, aa is alopecia areata which is patchy hairloss on the scalp.
at is alopecia totalis which is total hairloss on scalp.
au is alopecia universalis which is total hairloss all over the body...... hope that has helped you out claire.....
Yes, I have been learning about this quickly, as my hair was falling out rapidly. Check out my blog. I have been keeping track of what this experience has been like and information I have found helpful. Feel free to ask me anything too and I can share what (little) I know too ;) Take care!
Nice to meet you. We have a few things in common we love our jobs. government and we both love to workout. I work out at the gym and I am training for a half marathon. I hear North Carolina is pretty hopefully I will see it some day. Well I better go for now. Take care, Paula
Hi Marion, welcome to alopecia world! You're defenitly very beautiful, and you wil still be, with or without hair. I had the same feeling, when i wanted to know why and the doctors don't even care, and they really didn't care.
I know what you are feeling right now. I can't tell you what you have to do now, but for me, once all the hair came out and i just continue with my life, I've beeing very calm less worries. I bought a nice wig, even my eyebrows fall, and i tatoo them. Maybe some people know, may be not, but I don't care, and everybody has been very nice to me as i'm sure everybody is going to be with you!
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.
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Sorry for the delay in replying to your questions, I haven't had much time to get on here over the last week.
Sorry that your having to deal with Alopecia too. It can be scary and frustrating but it will get easier with time. Its great that we can come on here and share our experiences with others that know how we feel.
My Vacuum wigs are a custom fitted prosthesis made by Freedom Wigs here in New Zealand, They are made up of a soft, permeable silicone cap tinted to match your skin colour and fitted to your mould. This exact fit creates the suction effect that will stay put even very strong wind. The hair is unprocessed and high quality. You can swim, shower, ski (water or snow)and exercise without the worry of it falling off. If looked after they last very well, the one I wear most of the time is now over 4 years old and it has had one repair done back in late 2006. You do have to be totally bald for this type of wig otherwise the suction effect will not work properly. The cost of these wigs will depend on where you live (the exchange rates are always changing), it would be best to ask the company or one of their representitives.
If there is anything else I can help with feel free to ask.
Take care
Cheryl
Well I better go for now.
Talk soon, Paula
at is alopecia totalis which is total hairloss on scalp.
au is alopecia universalis which is total hairloss all over the body...... hope that has helped you out claire.....
You are never alone! We are all here all the time and we all know how you feel! Welcome to 1000s of normal people exactly like....YOU!
Welcome to Alopecia World.
Jeff
Nice to meet you. We have a few things in common we love our jobs. government and we both love to workout. I work out at the gym and I am training for a half marathon. I hear North Carolina is pretty hopefully I will see it some day. Well I better go for now. Take care, Paula
Please let me know how else I can help.
LeslieAnn
I know what you are feeling right now. I can't tell you what you have to do now, but for me, once all the hair came out and i just continue with my life, I've beeing very calm less worries. I bought a nice wig, even my eyebrows fall, and i tatoo them. Maybe some people know, may be not, but I don't care, and everybody has been very nice to me as i'm sure everybody is going to be with you!
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.