Hey Jenn
Just checking to see if you are having a better day! I know the ups and downs that come with this disease! Hope things are going better for you.

Thanks for the firend request and the nice comment I was going to tell you before ,but didn't ."You remind me of Nathalie Portman" What a smile :) xox

Hi Jenn I love your pics you, are absolutely gorgeous I recently went through what you going through. It's hard,but shaving my hair for me was getting rid of the problem of loosing it. Of course other problems arise ,but they're within YOUR control Can't wait to see new pics
Take Care

Hi Jenn,
You would contact Karen Peterik. She lives in Chicago and handles your area. Her phone number is 630-887-7083. Her website is www.newlifehair.com
She's great!!

hi jenn! thanks for adding me as a friend. it looks like we have a lot in common.
i loved your photos. you are beautiful and your family is darling. i look forward to getting to know you better.

happy shopping jenn! you should take pictures and post them if you get something. and i'm with your daughter - go pink!

Hii Jenn !! thank you for being your friend =) !! How are you doing ?? Just want to stop and say "helllooo" to all family ^^!!

I'm doing good thanks. I hope your results turn out ok. But on the other hand maybe that is the problem and it can be fixed. I actually got my results through a trichologist. I am taking natural supplements and I have seen a little improvement. I had a spot starting in January before I started taking them, I started them in Feb and that spot is gone now. Coincidence? I don't know. I have several other very large spots that I haven't noticed anything but some small white hairs. I have noticed some eyelashes returning also. I'm very excited about it though. Just yesterday I purchased some X-Fusion hair fibers, that you sprinkle on your hair to help cover and make your hair look fuller. I love it so far. I'm holding off on other alternatives for now. I will give this a try for a while. I have also noticed not as much hair falling out when I wash or brush it. Check out the website for X-fusion hair fibers. See what you think. Hope that helped a little, please keep me posted with your findings. Good luck to you.

Jenn,
After reading your profile I noticed you said that you are having diffuse loss. The same thing is happening with my daughter, Genevieve, 6yrs. She started out with one spot at the beginning of Dec. and now has about 7-8 spots all over her head. We use wide headbands to cover it, but her loss is pretty diffuse and she still has a lot of hair. I have been trying to get some information from others that seem to have more of the diffuse loss because it doesn't seem to be the more common type. I struggle everyday with seeing Genevieve's hair fall out. I hate it. I can only imagine how much you hate losing your own hair in this way. What type of prognosis did your dr. give you--or is it still too early to tell?

Melani

Thanks for getting back to me. Talking to you helped me confirm my decision about stopping the use of that cream...although I prefer it over the injections...for the reasons we discussed...I decided to let my body do what it needs to do, naturally. Since I made that decision...I have noticed more hair..shocked! I don't get my hopes up though...I don't think I'll ever fully trust that my hair will stay around...but I don't want to stress over it either. I believe that stress is one of the biggest factors in this condition...but I will "rise above it"....I have had to stop and assess my life - similar to the way you have. This has changed my life, and it's up to me if I make it a good change or a negative one...I choose positivity...all the way!!I once thought...I won't let anyone get in my way of happiness...no man or woman would ever take that from me... so why am I letting my hair do it? It's all up to me...isn't that exciting to know that we all hold the key to our own happiness??? I'm thrilled!!
I hope you have a terrific day Jenn!

Hi Jenn,
It was so great to speak with you yesterday. I hung up the phone feeling very enlightened. You are the first person I have talked to that is going through this. Us talking yesterday, helped me realize that I am really not alone in this and that all the feelings I have seem to be completely normal. Once again, thank you for your compliaments...even if I don't always believe them...ha ha ha. You know what I mean! Last night I was looking on my head...and noticed the second patch on my head has hair growing in it...woohoo. It's much finer than my normal hair...but I'll take it.
So...if they say that it can take 3-6 months for regrowth...I seem to be falling right into that. I feel for your situation...perhaps this was sent to you as a wake up call...Did you take some time out for yourself last night? I ended up washing my face in peace...lol...and went to bed. How exciting is my life eh??
I hope you have an amazing day!

WELL HELLO..MELTDOWN HUH? YEAH I HAVE THOSE DAYS!! WELL THINGS HERE ARE OK I GUESS.MY SON MADE ME LAUGH THE OTHER DAY HE SAID MOMMY DONT WORRY ABOUT YOUR HAIR IT WILL BE OK...AND I SAID IT WILL HE SADI YES MOM YOU WILL HAVE A WHOLE MUCH HAIR WHEN YOU GET BIGGER..LOL. THOSE LIL MOMMENTS GOTTA LUV EM. WELL AS FOR AN UPDATE...I WENT TO THE DERMO..I THINK I TOLD YOU SHE GAVE ME SOME MOUSE (STEROID) THAT I RUBB ON THE SPOT AS I LIKE TO CALL THEM AND YOU DO IT FOR 2 WEEKS ON AND THEN ONE WEEK OFF TILL YOU GET THE RESULTS YOU WANT..(I AM THINKING AS SHE IS TELLING EM THIS THE RESULT I WANT....LOL..I WANT A CURE ..I WANT NOT TO HAVE THIS DISORDER...SO THE RESULTI WANT REALLY I CANT GET). MY MOM AND HUBBY HAVE BEEN SOOO SUPPORTIVE THEY HAVE BEEN TRYING TO MAKE THIS EASY ON ME BUT I THINK ITS ALL IN MY HEAD YOU KNOW..I MEAN I KNOW HAIR COMES AND GOES AND YES THERE ARE WAYS OF DEALING AND COVERING IT UP BUT ME BEING A CONTROL FREAK I THINK IT IS THE UNPREDICTABLITY OF THIS THAT IS DRIVING ME CRAZY. I AM JUST TRYING TO COPE EVERYDAY IS DIFFERENT...BUT IT HELPS TO KNOW I AM NOT THE ONLY ONE MELTING DOWN OVER THIS.. YOUKNOW WHATS CRAZY THEY SAY THIS IT PREVOKED BY STRESS..AND NOT TO STRESS AS MUCH IS REALLY THE ONLY THING THAT HELPS THIS DISORDER BUT HELLO LOSSING YOUR HAIR IS STRESSFUL AND EMOTIONAL...LOL. THIS DISORDER IS JUST ONE BIG CONTRADICTION...LOL. IT HELPS TO PLAY WITH MY KIDDOS AND OF COURSE NOT TO LOOK IN THE MIRROR. BUT HEY WE ARE ONLY HUMAN SO A MELTDOWN HERE AND THERE IS NORMAL..ONLY FOR US IT COSTS OUR HAIR. WELL IWISH YOU THE BEST IN DEALING WITH THIS AND I HOPE YOUR FAM IS AS SUPPORTIVE AS MINE AND HEY KEEP YOUR HEAD UP YOUR NOT ALON...AFTER ALL I AM HERE..:). HEY AND THANKS FOR CHECKING IN ON ME..IT MEANS ALOT! I HOPE YOU HAVE A BETTER DAY TODAY..DAM HORMONES!!!LOL. TAKE CARE AND PLEASE KEEP IN TOUCH.

I am so sorry you had such a bad day! I am now trying to figure out when these flare ups occur. I had about an inch of hair, but then I got a flare up and i lost it all. It lasted about 2 weeks now I have little hairs growing again. Go figure. I hope tomorrow's a better day. I'm always here for you!!

Welcome Jenn!! As a fellow teacher, it was very hard at times to stand up in front of a classroom and teach. I have 7th graders so they are definitely not the nicest. I've had spots that I was able to hide for the most part, but last summer this condition got the best of me. I now have to wear a wig(which I call wigilicious ) and while I am coping with that I do miss having "bad hair days" My co-workers know, but I didn't tell my students though I'm sure they know--no hair at the end of the school year then I start this year with a full head of hair. I know this is a hard condition to have, I go through times when I think I can accept it to moments when I get so mad, depressed. If you ever need anyone to talk to or vent I'm here!! Good luck and take care. Stephanie

My email is tfisherthegreat@hotmail.com or alopeciaisbeauty@live.ca

Huby has the van during the week butmaybe some weekend soon! Look forward to meeting you!

Where abotus do you live? I live in the Maples, on Blechner Dr.

Well thats good to know!! It seems as though she is as ther is no support, however Im trying to form a group so it will be nice to meet others I just hope there are other children out there so Brittany can have kids her age around her. We should meet, I'm sure it would be comforting for her to meet ANYONE with Alopecia anyways!

Thanks for the comment. You have a beautiful family!

Hi Jenn...I see you're online...Wanna chat?