It's so great to hear that you will accept whatever happens to your hair. You will still be you. You will do just fine no matter what the outcome, I'm sure! I'll be thinking of you. Take care, cool lady. Sarah
yeah...counting will just get you down even more:(
it spreads so fast too!
like i had all of my hair one month and the next 2 weeks I was pretty bald:(
it was so hard but its been 3 years now so i'm pretty used to it....so are your spots getting alot bigger then they were before?
Yea.. in December I had a weird size of a golf ball thing growing out of the side of my head.. One day I was massaging my head and felt weird lump.. Well... I thought the worst.. Cause I always freak out.. Turns out its only a small sist that does not need to be removed....
But, if you can imagine. I have a huge indent in the back top of my head. now off to the side I have a golf ball size round thing sticking out of my head!! lol
You gotta just laugh about it.. I look like a mess... lol
oh im sorry to hear that!
i was so ready to try those injection treatments but then my doctor told me they are not 100% and they have alot of side effects and are VERY painful!
but my hair did start growing back naturally:) which is an amazing feeling.
but I am SO scared it's going to fall out again! Like 1 year ago I had some re growth and it fell out which was just horrible...so I'm really nervous about it but I guess I should just celebrate what i have right now right :D
you have alopecia areata is that right?
Well, my dent is pretty huge. Its about 3 inch circle. Its towards the back of the top of my head.
I don't want to scare you, because they say everyone is different.
If its working for you.. Please dont stop.. Just think hair will cover the dents :)
Hi Many,
Thanks for the friend request! So how are you feeling right now about having AA? I know that we all go through different stages of grief over losing our hair. It's tough, I know. So just let yourself feel your emotions. Don't supress and try to live in denial, and also try not to obsess over it. It seems like you're doing a good job of it so far. Take care :) Sarah
HI Mandy,
Welcome to the AA club! I have universalis. I am thinking you might want to read my new book, "If Your Hair Falls Out, Keep Dancing!" It's a great read, and you can find out more about it by going to my page, and you can order it at www.leslieannbutler.npauthors.com. Let me know what you think!
LeslieAnn
Hey mandi!
You have loads of hair stil!! Don't get too obsessed with counting and checking out your spots every day. I know its hard not to becuase you it's impossible to ignore it, but make sure to pay attention and focus on the positive things in your life too. Sometimes i think that the more i focussed and worried about my alopecia, the worse it became. I've decided to continue the shots too and i think that i will keep on doing them until the dermatologist tells me to stop them. We kind of have opposite spots; i can't wear my hair in a pony tail, but i can wear it down. You're really brave! I've never shaved my head before. I have a hairpiece that clips into my exisiting hair and makes it look really full on the top of my head (it's not a wig though) I also own about a gazillion hats. They're so easy. I'm glad there are so many options. Well i'll talk to you soon ya big baboon! Hope the shots go okay which i know they will.
looove zoe
Mandy, Well Just so you know, your pics were helpful to my daughter, last night she was feeling a bit down, nervous about a school trip and we talked about Alpecia World. It really helps her to SEE others like her and we talked about how you in particular are brave and open about AA. It really is helpful for her to her.
Thanks, Amy
AA is a funny thing. The hair falls out, the hair might grow back, then it might fall out again. OK, so it seems to fall out over night but takes forever to grow back.
Thanks for your comment Mandy. I read your story and really love it when you say that we are the chosen ones cause we're strong. I've written that phrase on a piece of paper and hang it in my room. It really helps! Thanks for you brilliant quote
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Everything is going to be okay with you.. Ans this wonderful website is so helpful! I wish I had it ten years ago...
it spreads so fast too!
like i had all of my hair one month and the next 2 weeks I was pretty bald:(
it was so hard but its been 3 years now so i'm pretty used to it....so are your spots getting alot bigger then they were before?
But, if you can imagine. I have a huge indent in the back top of my head. now off to the side I have a golf ball size round thing sticking out of my head!! lol
You gotta just laugh about it.. I look like a mess... lol
i was so ready to try those injection treatments but then my doctor told me they are not 100% and they have alot of side effects and are VERY painful!
but my hair did start growing back naturally:) which is an amazing feeling.
but I am SO scared it's going to fall out again! Like 1 year ago I had some re growth and it fell out which was just horrible...so I'm really nervous about it but I guess I should just celebrate what i have right now right :D
you have alopecia areata is that right?
I don't want to scare you, because they say everyone is different.
If its working for you.. Please dont stop.. Just think hair will cover the dents :)
how are you doing?
Thanks for the friend request! So how are you feeling right now about having AA? I know that we all go through different stages of grief over losing our hair. It's tough, I know. So just let yourself feel your emotions. Don't supress and try to live in denial, and also try not to obsess over it. It seems like you're doing a good job of it so far. Take care :) Sarah
Welcome to the AA club! I have universalis. I am thinking you might want to read my new book, "If Your Hair Falls Out, Keep Dancing!" It's a great read, and you can find out more about it by going to my page, and you can order it at www.leslieannbutler.npauthors.com. Let me know what you think!
LeslieAnn
You have loads of hair stil!! Don't get too obsessed with counting and checking out your spots every day. I know its hard not to becuase you it's impossible to ignore it, but make sure to pay attention and focus on the positive things in your life too. Sometimes i think that the more i focussed and worried about my alopecia, the worse it became. I've decided to continue the shots too and i think that i will keep on doing them until the dermatologist tells me to stop them. We kind of have opposite spots; i can't wear my hair in a pony tail, but i can wear it down. You're really brave! I've never shaved my head before. I have a hairpiece that clips into my exisiting hair and makes it look really full on the top of my head (it's not a wig though) I also own about a gazillion hats. They're so easy. I'm glad there are so many options. Well i'll talk to you soon ya big baboon! Hope the shots go okay which i know they will.
looove zoe
Thanks, Amy
Is Woodridge close to Chicago?
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.