I'm new to this with an almost five year old little girl. I wondered how things were today for your daughter. I'm new to this board and going back through old posts.
Hi Megan How are you and Paige...I have been thinking of the 2 of u.I was going to call u...for some reason I cant find your # on my cell...MIA was on clobestol also..she had nice regrowth...but she now has spots once again..Give me call when u have a chance..Good Luck
Maria
That is so awesome..Paige sounds like a strong gal.Please post some new pictures of Paige when you can. You should be so proud of her!!!Sam is progressing slowly..I am trying to stay positive.We see the doctor on Tues.
Tell Megan how excited we are to hear she ready to wear her own hair to school!! Please post a picture when you can. Sam is still growing, but not at the rate Paige has and we still have no facial hair coming in. We are making progress month to month. I will post some new pictures soon..I am so happy and proud of Paige!!!
Thank you. Your daughter is lovely as well. Maygen wore hats at that age all the time. I know at one time she had a dresser drawer full of hats. You know if you start to see hair loss again, I think you should try and get ahold of the hair club for kids. They have hair systems that they can attach with clips to the hair that is there. You will find that the both of you will be stronger people because of this. Your daughter is a cutie, big beautiful eyes and such an amazing smile!
Hi. I am Maygen's mom. Maygen first lost her hair when she was 3. She had the flu and got really sick. With in a week or two, she started loosing her hair like crazy, not that she had much. Her hair grew back in and then it fell out again. It was only maybe an inch long. However we started using steroid drops and her hair returned when she was four. When she entered school she had hair about to the middle of her neck. She started getting small patches, but with steroid cream it controlled most of it. It was always towards the back or around her ears that she lost hair. This year when she turned 13 all of her hair started falling out. So it has been 10 years since we have dealt with this much hair loss. She just started taking steroid pills. She will be on them for 3 weeks. If in a month her hair does not grow back, her derm doc will not due any other treatments. We just went to the Hair Club for Men last Thursday and had her fitted for a hair system.
Overall, the kids at school are good to her. They know about her condition and think it is cool that she gets to wear different wigs. There are a few that say mean things, but I will make sure that it is handled. Maygen is a leader academically, athleticly, and socially at her school. She is kind to everyone. I think that is why others are kind to her. I do believe that we can have hope of her hair returning with prayer and faith, but also with acceptance of this disease. If it is not God's Will for her hair to return, then she will manage through life stronger than we could ever have imagined. I understand your heartache. We only want to protect our kids. We want them to have everything that we have and more. Be her strong rock to lean on. Talk, and talk and then talk some more about everything with her. Listen to her about how she feels, don't let other people's lack of knowledge or ignorance cause you pain.
Maygen told me a month or so ago, mom please don't be so sad. I asked her how she felt about what was happening, and she said; Mom there is a part of me that is glad I have alopecia. I was shocked! She went on to say that she felt the AA is what keeps her humble. She successful at everything she does and yet the AA helps her to remember that she is not perfect. I was dumbfounded. If having AA has helped to shape the lovely young lady that I have as my daughter, then I too am glad she has it. For it has allowed her to have the greatest attitude a mother could ever wish for her 13 year old daughter to have. :-)
I know what you mean about being crushed..I don't think I will take it so well if this stops..Paige looks fabulous..Please let me know when she decides to go all natural!!! Cindy
That is fantastic Megan!!! Did Paige go to school with out a hat today? Sam's is just coming in the way it left, slow...Do you think it is luck or the Olux doing its magic? Do you see hairs come out of her head on an occasion. I do and it drives me mad. yet, she is still having plenty come in. I am trying to chalk it up to the cycle of hair. Cindy
That is happy news..I wish Samantha's hair was growing in like Megans. Samantha only lost her hair for the first time in the last year. We tried several things before it started growing in. She is getting thicker areas of area and some have nothing yet or very little that the pictures don't show it. I think she will do just fine when she goes to school hatless in a few weeks. I hope she stays on this path..
Megan, the regrowth looks fantastic!..How many weeks has been since she grew all that hair? I just posted pictures of Samantha's growth which has been moving along, but she does not have head Paige does...She started in the summer sometime..
I am really happy Paige..Are her lashes and brows coming in as well..I hope Sam has the same luck soon..Samantha loves to skate..She competes and loves it.
That great Megan..Did Paige ever lose it all? That topical treatment must really be working some magic? We are hoping by Feb Samantha will have enough hair for a short cut. She still has areas of no growth and what she has is getting thicker..It seems like it is taking forever for her hair to come in. She will have a few brow hairs and once they turn they don't stay long. It is so frustrating..I haven't seen any new ones in a while..It is bumming me out. I know Paige's AA is different from Sam's experience. She has lost and grown before right?
Megan, are all your pictures from this year? How long did it take for our daughter's hair to fall out after seeing the pirst patch? Exactly what vitamins does she take? Have you tried that Thymuskin product on her? Did you try injections? How is your daughter's diet? Is she an anxious child? The doctor's won't answer my questions, so I have no one to go to.
Your daughter is so pretty. My Daughter has a few larger patches and lots of small ones. I check her head about 30 times a day to see if those small patches are growing or not(as of right noe -one of those patches is growing). She has no clues as to what is going on. She has long VERY THICK, long, shiny brown hair. I never in my life thought I'd have to worry about her going bald! She has more hair than anyone I have ever known. So for now, the AA is not that nocticeable, but I wake up every morning and run in to her worried sick about what she may look like. I am willing (at this point) to try anything for her that is reasonably safe. I am very glad to know we are not alone. Thanks for welcoming me.
My daughter is a very poor eater, so I got her some very good multi vitamins, zinc tablets, and a HDA blend. It is a big chore to get her to even eat those. I have to bribe her with chocolate. How do you give your daughter the Biodin (what form and where to get it)? I want my daughter to have that too. I also got some tee tree oil shampoo. I know I am grasping, but I will t\ry anything to help her.n Thanks, Tammy
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.
Megan's Comments
Comment Wall (52 comments)
You need to be a member of Alopecia World to add comments!
Join Alopecia World
Hi,
I'm new to this with an almost five year old little girl. I wondered how things were today for your daughter. I'm new to this board and going back through old posts.
Thanks.
Vikki
Maria
Overall, the kids at school are good to her. They know about her condition and think it is cool that she gets to wear different wigs. There are a few that say mean things, but I will make sure that it is handled. Maygen is a leader academically, athleticly, and socially at her school. She is kind to everyone. I think that is why others are kind to her. I do believe that we can have hope of her hair returning with prayer and faith, but also with acceptance of this disease. If it is not God's Will for her hair to return, then she will manage through life stronger than we could ever have imagined. I understand your heartache. We only want to protect our kids. We want them to have everything that we have and more. Be her strong rock to lean on. Talk, and talk and then talk some more about everything with her. Listen to her about how she feels, don't let other people's lack of knowledge or ignorance cause you pain.
Maygen told me a month or so ago, mom please don't be so sad. I asked her how she felt about what was happening, and she said; Mom there is a part of me that is glad I have alopecia. I was shocked! She went on to say that she felt the AA is what keeps her humble. She successful at everything she does and yet the AA helps her to remember that she is not perfect. I was dumbfounded. If having AA has helped to shape the lovely young lady that I have as my daughter, then I too am glad she has it. For it has allowed her to have the greatest attitude a mother could ever wish for her 13 year old daughter to have. :-)
WISH YOU ALL A HAPPY THANKSGIVING.
MARIA AND MIA
Your daughter is so pretty. My Daughter has a few larger patches and lots of small ones. I check her head about 30 times a day to see if those small patches are growing or not(as of right noe -one of those patches is growing). She has no clues as to what is going on. She has long VERY THICK, long, shiny brown hair. I never in my life thought I'd have to worry about her going bald! She has more hair than anyone I have ever known. So for now, the AA is not that nocticeable, but I wake up every morning and run in to her worried sick about what she may look like. I am willing (at this point) to try anything for her that is reasonably safe. I am very glad to know we are not alone. Thanks for welcoming me.
My daughter is a very poor eater, so I got her some very good multi vitamins, zinc tablets, and a HDA blend. It is a big chore to get her to even eat those. I have to bribe her with chocolate. How do you give your daughter the Biodin (what form and where to get it)? I want my daughter to have that too. I also got some tee tree oil shampoo. I know I am grasping, but I will t\ry anything to help her.n Thanks, Tammy
Welcome to
Alopecia World
Sign Up
or Sign In
Disclaimer
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.