Hey Neighbor! I live in Hillside. I have had Alopecia on and off from the time I was 12 years old until now (I am 42 years old). It is a tough blow but you can get through it. This disorder is frustrating at times, but I just keep thinking there are far more worse things that could be had and then I remember to be grateful.
Hi Jillian, my daughter is going through this crazy letting go as well. Being her best bud I am going through it along side her as much as I can. I am sorry for your struggle. My beautiful daughter is trying to make sense and make plans. We are in a western suburb of Chicago as well. I am hoping that there might be a gathering for support some time soon. hope you are well, Jackie
great talking to you the other day.
Gald your doing better. Do you know if your going to be able to make BGDL all the info is on the Chicago group page.
hey can I get the info of the man you got your hair piece from?/
take care jess
hi jillian,
sorry i missed you call when i did finally get it i didn't want to call to late so i will try you tomorrow. so you have some info to share can't wait to hear
I would love to see your new hair piece so let me know when you get it in and where you got it. I'm always looking for new places to check out/
chin up girl! your gonna beat this even without hair. what kinda of wigs are you going to look at? did you ever check out that site www.newlifehair.com always another choice for a wig. But look J my hair grew back yes i have a few little spots but maybe it's just gotta run it course. Kims right I felt so much better after I shaved my head it gets you used to what you might end up with or in my case i had such a great amount if hair lost growing it back from scratch was best for me. I think there are a lot of people who have regrowth then total loss.
have a great trip to az
where are you going in az my parents live in mesa
Hey,
Yep still taking it it is really nasty though did you end up getting anthing for your iron>
Yes love the Armour saw the doc for it today and have a yrs supply. how is everything going for you? How is your dog?
Jillian,
Hi there! I don't have thyroid problems now, but I did have a low ferritin level, even though it was in the "normal range". Ferritin is your iron stores, not the total iron that is in your blood. I read a lot about it and came across a few other women that had low ferritin. In some of their stories, they mention that your level should be around 50-70, range in order to grow and maintain your hair. This is disputed though by some doctors. A good website to look that up is www.heralopecia.com. Look there and look up keyword, low ferritin, and you will see others stories of women that are low. I'm currently looking into why my stores are low, food allergies and not being able to absorb my vitimans correctly. Hoping that I will get some answers there. You really have to be aggressive about checking everything. I'll keep you posted on what happens after I test if you like! Take care! Blessings!
Melissa
hey Jillian,
It was great meeting you today I'm so glad we were able chat and compare notes anytime you every feeling like your having a bad day or good please feel free to call email etc.
Dinner was great thanks again.
Hi
Yes you did say wed that's fine I've so many things running through my head these days. What time will work for you? Where do you want to meet there are a lot of places at the mall to eat. Oh I have talk to to another women the other day and she said the same thing her name is Melissa she is one of my friends on her you should email her she knows more about it but now I think I should check mine too you'll have to tell me what the tests are called. I have hypothyroidism from something called hyshiomoto disease ( I know that's spelled wrong but will tell you more about it tomorrow.
Hi Jessica,
Whatever works. 6-6:30 is fine. I live in Oak Park. Would the two of you like to meet in between, or I can toss some food on the grill and we can sit around and talk at my house. Let me know, JIllian
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great talking to you the other day.
Gald your doing better. Do you know if your going to be able to make BGDL all the info is on the Chicago group page.
hey can I get the info of the man you got your hair piece from?/
take care jess
sorry i missed you call when i did finally get it i didn't want to call to late so i will try you tomorrow. so you have some info to share can't wait to hear
I would love to see your new hair piece so let me know when you get it in and where you got it. I'm always looking for new places to check out/
jessica
take care
jess
how are things going? Did you end up getting a wig?
How was Az?
chin up girl! your gonna beat this even without hair. what kinda of wigs are you going to look at? did you ever check out that site www.newlifehair.com always another choice for a wig. But look J my hair grew back yes i have a few little spots but maybe it's just gotta run it course. Kims right I felt so much better after I shaved my head it gets you used to what you might end up with or in my case i had such a great amount if hair lost growing it back from scratch was best for me. I think there are a lot of people who have regrowth then total loss.
have a great trip to az
where are you going in az my parents live in mesa
Yep still taking it it is really nasty though did you end up getting anthing for your iron>
Yes love the Armour saw the doc for it today and have a yrs supply. how is everything going for you? How is your dog?
jess
http://www.stopthethyroidmadness.com/
a lot of information
well i got my iron and ferritin checked well guess what yep my iron is low and my ferritin is 10.
what are you taking for this?/
jessica
Hi there! I don't have thyroid problems now, but I did have a low ferritin level, even though it was in the "normal range". Ferritin is your iron stores, not the total iron that is in your blood. I read a lot about it and came across a few other women that had low ferritin. In some of their stories, they mention that your level should be around 50-70, range in order to grow and maintain your hair. This is disputed though by some doctors. A good website to look that up is www.heralopecia.com. Look there and look up keyword, low ferritin, and you will see others stories of women that are low. I'm currently looking into why my stores are low, food allergies and not being able to absorb my vitimans correctly. Hoping that I will get some answers there. You really have to be aggressive about checking everything. I'll keep you posted on what happens after I test if you like! Take care! Blessings!
Melissa
It was great meeting you today I'm so glad we were able chat and compare notes anytime you every feeling like your having a bad day or good please feel free to call email etc.
Dinner was great thanks again.
jessica
may be a little late need to have my friend come sit with the kids till jason gets home.
stir crazy sounds great.
jEssica
see you
Jessica
Yes you did say wed that's fine I've so many things running through my head these days. What time will work for you? Where do you want to meet there are a lot of places at the mall to eat. Oh I have talk to to another women the other day and she said the same thing her name is Melissa she is one of my friends on her you should email her she knows more about it but now I think I should check mine too you'll have to tell me what the tests are called. I have hypothyroidism from something called hyshiomoto disease ( I know that's spelled wrong but will tell you more about it tomorrow.
sorry about the back and forth
Whatever works. 6-6:30 is fine. I live in Oak Park. Would the two of you like to meet in between, or I can toss some food on the grill and we can sit around and talk at my house. Let me know, JIllian
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.