Thanks! I think I got the pink zebra stripe scarf at a Jewish store here in Chicago. :) Technically it's labeled as a pre-tied bandana. The label one this one says "It's Younique", which there are links to on myheadcoverings.com. I have found beautiful scarves at headcovers.com, too. :)
Hey there Jennah... jus wanted to stop by and say 'love yer pics' by the way :) My roller-coaster of hairloss journey just started 6 n a half months ago,so am relatively new to this too. Its a lot to take on board eh but stay strong and listen to the lovely peeps on here that will give some great advice and support.. Hippy hugs shO :)
I didnt' mean to send that just yet.... anyway, I hope you're well Jennah. thanks for your notes, yes, the scalp pain is a bummer... the redness, the hair loss, man, I want to know what is causing this. Anyway, I'm going to a wig store this afternoon... see what they have. Have a good day Jen! -sarah
Hi Jen! Yeah, sorry I haven't been on too much, been watching my neighbor's animals. I house sit A LOT for people, watch their animals and homes when they're away.. just something that has stuck with me over the years. I don't have a pic because I am not comfortable posting one just yet... will some day. I like your long dark lochs wig!! Were you at a party? Is that your boyfriend next to you? How have you been doing? As for other pastimes, I really dont' have to many... I'm a student trying to get into nursing school... this has actually held me back a bit.... but darn it! I'm trying to not let it anymore.
Jen! Thanks for writing. I look forward to reading your notes :-) I just saw that you like burlesque! My friend Brittany has so many friends in that business and has done it herself too (in Colorado Springs). I'm so sorry that we have to go through this every day and alter our lives to great extents. You're right, 'putting some cream on it' is not necessarily the answer. I've been to a naturopathic physician too, on b-vitamins, biotin, pro-biotics, herbs, zinc, all trying to help out this dreadful situation atop my head. You asked how bad mine is, I lost about 50% of my hair. It used to be super thick, curly, dark, and wonderful. Now it's just so thin on the top, on the left side, and my scalp is sensative, burns at times throughout the day, there is redness especially where the worst spots of loss are (in front, on top). I also get a lot out in the shower, and if I run my fingers through the remaining hair, a lot comes out. It's depressing, but I have to keep reminding myself that we are not our hair, and to try to go on despite what others may think. What is your pain like? Also, you mentioned that you're on a medicine, correct? Is one of the side effects to that medicine hair loss? I wonder... hope not though. Whenever I look in the mirror, I imagine myself with no hair.. (not exactly a pretty sight). I wonder whenever I do shave it all off (there will come a day), I will want some work done as selfish as that sounds. However, at that point, I have got to try to be more satisfied with the way I see myself especially with the hair shaved, and a few things would certainly help with that. I bet New Zealand is beautiful, there is a guy that works at the airport who is from there too. I hope your partner is more understanding with your situation otherwise, it's important to have support. I've got my mom and a few friends, but everyone seems to like to think it'll get better. That's positive and all, but they're not experiencing this, and therefore cannot understand I suppose. Have you ever had a scalp biopsy done?
Yes, I adore clouds... they're peaceful, they're in another world where there is no judging, no problems, and float freely without stress. I love mountain clouds the best though! They move so fast, and when you're up in the mountains, the clouds are much more visable and fluffy, sometimes encompassing the whole mountain but only for 10 minutes. It's a nice mental vacation.
Oh, Aurora is a nice sounding town and the name of the princess in Sleeping Beauty, but it's really not that great of a town, suburbia in parts, cookie-cutter neighborhoods, poorer neighborhoods, a few malls, nothing too special though:-)
I hope we both have a good day tomorrow, and hope that you stay strong too, this is not easy, could be worse, but darn it... let's hope for better.
Hello Jennah! I don't know, that's the thing... they say I could either have CTE, Seborrheic Dermatitis, or FPB... I HATE this just as much as you. Every day I think of shaving off the rest and sporting a scarf. I know we spoke about staying active, but I'm so depressed over this, it's very hard to do that. Yesterday, I had another scalp biopsy, we'll see if they can be any more conclusive than the first one. It's super frustrating when all they can do for you is give you chemicals, and say to try rogaine. That is a bunch of bull!! I wonder how you're doing often, and wish we lived close by to go through this together, because truly, nobody understands unless they have to go through it personally. I've seen 5 dermatologists, and a person from the hair sciences of Colorado. EVERY single doctor doesn't know exactly what it is, TE, CTE, FPB, Seb. Derm..... Whatever it is, I pray every day for it to leave. How have you been doing? -Sarah K.
Hey there Jennah :-) Thank you for your note... I am sorry that we have to go through this. As you know, there are good days and bad days, and it's so nice to have someone to relate to about this. I almost wish in place of his burning and hair loss, I could have AA or AU, at least there wouldn't be so much pain. I'm glad that you're in a relationship where you can be supported through this. I'm always here to talk, it is better not feeling so alone in all this as you're right, it does affect every aspect of life. In trying to cope, I'm trying so hard to be positive when thinking of how life will be wearing scarfs and hats, and eventually maybe a wig. It's not the end of the world, right? Sometimes, it seems like it. I hope you're well, and are having better days. -Sarah
hey Jennah! Sorry I missed on the chat...I left myself logged in when I left work last night. I forgot. I was off to my hair lady to show her the topper I bought. I had to get there in 1/2 hour and she is on the other side of town. Traffic is crazy this time of year. ;-)
Hello Jennah, I'm in that same boat rowing with you.... seems like it's not even in water! I've not been 'diagnosed' with anything and am so tired of being on drugs. This all came about last year about this time with bumps on my scalp and soreness. I did so many head soaks, tried natural shampoos, ordered Ovation cell therapy, (only a few things amongst so many). My hair used to be so wonderful, curly, thick, and long my whole life... now it's half of what it used to be. Like you, I'm extremely self conscious of where people are looking when talking to me.... and I fear that I'll never be wanted by anyone (relationship-wise)or won't be able to socialize or get a job normally any longer. Now, I deal with a burning, sensative scalp and hair loss... in the front and especially on the crown... Boy, this is not easy is it. It's hard to tell people what is going on, and even when you do, they can't really 'understand'... some think it's all in my head. From hormone-related medication (progesterone, spironolactone) to antibiotics and antivirals, nothing seems to help. I'm reaching the boiling point where I want to shave off the remainder so it's not so depressing seeing it fall out. Not sure about you, but all this is hard to afford... especially the naturopaths' products and visits. Good luck to you, sorry for the long note... as you know, it's on the mind constantly! Take care of yourself!! -Sarah K.
At 7:18pm on November 06, 2011, Lili gave Jennah a gift…
I just wanted to tell you that you are stunning and gorgeous!! It's very hard for me to socialize too, I feel so self conscious! My boyfriend and I have decided to stay together finally, but I now know that I need to work on myself so that I can be the person i truly am, even if I'm balding. There isn't a whole bunch that can be done for fpb, it's true... I'm doing all that I can now as a last ditch effort before I shave my head :( and trying to face it and accept it. My cats say thank you :) My pets have been a real life saver in all of this, I know an animal will never judge me for my appearance.
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Thanks! I think I got the pink zebra stripe scarf at a Jewish store here in Chicago. :) Technically it's labeled as a pre-tied bandana. The label one this one says "It's Younique", which there are links to on myheadcoverings.com. I have found beautiful scarves at headcovers.com, too.
:)
Hey there Jennah... jus wanted to stop by and say 'love yer pics' by the way :) My roller-coaster of hairloss journey just started 6 n a half months ago,so am relatively new to this too. Its a lot to take on board eh but stay strong and listen to the lovely peeps on here that will give some great advice and support.. Hippy hugs shO :)
This wig was one ive had for over 10 years lol!
I didnt' mean to send that just yet.... anyway, I hope you're well Jennah. thanks for your notes, yes, the scalp pain is a bummer... the redness, the hair loss, man, I want to know what is causing this. Anyway, I'm going to a wig store this afternoon... see what they have. Have a good day Jen! -sarah
Hi Jen! Yeah, sorry I haven't been on too much, been watching my neighbor's animals. I house sit A LOT for people, watch their animals and homes when they're away.. just something that has stuck with me over the years. I don't have a pic because I am not comfortable posting one just yet... will some day. I like your long dark lochs wig!! Were you at a party? Is that your boyfriend next to you? How have you been doing? As for other pastimes, I really dont' have to many... I'm a student trying to get into nursing school... this has actually held me back a bit.... but darn it! I'm trying to not let it anymore.
Thanks Jennah!
Nice to meet you too :)
Jen! Thanks for writing. I look forward to reading your notes :-) I just saw that you like burlesque! My friend Brittany has so many friends in that business and has done it herself too (in Colorado Springs). I'm so sorry that we have to go through this every day and alter our lives to great extents. You're right, 'putting some cream on it' is not necessarily the answer. I've been to a naturopathic physician too, on b-vitamins, biotin, pro-biotics, herbs, zinc, all trying to help out this dreadful situation atop my head. You asked how bad mine is, I lost about 50% of my hair. It used to be super thick, curly, dark, and wonderful. Now it's just so thin on the top, on the left side, and my scalp is sensative, burns at times throughout the day, there is redness especially where the worst spots of loss are (in front, on top). I also get a lot out in the shower, and if I run my fingers through the remaining hair, a lot comes out. It's depressing, but I have to keep reminding myself that we are not our hair, and to try to go on despite what others may think. What is your pain like? Also, you mentioned that you're on a medicine, correct? Is one of the side effects to that medicine hair loss? I wonder... hope not though. Whenever I look in the mirror, I imagine myself with no hair.. (not exactly a pretty sight). I wonder whenever I do shave it all off (there will come a day), I will want some work done as selfish as that sounds. However, at that point, I have got to try to be more satisfied with the way I see myself especially with the hair shaved, and a few things would certainly help with that.
I bet New Zealand is beautiful, there is a guy that works at the airport who is from there too.
I hope your partner is more understanding with your situation otherwise, it's important to have support. I've got my mom and a few friends, but everyone seems to like to think it'll get better. That's positive and all, but they're not experiencing this, and therefore cannot understand I suppose. Have you ever had a scalp biopsy done?
Yes, I adore clouds... they're peaceful, they're in another world where there is no judging, no problems, and float freely without stress. I love mountain clouds the best though! They move so fast, and when you're up in the mountains, the clouds are much more visable and fluffy, sometimes encompassing the whole mountain but only for 10 minutes. It's a nice mental vacation.
Oh, Aurora is a nice sounding town and the name of the princess in Sleeping Beauty, but it's really not that great of a town, suburbia in parts, cookie-cutter neighborhoods, poorer neighborhoods, a few malls, nothing too special though:-)
I hope we both have a good day tomorrow, and hope that you stay strong too, this is not easy, could be worse, but darn it... let's hope for better.
Good night :-)-Sarah K
Hello Jennah! I don't know, that's the thing... they say I could either have CTE, Seborrheic Dermatitis, or FPB... I HATE this just as much as you. Every day I think of shaving off the rest and sporting a scarf. I know we spoke about staying active, but I'm so depressed over this, it's very hard to do that. Yesterday, I had another scalp biopsy, we'll see if they can be any more conclusive than the first one. It's super frustrating when all they can do for you is give you chemicals, and say to try rogaine. That is a bunch of bull!! I wonder how you're doing often, and wish we lived close by to go through this together, because truly, nobody understands unless they have to go through it personally. I've seen 5 dermatologists, and a person from the hair sciences of Colorado. EVERY single doctor doesn't know exactly what it is, TE, CTE, FPB, Seb. Derm..... Whatever it is, I pray every day for it to leave. How have you been doing? -Sarah K.
I LOVE your kitty with the wig - sooooo cute!
Hi Jennah
Thank you for the friend invite.
Vicky
Thanks! You can read old stuff by clicking on "View All." Hope it helps!
Hey there Jennah :-) Thank you for your note... I am sorry that we have to go through this. As you know, there are good days and bad days, and it's so nice to have someone to relate to about this. I almost wish in place of his burning and hair loss, I could have AA or AU, at least there wouldn't be so much pain. I'm glad that you're in a relationship where you can be supported through this. I'm always here to talk, it is better not feeling so alone in all this as you're right, it does affect every aspect of life. In trying to cope, I'm trying so hard to be positive when thinking of how life will be wearing scarfs and hats, and eventually maybe a wig. It's not the end of the world, right? Sometimes, it seems like it. I hope you're well, and are having better days. -Sarah
Hi, Jennah! Thanks for the nice compliment!Yes, those care my sweetie pies--siamese, cornish rex, and tuxedo. :) Hope things are good with you!
hey Jennah! Sorry I missed on the chat...I left myself logged in when I left work last night. I forgot. I was off to my hair lady to show her the topper I bought. I had to get there in 1/2 hour and she is on the other side of town. Traffic is crazy this time of year. ;-)
Hi Jennah! Thanks for the friend request an welcome to AW. Love your profile pic! :)
Hello Jennah, I'm in that same boat rowing with you.... seems like it's not even in water! I've not been 'diagnosed' with anything and am so tired of being on drugs. This all came about last year about this time with bumps on my scalp and soreness. I did so many head soaks, tried natural shampoos, ordered Ovation cell therapy, (only a few things amongst so many). My hair used to be so wonderful, curly, thick, and long my whole life... now it's half of what it used to be. Like you, I'm extremely self conscious of where people are looking when talking to me.... and I fear that I'll never be wanted by anyone (relationship-wise)or won't be able to socialize or get a job normally any longer. Now, I deal with a burning, sensative scalp and hair loss... in the front and especially on the crown... Boy, this is not easy is it. It's hard to tell people what is going on, and even when you do, they can't really 'understand'... some think it's all in my head. From hormone-related medication (progesterone, spironolactone) to antibiotics and antivirals, nothing seems to help. I'm reaching the boiling point where I want to shave off the remainder so it's not so depressing seeing it fall out. Not sure about you, but all this is hard to afford... especially the naturopaths' products and visits. Good luck to you, sorry for the long note... as you know, it's on the mind constantly! Take care of yourself!! -Sarah K.
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.