Katiebug's Comments

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At 3:23pm on November 8, 2017, Trisha said…

Hello, Katie! My name is Toni and I have Alopecia as well. I also work for Professional Hair Institute of Colorado in Denver. We offer many options, free consultations and have a quarterly support group. Please let me know if you would like to meet personally or come by to see if our studio can help you in any way. Love your photos!

At 5:17pm on July 23, 2008, Rachel H. said…
Hi there! Thanks for the add! You and your little one are just gorgeous!!
At 11:15pm on July 13, 2008, Lee said…
Hi Katie...nice to meet you! If you have any questions about AA or wigs, feel free to ask ; )
At 8:13pm on July 13, 2008, Kristal said…
Hi! How are you doing? Thanks for the comment! The wig I have on in the pictures I got from a wig shop in Arkansas. It worked great for my wedding, but I am having problems with it now. I don't know what type of human hair it is, so I'm thinking it wasn't the highest quality since I'm having major tangling problems with it. I think I'm going to have to get a new one soon. Do you wear a wig? Your pictures are really cute! See ya! :)
At 9:09am on July 10, 2008, Mandy said…

At 9:32am on July 9, 2008, Mandy said…
Oh and to answer your other question...my wig is a synthetic. Raquel Welch - Sheer Indulgence line. I definitely recommend Raquel Welch. For a wig, it is very comfortable and I have NO fear of it falling off, that's for sure. It has a monofilament top, so I can part it any way I want, which is cool. I got it from a local shop. For your first wig, I'd recommend finding a wig shop instead of buying online. That way they can help you find the perfect one and they can style it for you, etc.
At 9:29am on July 9, 2008, Mandy said…
Hi Katie,
Thanks for the sweet picture comment. :o) Wearing the wig out definitely makes me feel pretty and "normal." I like the way it makes me look and feel. But I'm not gonna lie...I think it's uncomfortable. I didn't give it much of a chance before decided I'd prefer bandanas to the wig. It was hot and just uncomfortable to me...felt like I was wearing a hat and I hate hats! I totally still wear it out when I want to feel pretty like when I go out to dinner with friends and such. But most of the time I just wear bandanas. They feel more like me. ;o)

Hugs,
Mandy
At 4:41am on July 8, 2008, Zoe said…
Hey Katie,

thanks for your comment:-) you're so beautiful!! I just saw that you live in CO. I love Colorado, and I have really good friends there (in Lone Tree). I was just there for 2 months with my son. It was great.

My wig is an Ellen Wille wig and iit's called Marusha. They have them in the UK. www.wigsworld.co.uk
I also like http://www.wigsalon.com. I'm thinking about getting a wig there. I like the brand Noriko and those wigs feel better on my head. I don't really feel dressed up with my wig. At the beginning I did since my own hair had gotten really thin and the wig felt like a turban on my head. Now I love my wigs and I think they are so perfect. My own hair has never been as perfect as my wigs. What kind of brand do you wear? Is that your real hair in the pics?
At 3:10pm on June 7, 2008, Katie Jones said…
Hey Katie,
I haven't talked to you in a while. I was just going to say hey. I hope everything is going good with you. I'll talk with you later on.
-Katie
At 1:01pm on June 6, 2008, Shannon said…
Hi Katie,
How are things with the AA? I hope that it is not bothering you. That last photo of you and your daughter is so beautiful! Did your AA start after you gave birth? I was just wondering because mine really flared up after.
Shannon
At 8:06pm on June 5, 2008, Erin said…
hey! yeah i rarely get on here these days haha.. so i am sorry it took me so long as well! As for how to explain I am not so sure haha, I have had this since I was 15 so he has always known me like this. usually bald with a bandanda at home and then different hair when we are out. haha he is even used to the blonde one second and black the next. But he does notice a bit, he will talk about how he has hair , how everyone does but I don't. There was a time he thought girls didn't really have hair haha but boys did. And then sometimes he would try to pull ppls hair off.. but once he is older and asking questions I will try to explain that I lost mine when I was younger and that it's ok and that I'm still the same and hair is not that important... it could be a good life lesson, especially for your daughter, being a girl and all, to show her there is so much more important things!
At 1:05am on June 2, 2008, Katie said…
Hey! I have had AA for about 3 and a half years. I have been aware of it for about 2 and a half years (I did not know what it was for awhile. I thought my bald spot was caused by my hairdryer or the way I was laying on my pillows). My treatments have always been successful. I pay attention to all of my spots and get the new ones treated right away. My boyfriend also takes pictures of my head every week. This was VERY hard at first- I hated looking at the pictures- I felt so ugly and I hated to have him see my "freakishness" (if that is even a word). I would break down and cry everytime. Now, I am extremely happy that we have tracked my progress and regression. I bring them to all of my doctor appts- they really help my doctor keep track of my condition. They give me hope too- I see how far I have come. This disease is such a rollercoaster of emotions. Stay strong and stress-free!! <3
At 10:51am on May 29, 2008, Mandy said…
Hi Katie. I'm new to this, too. AA started the beginning of this month for me. If you would ever like to talk, I am here!

Hugs,
Mandy
At 7:50pm on May 28, 2008, Vicktoria (Katya's mom) said…
I think it depends on what you need but they are expensive. Katya had a mold done of her head so her wig fits perfectly and does not need tape unless she is sleeping, swimming or some other type of sports. It is not a vacuum. I think it's the custom elite on the web site. We got 2 wigs and they both looks as good as when we first got them. Both are European human hair. They get washed a lot and are somewhat abused with the pool and ocean. She is only 12. I would call Lari for prices based on what you need. I would hate to tell you a price and have it be completely off. I do have to say that Lari and how well she worked with my daughter, is definately one of the reasons Katya has been so well adjusted despite loosing her hair.
At 11:31am on May 28, 2008, Jennifer said…
OH, and I was thinking also I woudn't have more kids because of my hair. But what exactly am I calling "my hair" anyways A bunch of bald spots and strands of hair with a bunch of extensions. ????? I would never let that stop you from having kids! I LOVE my kids more than anything. Waaaaaaaayyyyy more than my hair. The more older my 1 year old gets, the more I think that maybe I do want 1 more???? I woudn't let my hair stop that anymore, its soo bad anyways!
At 11:27am on May 28, 2008, Jennifer said…
The more I meet people on here. The more I realize that my parents handled my situation soooo good. They always made it seem not a big deal. "Oh We'll if you loose your hair we'll but you a really nice wig." And I always grew up thinking, that would be fun to have a lot of different wigs. I would act like that with my kids too. "Oh, mommy lost her hair, its no big deal. There is nothing wrong with me, I just have to wear a wig." Not to freak them out, you know?
At 1:22am on May 28, 2008, LeslieAnn Butler said…
Hi Katie,
The synthetics from Rene of Paris look very good! I have some of those, but also some human hair (European -- they look the best). With human hair you have to be sure you have a good stylist. That makes all the difference in whether it looks fake or not!
LeslieAnn
At 10:31am on May 27, 2008, Jennifer said…
I didn't have spots for awhile until I started having kids. Then it got really bad. I think the hormones have a lot to do with it. Mine would always grow back, it would take like a year and then it would grow back?
At 3:47pm on May 26, 2008, LeslieAnn Butler said…
Hi Katiebug!
I've had AA for many, many years. Now I have AU, so no hair anywhere! I have been through everything, and talked to so many people...and wrote a book. It might help you feel better about what's going on with you. If you're interested, go to my page and click on my web site. Good luck!
LeslieAnn
At 9:22am on May 25, 2008, jennifer said…
Hi there, I lost my hair after having my son in 2006. It was extremely traumatic for me but now I have come to accept it and I never thought I'd say this, but I have fun with the wigs. I just bought one that looks like Katie Holms. I love her look! Anyway, my son is 22 month and is a busy body! :) So where are you in the hairloss process? Do you think having your little angel made your hairloss worse? My story is gong to be in a book and I also wrote Oprah. I think you would enjoy reading it but it is too long to put on your page. I would have to email it to you. Would love to chat with you. Take Care, Jenn

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