Thank you for the warm welcome! I'm ok thanks, obviously new to all this so just trying to navigate round and find out what the sites all about! Looks really good!
How long have you been on here for? (Congrats on the book by the way! Really impressive - just have to order a copy! :) ) x
Thank you so much for reaching out to me. It's ironic that you should ask how I am. Actually, I am feeling a bit nervous today. I am taking out my weave today and having my stylist shave my head for the very first time. I don't have any hair any more to tie the weave down. The entire front of my head is now bald. My family and friends have been very supportive. However, I cannot help but feel that I am in mourning for the loss of whatever hair I have left. Trying to keep a positive outlook. I tell everyone that with my new look, I'm going to look better than Demi Moore in G.I. Jane. :-)
At 12:43am on October 22, 2014, Sarah Gibbon said…
Hi! That's great that you are doing well. Ive been better... It's hard finding a job. Esp. During breast cancer month. But I am a big fan of breast cancer awareness, especially because. My mom is almost 4.5 year suivor!! If you don't mind me asking? How long have had AU? Iv been without any hair for almost 7 years!! :( if you don't wanna tell me. I totally understand no questions asked. In please forgive in advance. I do not mean you any harm of any sort. I just kinda wanna feel not alone, it really sucks.. Your the first person. That Iv talked to about AU, that was like us.. <3
Hi - I saw the doc last week and as soon as I get the blood work done and back we will up the dose of Xeljanz to 5 mg 3X per day and hopefully that will jump start some growth.
Thank you for welcoming me. I just came home from having my injections so am not feeling up to par. Trying to keep my spirits up. This is the 3rd relapse in 4 years. I plan to order you book. Can't wait to read it !
Hello LeslieAnn,it was so good to hear from someone one here. My problems with my hair started in my early teen years. I have been wearing wigs since then and I am soon to turn 57. I still have a hard time dealing with people always asking if it is my real hair and bringing up conversations about going to the salon and anything that has to do with taking care of your own real hair. It is so bad that it took me 10 years to allow my husband to see me without my head covered. I am looking into buying your book. Maybe it will give me some self confidence.
Hi LeslieAnn thanks for the welcome. I like the title of your book!
I have been dancing since I was 2 years old & that's exactly what I carried on doing when my hair fell out there was no way I was going to let it stop me! I will drop dead before I stop dancing! I will look with interest at getting a copy :)
Hi LeslieAnn,
I purchased your book and so much of it is my life! I feel like I wrote it less the beautiful art work, and I have never had cancer thank God! You are very talented! I love the cover picture! How would I get a print of that? Thank you so much for writing my life! 26 years of AU. I'm almost 51 and have experienced so much in life.
Hi - I have been taking "Xeljanz" for 7 weeks 5mg 2X a day and not 1 hair yet!!! No side effects other then it has lowered my blood pressure and pulse which is nice. I am calmer and sleeping better. For me, the medicine doesn't like acid so I don't take it near the time I drink coffee, alcohol or spices acidic food and everything is great. If I did then my stomach would get distended/puffy and I would have to belch a lot (gross). I see Doctor tomorrow to have blood work done and compare to when I started......keep you posted.
Hi - thanks for the welcome. This is the 2nd time I have had cancer (cervical in 2012), but the first time I have lost my hair. It sure is weird, but I am having fun trying on wigs! I also would like my granddaughter, who is a makeup artist, to make me up to look like a "Grey" alien (I love SF) and also paint my head to look like a light bulb! LOL I was actually thinking about starting a bog called "Fun with Cancer." I try to keep a light heart and love to Laugh!! My best fun right now is watching "Big Bang Theory!" Have a Great Day!! Carol : D
Hi LeslieAnn,
Thank you for the welcome! I've been very excited to share my stories to others with alopecia. I have 26 years bottled up and telling my issues I battle with to people who don't have alopecia seems pointless sometimes because they will never truly understand the struggles!
Hope you are doing well!
Please feel free to send a message. I finally feel I'm able to let it all out to people who get it!
Bren
I thought I responded to your message before but see it did not go through. I am glad to find a group of people to talk to that have the same problems that I do. I have a great hairdresser who takes great care of my wigs but am still not ready to go with only a scarf or hat to exercise. I'm trying...you'd think it would be easy after 17 years but it is not.
Thanks for your welcoming comments. My day was Ok and yours? This is really a cool site! What book(s) did you write? Like to know and hopefully get to know you.
i was just reading all the comments about your book, i think i am going to purchase it, i need all the encouragement i can get. not only am i trying to deal with the fact that i have lost almost all of my hair, my eyebrows and eye lashes are starting to go as well. but my boyfriend of 3 and a half years decided that he can't handle being in a relationship right now because he has too many personal issues going on within in himself.(too long of a story) talk about bad timing. although his decision has nothing to do with me and my issues but the TIMING REALLY SUCKS. how do you try to be stress free at a time like this? not to mention feeling very unattractive. i'm trying to have a positive attitude about my situation, until your hear about others suffering from the same issues it's hard to deal with. So far i have gotten many compliments on my new hair style, which is a little encouraging.
thanks for letting me vent, and i will be sure to get your book.
sincerely,
MB
At 7:13pm on September 19, 2014, Tracyhah1026 said…
Thanks for asking. I've been on an optional rollercoaster since last week when my daughter asked me why god did this to her. She doesn't know much about the possibility of losing all of her hair yet. She does a great job at covering up the bald spots on her head. I have faith that we will get through this whatever the outcome may be. I'm glad that I found this website because not many friends or family have ever heard of it and since she is so good at covering her bald spots they don't know what we are dealing with at this point. Thx for inquiring how I am. I'm still learning how to use this site so if I've replied in the wrong area I apologize.
Many thanks and blessings to you!
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Hi LeslieAnn
Thank you for the warm welcome! I'm ok thanks, obviously new to all this so just trying to navigate round and find out what the sites all about! Looks really good!
How long have you been on here for? (Congrats on the book by the way! Really impressive - just have to order a copy! :) ) x
You wrote a book? Thats really neat!! I wish I could write a book! I'm don't do well at English :(
35 years? That some time that you have had it?
Can you recoomendd any good wigs/wig stores near me? I live in East Orlando, Florida
You look very nice in your photo!
I need to get one soon :)
Hello LeslieAnn!!
Thank you so much for reaching out to me. It's ironic that you should ask how I am. Actually, I am feeling a bit nervous today. I am taking out my weave today and having my stylist shave my head for the very first time. I don't have any hair any more to tie the weave down. The entire front of my head is now bald. My family and friends have been very supportive. However, I cannot help but feel that I am in mourning for the loss of whatever hair I have left. Trying to keep a positive outlook. I tell everyone that with my new look, I'm going to look better than Demi Moore in G.I. Jane. :-)
Sorry for my slow answers. Im too involved with my girls in school. Thanks for the link I will look it up. God bless you and your family.
Hi Leslie Ann,
Thank you for welcoming me. I just came home from having my injections so am not feeling up to par. Trying to keep my spirits up. This is the 3rd relapse in 4 years. I plan to order you book. Can't wait to read it !
Hugs to you !!
Hello LeslieAnn,it was so good to hear from someone one here. My problems with my hair started in my early teen years. I have been wearing wigs since then and I am soon to turn 57. I still have a hard time dealing with people always asking if it is my real hair and bringing up conversations about going to the salon and anything that has to do with taking care of your own real hair. It is so bad that it took me 10 years to allow my husband to see me without my head covered. I am looking into buying your book. Maybe it will give me some self confidence.
Hi LeslieAnn thanks for the welcome. I like the title of your book!
I have been dancing since I was 2 years old & that's exactly what I carried on doing when my hair fell out there was no way I was going to let it stop me! I will drop dead before I stop dancing! I will look with interest at getting a copy :)
I purchased your book and so much of it is my life! I feel like I wrote it less the beautiful art work, and I have never had cancer thank God! You are very talented! I love the cover picture! How would I get a print of that? Thank you so much for writing my life! 26 years of AU. I'm almost 51 and have experienced so much in life.
Hi - thanks for the welcome. This is the 2nd time I have had cancer (cervical in 2012), but the first time I have lost my hair. It sure is weird, but I am having fun trying on wigs! I also would like my granddaughter, who is a makeup artist, to make me up to look like a "Grey" alien (I love SF) and also paint my head to look like a light bulb! LOL I was actually thinking about starting a bog called "Fun with Cancer." I try to keep a light heart and love to Laugh!! My best fun right now is watching "Big Bang Theory!" Have a Great Day!! Carol : D
Thank you for the welcome! I've been very excited to share my stories to others with alopecia. I have 26 years bottled up and telling my issues I battle with to people who don't have alopecia seems pointless sometimes because they will never truly understand the struggles!
Hope you are doing well!
Please feel free to send a message. I finally feel I'm able to let it all out to people who get it!
Bren
Hi Leslie,
Hope you are well. Thanks for your comment. I'm doing fine, just losing more hair. Want to look into your book.
Regards,
Ken
I thought I responded to your message before but see it did not go through. I am glad to find a group of people to talk to that have the same problems that I do. I have a great hairdresser who takes great care of my wigs but am still not ready to go with only a scarf or hat to exercise. I'm trying...you'd think it would be easy after 17 years but it is not.
Hi Leslie,
Thanks for your welcoming comments. My day was Ok and yours? This is really a cool site! What book(s) did you write? Like to know and hopefully get to know you.
regards
Hello,
i did purchase the book today on amazon, can't wait to read it, and i will be sure to let you know what i thought of it. thanks for the big hug.
MB
Hi LeslieAnn,
i was just reading all the comments about your book, i think i am going to purchase it, i need all the encouragement i can get. not only am i trying to deal with the fact that i have lost almost all of my hair, my eyebrows and eye lashes are starting to go as well. but my boyfriend of 3 and a half years decided that he can't handle being in a relationship right now because he has too many personal issues going on within in himself.(too long of a story) talk about bad timing. although his decision has nothing to do with me and my issues but the TIMING REALLY SUCKS. how do you try to be stress free at a time like this? not to mention feeling very unattractive. i'm trying to have a positive attitude about my situation, until your hear about others suffering from the same issues it's hard to deal with. So far i have gotten many compliments on my new hair style, which is a little encouraging.
thanks for letting me vent, and i will be sure to get your book.
sincerely,
MB
Many thanks and blessings to you!
congrats on your success, you are very joyous in your life approach. thanks for the inspiration.
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.