Great..Samantha will be excited to get another letter..

Thanks..It likely wont get in the mail till Thurs. We are getting a snow storm tomorrow. We are having our first snow day which is not bad. Many towns have already had a few, but ours tries to stay open or get a half day in.

Kim, Samantha loved seeing the pictures of Jess and her sisters..They are adorable. Where did you have them done? I found your address. Just need last name please so I can put the letter in the mail..Cindy

Kim, we have been lucky with this treatment for Samantha. She tolerates it and has never complained, despite some of the issues we have had. I have asked her on occasion if she wants to stop and she says no. She sees her hair is growing and wants to keep going. We still have no brows or lashes. In the fall she was getting brows and I was so excited, but they did not stay. She is now getting a spurt of new fuzz in bald areas so I am hoping for something soon. Samantha is writing Jessica's letter. Please tell her we have not forgotten her..I don't know what i did with the envelope so if you can, please send me your addy again. She loved getting a letter from both Jessica and her sister.

Kim, I couldn't help to notice your post on another page about the squaric acid. What was Jessica's experience with it. We are seeing good results with it and Sam puts up with the irritation. Her started growing about 3 or 4 months of weekly treatments once we got on a weekly cycle. I am still trying to be hopefully that her brows and lashes will start to come in soon. she lost those completely shortly after the new year last year.

Let me know how you make out.

Kim, I was just reading your mom stuff post. Samantha wears a wig from the Hair Club for Kids. I suggest going that route vs Locks of Love. Locks of Love is stressful and they really only give free hair pieces to those underprivileged. There process is emotionally draining. Sam has her 2nd Kids Club wig. www.hairclub.com. They give 3 free wigs a year.

Regrowth is white and eventually turns color. It will be fuzzy. Samantha is finally getting new white hairs in balder areas which is exciting. I do have regrowth pics on her page if you want to peek. She is still doing the squaric acid treatment which is working, but takes some and patience some of which I don't have some days..
Take care,Cindy

Hey Kim, Samantha received Jessica and KC's letter today. She was so excited and be on the look out for a response in the next week...Cindy

Sam will be excited and sure to reply!!

Hi Kim, That is okay. She slacked too..But, we will send on back for sure..Her mail has been slow with the holidays...I am emailing it now.
Cindy

Hi Kim, How are you? Stopping by to say hi and see how Jessica is doing..Hope you enjoy the holidays..Cindy

Hi Kim,

Thanks for that. Could you tell me if it needs to be put on with tape or can it just be worn like that. Does it feel heavy?

Thanks

Hi Kim,

I was wondering where you purchased the wig with the headband on it for Jessica. I think it looks great on her and want to get Amber one.

Thanks

Hi Kim..How are things going for Jessica? Sam is having a great start to school and we are still on a regrowth journey..We happy here right now...Hope all is well..cindy

hi Kim,
my daughter is actually Paige. i'm Megan. i need to fix that on my page. thanks for the reply. where did you get the headband with hair? does she keep it on? i love to hear the way your daughter is handling this. Paige is the same way. i don't know if it's because she's 5 or because she's so laid back? she first lost her hair last jan--it was down to the middle of her back! she lost all the hair on the top and most of the sides and a big portion of the back just thinned. so when she wore a baseball cap, you couldn't really tell. we started treating her with a topical steriod and by june of this year, she had a full head of hair. of course we had to cut the back to match so she had a cute little short haircut--she went the whole summer with amazing growth and then the last week of the summer it started again. it's pretty much fallen out in the same pattern as last time, but it looks worse as she is working with a lot less to start off with. she has this tiny little head so these baseball caps overtake her whole face. i love that crochet hat your daughter is wearing in that picture, but i can't find them anywhere. i swear i'm going to learn to crochet just for this reason. so it sounds like your daughter isn't faced with much teasing? that's awesome. paige hasn't had much, but who knows what will happen if her situation is still like this a few years from now? she's only in Kindergarten. thanks again and speak to you soon

hi Kim,
Jessica is adorable. my 5yr old Paige has lost most of her hair for the 2nd time. i don't know what to do with her look? so sick of the baseball caps. what do you do for your daughter? just hats? is that a wig in the first picture? i don't think paige would go for a wig right now as she's probably just treat it like dress up. she's adjusting pretty well to the situation, so i just want her to be comforable. how is jessica doing in school? does she have to deal with any teasing or is everyone just used to it? thanks

Hi Kim, Thanks for the post..I am equally sorry we have not sent a letter too..We have been on the go with camp and vacation. It has been on my mind to have Sam write a letter, but we have slacked a bit..Sam is sporting her new wig from the kids club. We did trim it some more on Friday and will post a pic soon...Enjoy the rest of summer. We go back to school next week..YIKES..I need more time home with Sam..Cindy

Hi Kim. Just saying hi and wanted to see how things are going...I hope to have Sam write Jessica another letter when we get back from our trip ....Cindy

Hi Kim,
Your daughter Jessica is adorable.
I wrote a book that might help you with the situation with your daughter. It has a chapter devoted to kids with alopecia. It's called, "If Your Hair Falls Out, Keep Dancing!" Go to my page to find out more...you can order it at the link on my page.
Take care,
LeslieAnn