I did see your pics and you can't tell, you are right! I am really thinking about it. I am going to see if anything happens in the next few months with the new meds and then make the decision with the wig. I know that it would give me a boost of confidence I am sure. It is just a big step to take, but I know I will have the support when it comes time to make that decision. Now more that I found AW. Thanks again!
I am not sure what the percentages are. When I was at the doctor she said that there was a similar case like mine and the patient had regrowth on the aldactone. I know that there are better chances for me with the diagnosis of androgenic alopecia than there are with lichen planopilaris. LPP changes your scalp to scar tissue so it stops your hair from growing back. I wish you better luck with your doctor! I would switch if you don't feel comfortable with the answers you are getting, that's for sure.
Sarah - I know that there is a link between PCOS and androgenic alopecia, which looks like from what I read online is the main form of alopecia for women with PCOS. But it also says that women with PCOS may suffer from many forms of alopecia. I would confront your doctor on it. That is how I got all of my answers. Search the internet for PCOS and alopecia, there is info. Maybe even print something and take it to them.
i'm doing ok i have a math test tommorrow yuck! and i was goofy enough to sign up for extra nights at the hospital so i have been trying to keep busy to keep my mind off of it. i hate washing my hair so i only do it at night and in a big sink in the laundry room cause i dont want to see all the hair coming out. i have more good days then bad but i do trully miss my hair but it has become so ugly and unmanagable that i have to admit i dont take care of it anymore just wash it, comb it and wear scarves. my mom gets so annoyed with me lol anyway thanks for getting back to me and will contact you soon.
How are you doing lately? i saw your blog and know how you feel. i went about getting a bunch of blood tests hoping something was broken that can be fixed to help with my hair problem but it is what it is. anyway i am glad your liking your wigs, havent found one yet but i guess i havent been looking either lol well just wanted to say hi and i am glad your doing ok i'll talk to you soon bye :o)
Thanks for accepting my request!
So good to meet you.
I do have the prosthetic wig and if you ever need one, it's a wonderful investment.Yet you have to shave if you don't have alopecia universalis.
Otherwise it wont suction.It's great for the cool weather, as there is nothing close to your own skin!
MiNAH
Sarah,I am loving your wig.It looks so darn natural,and suits your original hair color too.After seeing your wig,I regret my decision of ordering a human hair one.Eventually I see myself using synthetic one's too.Are you secure without the adhesive's and what do you do with the hair left beneath? If you don't mind can you tell me the vendor you bought yours from?
hi sarah,
we stay in scotland and since caitlin attended hospital firstly a childrens hospital she has always had custom made real hair wigs ,which she is supposed to get 2 every 3 years but as she was growing she has been lucky that the hospital trust have been giving her 2 a year she is due to see her dermatoligist in february but i dont think she will get any this year as she is now in the general hospital.
we are buying the freedom wig ourselves it is expensive but we are hoping its worth it and it seems it can last 5 years ,its costing £1751 :o
in scotland i think it is 4 synthetic wigs a year but i understand it is different in all parts,, do you have any regrowth at all ? caitlin is in a happy place at the moment so im hoping this continues.
take care irene x
Sarah, glad to hear your wig is a smash! I'm sure you look brilliant in it. On your point on this condition being more common, I find that to be true now that I know what to look for. I've seen a few AU folks, and a few with AA, but I guess I never thought twice about those things before. However, now that we're going through this same mess, seeing it is far more obvious isn't it?
I'm doing pretty well here. My patches have really filled in, though shower time yields more dead soldiers than I care to see. I can't complain though, since only a few short months ago, it was absolute HELL trying to cover up the spots. I'll count me blessings and be very grateful.
Hope things are still well with you since we last exchanged. Take care for now.
hi sarah,
i am fine thanks, although i dont have alopecia my daughter has had au now for 8 years and i can understand what you are going through. i find this site great for being able to chat to other people and finding out about all wigs.caitlin has just ordered a freedom wig so she is excited to be getting that, you really do look great ,it looks very like your natural hair, hope you are coping well x
It is so nice to hear ,that you are happy with your wig.I have ordered a human hair one.Since I am in India at the moment and there are no wig shops here,I had to custom order one online.Its on its way and i would recieve it in a couple of days.The only problem with the human hair one's are that they tangle a lot.Do the synthetic one's solve that problem?.What sort of adhesive's are you using. Once i come back to the UK,I hope I can also get some NHS help...
By the way do you sleep in your wigs?
Thanks for responding i am going thru a hard time right now with my hair loss and thinking off shaving it off but scared to. i have no hope for regrowth and suffer from psoriasis so its a pain in the butt. i am blessed with a supportive family so it helps but sometimes it just hits you all at once. anyway i hope to find a nice wig and i hope you are having fun with yours. anyway have a great week and talk to you soon.
hiya, feelin better now altho ive bn gettin alot of headaches lately so bak to the doctor again, lol, god it'll be first name terms wi my doc, ha ha
hows u keepin as ur still quite new to this arent u, its great ur results came bak clear but very frustratin wen u dont have answers eh, i still dont either n its bn nearly a yr already,
lets just pray this is gonna be a very lucky yr for alot of us on here, hope ur doin well, take care, speak sn, x
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You look good by the way! It's really good to have some support online.
how u doin, its started bloody snowin again here, sick of this cold weather now, bring on the warmth lol,
hope ur well, oh hows the date goin, i havent bn out on mine yet, xx
So good to meet you.
I do have the prosthetic wig and if you ever need one, it's a wonderful investment.Yet you have to shave if you don't have alopecia universalis.
Otherwise it wont suction.It's great for the cool weather, as there is nothing close to your own skin!
MiNAH
we stay in scotland and since caitlin attended hospital firstly a childrens hospital she has always had custom made real hair wigs ,which she is supposed to get 2 every 3 years but as she was growing she has been lucky that the hospital trust have been giving her 2 a year she is due to see her dermatoligist in february but i dont think she will get any this year as she is now in the general hospital.
we are buying the freedom wig ourselves it is expensive but we are hoping its worth it and it seems it can last 5 years ,its costing £1751 :o
in scotland i think it is 4 synthetic wigs a year but i understand it is different in all parts,, do you have any regrowth at all ? caitlin is in a happy place at the moment so im hoping this continues.
take care irene x
I'm doing pretty well here. My patches have really filled in, though shower time yields more dead soldiers than I care to see. I can't complain though, since only a few short months ago, it was absolute HELL trying to cover up the spots. I'll count me blessings and be very grateful.
Hope things are still well with you since we last exchanged. Take care for now.
JOhn
i am fine thanks, although i dont have alopecia my daughter has had au now for 8 years and i can understand what you are going through. i find this site great for being able to chat to other people and finding out about all wigs.caitlin has just ordered a freedom wig so she is excited to be getting that, you really do look great ,it looks very like your natural hair, hope you are coping well x
By the way do you sleep in your wigs?
hows u keepin as ur still quite new to this arent u, its great ur results came bak clear but very frustratin wen u dont have answers eh, i still dont either n its bn nearly a yr already,
lets just pray this is gonna be a very lucky yr for alot of us on here, hope ur doin well, take care, speak sn, x
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.