March 2020
My son and I both started Xeljanz Trial at N…
So I’ve had alopecia Universalis since 2007. I’ve basically just resigned to the fact that it will be this way forever. Then My 17 year old son got Universalis and I began a mission to try and find…
Discussion
My son and I both started Xeljanz Trial at N…
1 Like
February 2020
Sports Illustrated model with alopecia pulls off her wig on the runway
We weren't born believing hair makes you pretty, but society has lead us to believe that.
In an empowering move, she took off her wig on the runway.
"Taking my wig…
Blog
Sports Illustrated model with alopecia pulls off her wig on the runway
8 Likes
December 2019
Mirena and Hair Loss
Ladies, I have to share with you what I just found out. Last month I had my IUD, Mirena, removed after having it for three years. I lost my hair last year, Nov. '07. Although I went to many doctors t…
Discussion
Mirena and Hair Loss
10 Likes
November 2019
Alopecia and emotions and false assumptions
This stupid thing depresses me from time to time and makes me angry because it seems like nothing you do can stop It from happening.I lost around 40 percent of my scalp hair, started doing kenalog in…
Discussion
Alopecia and emotions and false assumptions
2 Likes
September 2019
For all you ladies who have become fearful o…
Discussion
For all you ladies who have become fearful o…
1 Like
April 2019
2 years later.... update
I’ll try to keep this short and sweet, I’ve been scared to post out of fear i will jinx myself and have a reoccurance. I have decided to share my story and my success with my hair for anyone who feel…
Discussion
2 years later.... update
1 Like
March 2019
Update: 1 year on Tobacitinib!
HI All!
March 1, 2019 marked my 1 year Tofacitinib.
Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.
Started on 10mg per day and bumped up to 15 mg per day in August of 2018…
Discussion
Update: 1 year on Tobacitinib!
6 Likes
February 2019
New user to this forum and Need some advice…
I first got Alopecia Areata when I was 15. I think the pressures of school took its toll on me a little… I lost a big patch of hair on the back of my head but it did eventually all grow back white an…
Discussion
New user to this forum and Need some advice…
1 Like
January 2019
Diet, supplements and probiotics for AA
I have just started to research diet and its effect on AA as well as what supplements are good for AA, including probiotics. My doctor says that none of it has any effect, but I disagree. I think aut…
Discussion
Diet, supplements and probiotics for AA
1 Like
December 2018
I Beat AU Twice
Background
I am Male, 36 Years Old, Played sports at a high level, Had alopecia as a child but always just patches on my head that would come and go, I could cover them by letting my hair grow a li…
Discussion
I Beat AU Twice
10 Likes
Been there. Done that!
Yes, the very term 'Alopecia' causes me to cringe. Even after 20 plus years. I am still uncomfortable talking about my hair loss. Good news, I am in love now with a wonderful man who loves me for me.…
Discussion
Been there. Done that!
1 Like
Canadians with Alopecia
Group
Canadians with Alopecia
22 Likes
Emenemely
Member
Emenemely
9 Likes
Tofacitinib Results after 9 Months
Hi All,
Here are my results after 9 months.
Notice, virtually no results until about 5 months
Note that I kept buzzing my head the entire time, hence no growth in length, just filling in.
XELJANZ%2…
Discussion
Tofacitinib Results after 9 Months
6 Likes
November 2018
Teen With Alopecia Had Her Mom Paint Her Bal…
"Madisyn Babcock was diagnosed with alopecia areata earlier this year and soon after, her hair began falling out. Alopecia areata is an autoimmune disease that causes hair to fall out in small, rand…
Discussion
Teen With Alopecia Had Her Mom Paint Her Bal…
19 Likes
IMG_2692
photo
IMG_2692
3 Likes
Focus your energy on getting to a place of S…
photo
Focus your energy on getting to a place of S…
1 Like
Alopecia and my engagement
I feel like Alopecia temporarily stole a part of who I am and I hate that. I recently developed Alopecia and a few months after I got engaged! This is supposed to be one of the happiest times in my l…
Discussion
Alopecia and my engagement
13 Likes
Tofacitinib Results after 7 Month
HI Guys,
I'm on Generic Tofacitinib from Bengladesh.
On Aug 10, I increased doseage from 10 mg to 15 mg per day.
I started March 1, with not one hair on my head. no eyebrows very few lashes.
Here is…
Discussion
Tofacitinib Results after 7 Month
8 Likes
Low Ferritin in AA/AU patients
Hey All,
I met a pretty sharp Dr. a few weeks ago. He mentioned that it's very common for AA/AU patients to have low ferritin (iron stores).
In simple terms, Ferritin is a protein in our cells where…
Discussion
Low Ferritin in AA/AU patients
1 Like
November 2016
Wigs are ok, bald is ok, and anything in bet…
I am not sure if this is a rant, or what, but lately I have come into some comments that really really bother me. I have been wearing wigs for years, and when I got started, I was scared to death. F…
Discussion
Wigs are ok, bald is ok, and anything in bet…
16 Likes