April 2019
Joining FFA Clinical Research Study
Yesterday, I had my first appointment with Dr. Olsen at Duke University. My biopsy came back as LPP and she confirmed FFA during the visit. They took photos, measured the hair loss and I was entered…
Discussion
Joining FFA Clinical Research Study
7 Likes
January 2019
Autoimmune diet
Hi all,
Just wondering from those who have tried / are following the AI diet, did you notice any difference in symptoms (like burning, itching scalp) & if so, how long before you noticed it? I’ve…
Discussion
Autoimmune diet
1 Like
New diagnosis
Hi All,
This is my first post to the group and I’m so glad I found you.
I have recently been given a tentative diagnosis of FFA and I’m freaking out about it. This is on the back of a year and a h…
Discussion
New diagnosis
1 Like
September 2018
Get Ahead of Hairloss Event plus new informa…
Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end o…
Discussion
Get Ahead of Hairloss Event plus new informa…
1 Like
FFA too young
I am 100% sure I have ffa I’m only 23 years old and its really affecting my self confidence and my life. I have had alopecia arerea bald patches also. My bald patches started about 5 years ago but wa…
Discussion
FFA too young
1 Like
December 2016
Possible causes?
Hi All
I'm Lara, 38 years old and I was diagnosed with FFA in September this year after noticing what appeared to be male pattern baldness starting around 8 months ago.
My GP got the diagnosis wrong…
Discussion
Possible causes?
2 Likes
June 2016
2016 CARF Conference Information/Summary/Dis…
Hi All,
I'm back from the CARF conference and thought I'd get a post going to share what was learned/presented and start discussion about the same. I didn't get a chance to meet either Nancy or Sall…
Discussion
2016 CARF Conference Information/Summary/Dis…
13 Likes
October 2015
Frontal Fibrosing Alopecia
Group
Frontal Fibrosing Alopecia
102 Likes