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January 2022
AIP Diet: Did you try it? On it now?
3 weeks in-this is what I noticed so far:
I lost 7lbs.
The first 4 days were just horrid! I felt terrible. After that, the cloud lifted and I felt great.
Much more energy. Better mood and feel happie…
Discussion
AIP Diet: Did you try it? On it now?
3 Likes
February 2020
Bonded Hair Pieces
The question I get asked the most about living with frontal fibrosing alopecia (FFA) is about my bonded hairpiece. A bonded hairpiece simply means its kind of like a wig only its bonded – or glued –…
Discussion
Bonded Hair Pieces
7 Likes
September 2019
CARF Conference 2018 Notes
CARF 2018 Conference Notes:
First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others fro…
Discussion
CARF Conference 2018 Notes
14 Likes
August 2015
Because of the Lack of studies for Frontal F…
My Doctor says it's almost guaranteed that there will be no studies for the disease FFA because there's NO money in it. If there are studies that INCLUDE FFA it's because FFA has to do with hair los…
Discussion
Because of the Lack of studies for Frontal F…
7 Likes
June 2015
Essential oils
Hi Everyone!
I saw some posts in the comments regarding essential oils, so I thought I would share my experience with EO's thus far:) I was diagnosed with FFA almost 2 years ago now, but I believe I…
Discussion
Essential oils
6 Likes
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