Alopecia World

www.alopeciaworld.com

Minter's Likes

March 2020

Bonded Hair Pieces The question I get asked the most about living with frontal fibrosing alopecia (FFA) is about my bonded hairpiece. A bonded hairpiece simply means its kind of like a wig only its bonded – or glued –… Discussion Bonded Hair Pieces 7 Likes

June 2018

New to FFA group (sort of!) Hello all. Although I have been a faithful follower of this group for about 6 months now, this is the first time I’ve actually joined in. I have probably had Ffa for about 3-4 years now and I’m pre… Discussion New to FFA group (sort of!) 2 Likes

January 2018

Counselling?! We are our own! I got my FFA diagnosis by biopsy in January 2014, 4 years ago. Here’s my first post in this forum: ” Just diagnosed ( twice) with probable frontal fibrosing alopecia ! Only went to doc for skin chec… Discussion Counselling?! We are our own! 5 Likes

October 2017

New Treatment Options Hi All, I got a Google alert for a study I thought many of you would be interested in. Here's the abstract: This study aimed to assess the efficacy of systemic retinoids in treating frontal fibrosin… Discussion New Treatment Options 3 Likes

July 2017

Feeling better After the shock of last week's dx, I was just a mess. Even after meeting with my hair dresser who was so nice and helpful - I wasn't okay. He said something like "wear bright clothes to distract peop… Discussion Feeling better 1 Like random thoughts Well our stories are all so similar I could almost interchange mine for any of yours. Eyebrow loss, odd scalp sensations, skin issues, progressive hairline loss etc., the hunt for the diagnosis, the… Discussion random thoughts 3 Likes

June 2017

Short Pixie haircut then a super short Buzz… I'm definitely having a flare and I'm shedding a lot. I'm just sick of trying to fake that my hair is what it once was. I had a beautiful straight bob of bouncing brunette hair. Now it's just a limp… Discussion Short Pixie haircut then a super short Buzz… 1 Like

August 2016

The most liberating experience I have ever had

Hi fellow alopecia and hairloss knowers

I am so happy to be who I am.

This year I started my university days at Stellenbosch University in South Africa, studying my passion. At this…

Blog The most liberating experience I have ever had 3 Likes

Welcome to
Alopecia World

Sign Up
or Sign In

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

Badges | Report an Issue | Terms of Service