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Gumi's Discussions

Need your opinion,please!

Started this discussion. Last reply by Rose Marie' Dec 13, 2013. 1 Reply

Hello! I am a mother who has a child with alopecia. I won't say which one but I am trying to get a wig using donation hair. My hair is not long enough so I asked this lady if she can donate her hair…Continue

Any good idea?

Started this discussion. Last reply by Rose Marie' Dec 3, 2013. 6 Replies

Hi! My almost 5-year-old girl has alopecia. She has little bit of hair left and she wears headscarf to go to school but lately she has lost so much that elastic part in the back of her head wouldn't…Continue

I need support or good advice, please!

Started this discussion. Last reply by Rose Marie' Feb 7, 2014. 10 Replies

Hello! I have 4 year old girl with alopecia. It started last June and now she has lost 90% of her hair. Should I wait until all her hair fall out or should I just shave her hair? I know we both don't…Continue

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I have a 4-year-old girl who has Alopecia.
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At 8:43pm on November 11, 2013, LeslieAnn Butler said…

If your derm is knowlegeable about alopecia, I would follow his/her advice. Sounds like her hair is growing back with the shots. I hope it continues!

At 7:26pm on November 11, 2013, LeslieAnn Butler said…

Steroid shots have been used safely on children for many years. If she is okay with receiving them (they can be painful), and it's helping, then I would go ahead.

At 7:55pm on November 6, 2013, LeslieAnn Butler said…

I haven't tried Biotene or rosemary. I am sure it won't hurt.  Biotin will  help existing hair become fuller and thicker, but to actually regrow lost hair -- that's another story. But it feels good to be doing something. I understand completely!  

At 7:30pm on November 6, 2013, LeslieAnn Butler said…

I hope it will resolve on it's own, too! Please let me know! And also let me know how you like the book. It has helped a lot of people, including moms with kids...

Blessings back, and big hugs!

At 7:04pm on November 6, 2013, LeslieAnn Butler said…

Don't worry about asking questions!

As I wrote in my book, Sadbe can be very uncomfortable, producing itching,  hives, blistering and loss of pigmentataion,  and hair growing results are mixed.  New growth will be evident after six months and treatment has to continue to keep it growing in. It can help some people, so you may want to try it, but your little one may not like the experience.

Regarding dairly and gluten free, I am doubtful this would do much (I have been gluten free for six years and still have no hair), but of course you can try it. Also, be aware that alopecia may resolve on its own. All her hair may grow back without any treatment at all and never return! It's unpredictable.

At 5:56pm on November 6, 2013, LeslieAnn Butler said…

I understand your frustration. You want to fix things for her but you can't do anything. However, there is a lot of research going on right now and a genetic link has been found. I predict that within 5-10 years there will be a viable treatment for this disorder! Something to look forward to.

At 7:50pm on November 3, 2013, LeslieAnn Butler said…

Hello and welcome!

How are you and your little girl today?

Leslie Ann



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