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- Relationship Status:
- Married
- About Me:
- father of a teenager who has alopecia universal. We are not using any treatment at this time. All the treatments we tried did nothing to stop or slow down the loss. Still learning about alopecia and working on acceptance. Glad to have the use of the internet meet new friends.
- Do you have alopecia?
- Parent or guardian of child with alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
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Thanks for your reply. Appreciate it.
You said that Joe needs to feel comfortable before participating in things. I believe my Jon is the same. He has decided to go to the school that some of the youth group members and his best friend go to. It is a very small private school. We are not sure how he will go academically (he has done well up to this point) but at this stage we are just happy that he wants to return to school.
Jon's youth group plays indoor soccer one night a week -so I am hoping he will join in that. Most of the time Jon has had alopecia he has had a level of acceptance. I think because he lost all his hair, and in his first year of high school that he raged against it and isolated himself. I think he is becoming accustomed to having no hair now. He can see that he is developing universalis and I think it is getting to the point of acceptance.
I know being involved with sport and the community help and not isolating yourself so I am hoping that he will become more involved in things and look beyond the hair as you say.
The weather here has very warm although it is overcast here at the moment and 26.3 degrees, 87% humidity.
We have been getting temperature in the 30's so it is a nice change today. Snow sounds good to me at the moment.
We have had a quiet but pleasant Christmas thanks. Hope yours was a good one for you and your family.
Best wishes
Susan
My son, Jon - 13, has had Alopecia since he was 6. This year he developed totalis and it is progressing to Universalis. He has found the totalis very hard to accept. Found it hard at school this year (first year of high school). He doesn't want to try any treatment as treatment previously didn't seem to do anything other than in the short term.
He refused to go to school in July and has isolated himself until just recently. About 6 weeks ago he started going to a youth group with a friend. Most of his other friends he has cut off and won't have anything to do with.
How is your son coping at school and socially? Can you give me any advice on how to encourage Jon to participate in sport or social activities? Would appreciate any advice you can give.
Regards
Susan
Jeffrey
Welcome to Alopecia World.
Jeffrey
You are right kids are more resilient. Amandas hair loss has been difficult for my husband and myself. The whole top of her head is bald but she is starting to get some regrowth. She holds alot inside but I know it is hard on her too with people constantly staring at her. How is your son Joe dealing with his hair loss? I know it must be hard on him. He will be okay in the end. Our kids are stronger than we think. Please keep in touch with updates. I will talk to you soon.
Tracy