• Female
  • Gothenburg
  • Sweden
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Latest Activity

Louise commented on Cheryl, Co-founder's blog post Truthfulness and Alopecia: Confronting the Fear of Feeling Ugly
"The bitter truth is.. If you are born beautiful with beautiful head, you look even more beautiful without hair. If you are born with non attractive features and a small uneven head and The only thing that made you attractive was your hair, like me,…"
Apr 2
Louise commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi, Just started the 7th year with FFA.  Soo.. many treatments, nothing works.  Soo.. many hair pieces, no one works Soo.. many therapists, no one works Soo...many lost years Soo..much hatred Soo.. Isolated NO love Wasted life Biggest fear…"
Feb 2, 2023
Louise commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Maddy,  You can communicate with me in this site.  Best regards  Louise"
Nov 3, 2020
Louise replied to La's discussion New Here - just given diagnosis in the group Frontal Fibrosing Alopecia
"Hi, I have been here before Covid19, after that everything changed. It is not possible to get hairpieces, not possible to go to the hairdresser. The stress has had a huge negative impact on my FFA och LP all over my scalp. It is impossible for me to…"
Jul 22, 2020
Louise replied to CurlyK's discussion Bonded Hair Pieces in the group Frontal Fibrosing Alopecia
"Hi everyone, How do you cope with FFA? I have had FFA for 4 years now and I can´t cope with it anymore, it really has ruined the past 4 years of my life. Most of you seem to cope really good with this  awful disease, happy smiles,…"
Mar 21, 2020
Louise replied to Toby's discussion Help any medicines that work? in the group Frontal Fibrosing Alopecia
"Hi Toby, I am sorry to tell you, I really don´t think any medication will help us. I was diagnosed 4 years ago and for the past three years I´ve been on Plaquenil and Finasteride, didn´t help at all. Since a year I´ve been…"
Dec 28, 2019
Louise commented on Celia UK's group Frontal Fibrosing Alopecia
"Hello Minter and Lu, First I would like to mention that none of us should feel ashamed  of our emotions when it comes to this horrible  condition. Why should we accept this disease or any disease. Sometimes I`m so provoked by this word…"
Apr 28, 2019
Louise commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi all of you, Back on this forum and after so many years with this dreadful disease it is obvious that only women who suffer from this condition really understand you. We lose at lot in life, even if this disease does´nt kill you, But to feel…"
Apr 17, 2019

Profile Information

Relationship Status:
About Me:
I am diagnosed with scaring alopecia.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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