I am the mother of a four year old boy named Jeremy who developed alopecia last May 2009. At first we thought he had a fungus, but then he was diagnosed with alopecia areata. Within a few months he had lost all of the hair on his head (thankfully his eyelashes and eyebrows were not affected). It was an extremely difficult thing to go through, feeling helpless as I watched more and more hair disappear. I researched relentlessly and found a product called "Hair Up" made by a scientist in Israel named Shmuel Gonen. I started using his products on Jeremy back in September and noticed hair growing within a couple of weeks. Jeremy now has more than 90% of his hair back (Thank God!). I am hopeful that he will keep his hair, but I know that alopecia is so unpredictable... However I am confident that this will only make him stronger in the long run if he continues to lose and grow back hair. Anyway I'm just on here looking to connect with other parents who have gone through this same situation and hope to meet some in the area!
Hi Louise, Nice to hear back from you. It is really hard to deal with the initial shock of Alopecia. It is almost like the world is over. But, it is our kids that matter most and helping them to accept and live with it. They will be the ones having to face the world and the questions as time goes by. The first things I went to was hard and I cried. I am not sure if we can make it this summer, but we are going to try. With CAP based out of PA there is a big network of families. I am sure Betsy can find someone near you if you can't make it to one of their meetings. I do know it would be worth the drive to go to one if you can. It will help you to talk to other parents and it will help; your son to know he is not alone. Are you trying any treatments?
Hi Louise, I am mom to an 8 yr old with Alopecia. You have a handsome looking young man. How are you? I see Thea suggested contacted CAP. They are a great organization and have support group meetings in Reading PA. CAP also just started a pen pal program and we can find Jeremy a pen pal. I am assisting Betsy the executive director with this. Last summer was the first Alopeciapalooza in Philly. There were kids activities and parent workshops. My daughter had a blast. This summer they are holding the conference at a camp site in the Poconos. Both you and your son will meet so many people. Cindy
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